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amfAR

amfAR, the Foundation for AIDS Research, known until 2005 as the American Foundation for AIDS Research, is an international nonprofit organization dedicated to the support of AIDS research, HIV prevention, treatment education, and the advocacy of AIDS-related public policy.

American Foundation for AIDS Research
AbbreviationamfAR
FormationSeptember 1983; 40 years ago (1983-09)
Merger ofAIDS Medical Foundation
National AIDS Research Foundation
13-3163817[1]
Legal statusResearch charity
FocusAIDS Research
HeadquartersNew York, New York
Coordinates40°42′17″N 74°00′22″W / 40.704772°N 74.006174°W / 40.704772; -74.006174
Region
Worldwide
William H. Roedy
Kevin Frost[2]
William H. Roedy (Chairman of the Board)
Cindy Rachofsky (Vice Chairman)
Michael J. Klingensmith (Treasurer)
Arlen Andelson (Secretary)
[2]
Main organ
Board of Trustees
Revenue
$50,539,089 (2016)[3]
Expenses$41,938,531 (2016)[3]
Endowment$80,773,661 (2016)[3]
Websitewww.amfar.org

amfAR is a tax-exempt corporation under Internal Revenue Code section 501(c)(3)[4] and operates as an independent nonprofit with worldwide initiatives.[5] amfAR was formed in September 1985 by actress Elizabeth Taylor, Dr. Michael Gottleib, Dr. Mathilde Krim, physician Dr. Joseph Sonnabend, and activist Michael Callen. The organization was created when Taylor and Gottleib’s California-based National AIDS Research Foundation,[6] which sought to actively engage in HIV-related drug development.[7] , merged with Krim’s New York-based AIDS Medical Foundation (AMF), which sought to lessen the stigma surrounding HIV/AIDS diagnoses, as well as to increase funding to the cause. What resulted was a foundation that prioritized both research and development as well as policy influence. This foundation was one of the first of its kind to embody both aspects of healthcare.

amfAR currently has three headquarters, located in New York City; Washington, D.C.; and Bangkok, Thailand.[8] amfAR spurs research and development through providing grants and fellowships to organizations, such as the Family Institute of Health, and individuals through the Mathilde Krim Fellowships in Basic Biomedical Research.[9][10] amfAR has provided over 3,300 grants to research teams across the world and has invested over $400 million to research aiming to effectively treat HIV and AIDS related illness.[11] amfAR's funds historically have gone to funding research, and as a result have helped pioneer community-based clinical research trials in the 1980s, as well as the involvement of AIDS patients in the drug approval process (see also: Denver Principles).[12] Changes in leadership have marked changes in focus, resulting in shifts from public health outreach (needle exchange program pushes)[13] to public education (the amfAR AIDS Handbook)[14] to international research and outreach.[15]

amfAR has embarked on various national and international campaigns to spur AIDS/HIV research, create a dialogue and decrease stigma surrounding the disease. Through TREAT Asia and GMT, amfAR took international roots and began funding research and outreach on all inhabited continents.[16] National initiatives have included the Countdown to a Cure for AIDS. The Institute for HIV Cures Research and amfAR Research Consortium on HIV Eradication (ARCHE) were both created to aid this countdown, both to help fund research as well as provide a facility at which those researcher can work.[17] To supplement the funding of these initiatives, amfAR is funded through sources like stock donations and their annual galas, which represent the majority of their source of funding.[18]

After Kenneth Cole stepped down as chairman, he was replaced by William H. Roedy.[2] The current CEO Kevin Robert Frost joined amfAR in 1994 and became CEO in 2004.[19] Together they lead 9 members of the Management Team,[19] 25 Board of Trustees members[2] and over 100 advisors to both their scientific and political platforms.[20][21]

CharityWatch rates the Foundation for AIDS Research an "A−" grade.[22]

Charity Navigator rates amfAR a four-star charity.[23]

History edit

Origins edit

In the early 1980s, a group of researchers and scientists including Mathilde Krim, Ph.D., then a researcher at New York's Memorial Sloan Kettering Cancer Center, formed an informal study group to investigate the condition that came to be known as AIDS. In 1983, Krim, Dr. Joseph Sonnabend, Michael Callen, and several others launched the New York-based AIDS Medical Foundation. In Los Angeles, Dr. Michael S. Gottlieb and amfAR Founding National Chairman Elizabeth Taylor spearheaded the creation of the National AIDS Research Foundation with a $250,000 contribution from Rock Hudson shortly before his AIDS related death in October 1985. The two organizations merged in September 1985 to become "American Foundation for AIDS Research" (amfAR). [24]

 
Nancy Pelosi and Elizabeth Taylor Testifying Before the House Budget Committee on HIV-AIDS Funding (5978837887) (cropped)

Elizabeth Taylor's Critical Role edit

As Founding National Chairman of amfAR, Elizabeth Taylor became the organization’s principal spokesperson and titular head. She made countless public appearances on the foundation’s behalf and secured multiple $1 million gifts.[25] As a star and public figure, her involvement attracted enormous media attention to amfAR, and she made trips to Thailand, Japan, and Europe on the foundation’s behalf.

In 1987, she testified before Congress to plead for a funding increase for emergency AIDS care in areas hardest hit by the epidemic.[26] Her testimony helped draw media attention, which built public support for the Comprehensive AIDS Resources Emergency (CARE) Act. She then persuaded President Ronald Reagan to acknowledge the disease for the first time in a speech in 1987. Three years later, she once again testified before Congress[27] with Jeanne White, mother of Ryan White. The pair urged Congress to pass the CARE Act of 1990. The CARE Act, named for White, was passed into law by Congress on August 18th, 1990. Though the bill passed, funds were slow to be allocated so Elizabeth went back to Congress to fight for the promised funding. The act became the United States’ largest federally funded program for people living with HIV/AIDS. In 2009, President Barack Obama signed the fourth extension of the act. The program provides care for 500,00 people a year and funds over 2,000 organizations.

 
Mathilde Krim in 1962, the year she departed Cornell Medical College

Leadership Under Krim edit

Krim's achievements during her time as a leader of amfAR involved increased public education and direct political action. Primarily, Krim spearheaded the publishing of amfAR's first HIV/AIDS Treatment Directory, which provides medical professionals updated information on the treatment of HIV/AIDS, as well as clinical trials that People With AIDS (PWAs) can participate in.[28] The publishing of this directory continued for 11 volumes until the year 2001.[29] Following the increased involvement of AIDS activists and patients with the drug approval process, Krim and Elizabeth Taylor testified before the National Institute of Health and Congress on the importance of clinical trials within community settings.[30] These testimonies and lobbying efforts by Krim and Taylor led to the first Adult AIDS Clinical Trials Group, which allowed people with AIDS and HIV to actively take part in the testing needed to approve AIDS drugs.[31] Krim further shaped the structure of amfAR's fellowships, as she impelled the first grant of money to Peter Piot for his landmark study on female-to-male AIDS transmission in Kenya.[32]

"They felt that this was a disease that resulted from a sleazy lifestyle, drugs or kinky sex—that certain people had learned their lesson and it served them right," Dr. Krim told The New York Times Magazine in 1988. "That was the attitude, even on the part of respectable foundations that are supposed to be concerned about human welfare."[33]

One of Krim's final projects was her push for needle exchange programs in the face of mass stigma toward IV-drug users. Amid the 1980s "War on Drugs", Krim's thoughts on sterile needle exchange is reflected in a quote, saying, "It was a brilliant idea. It would work—the drug users would use the clean needles—and it would be inexpensive."[13] Krim worked with the Outside In needle exchange program in Portland, Oregon in 1989, and funded trials of needle exchange programs in Tacoma, Washington, between 1989–1991.[13] amfAR used the results of these studies, as well as a study in New Haven, Connecticut, to compile a report with the National Academy of Science which concluded that syringe exchange programs were safe and effective.[34] Before stepping down, Krim saw the international surge of amfAR, with the creation of initiatives such as TREAT Asia, and in 2004 the TREAT Asia HIV Observational Database (the only HIV database in Asia).[35][15]

In 2005, Mathilde Krim stepped down as founding chair. According to amfAR, she served as CEO from 1990 through 2004, and is described as the "heart and soul" of the organization. Charles Kaiser described Krim as "determined to prevent America from using AIDS to stigmatize homosexuals" in his book The Gay Metropolis: The Landmark History of Gay Life in America.[36] She was widely viewed as someone who fought on the front lines against prejudices against many people with AIDS. Apart from aiding research for life saving drugs, Krim was equally a proponent of reshaping public opinion, as noted by the New York Times tributes to her and those who interacted with her.[37]

amfAR After Krim edit

The year after Krim stepped down in 2004, the CDC reported that 1,000,000 Americans were living with HIV/AIDS.[38] In an effort to reduce the stigma surrounding HIV/AIDS, amfAR's new chairman Kenneth Cole[39] led amfAR to partner with Viacom Inc. and the Kaiser Family Foundation to launch an initiative called KNOW HIV/AIDS.[40] This program funded an AIDS awareness campaign titled, "We All Have AIDS",[41] which marked a more controversial tone in amfAR's new public strategy. In line with the launching of program initiatives, amfAR under Cole launched the TREAT Asia pediatric network[42] and the MSM initiative, which was a global effort to help educate, treat and prevent HIV/AIDS in men who have sex with men.[43]

In honor of its founding chair, amfAR launched the Mathilde Krim Fellowship in Basic Biomedical Research in 2008.[44] The goal of this fellowship is to spur young and independent research groups who are actively searching for HIV/AIDS medical advancements.[44] This grant has spurred discoveries such as the first recorded birth of new HIV virus particles by Dr. Nolwenn Jouvenet, as well as other developments at the pinnacle of HIV research.[45] Other recipients of the Mathilde Krim Fellowship such as Bing Chen[46] and Rosa Cardoso[47] have made discoveries that have been central to the modern understanding of the HIV virus.[48]

After Cole stepped down as chairman due to a fraud investigation surrounding money diversion,[49] he was replaced by William H. Roedy.[2] The current CEO Kevin Robert Frost joined amfAR in 1994 and became CEO in 2004.[19] Together they lead 9 members of the Management Team,[19] 25 Board of Trustees members[2] and over 100 advisors to both their scientific and political platforms.[20][21]

Headquarters and facilities edit

amfAR's Sheldon W. Andelson Public Policy Office is located in Washington, D.C.,[50] and is where many Rosenfield public policy fellows[51] and employees work, as well as its management team of CEO and Board of Trustees.[50] amfAR's original headquarters as well as their largest operations facilities is in New York City.

Institute for HIV Cures Research edit

In 2015 amfAR announced a collaboration with the University of California, San Francisco Medical School to create their first Institute for HIV Cures Research.[52] This facility works to foster research and was founded with the goal of finding a cure to AIDS by the year 2020.[53] The leaders of the institute are Paul Volberding, MD who is the head of the UCSF AIDS Research Institute; Satish Pillai, PhD who part of the Blood Systems Institute as well as Warner Greene, MD, PhD, who helps direct the program.[52] To remark on the progress that the institute had been making since its foundation, Volberding told CBS News in 2016:

To see the pace from the days that we could do very little other than watch our patients die to finding the first treatments and then working hard to make those treatments better to where we are now has been remarkable. We have a lot of different options of three or four drug combinations put together in a single pill that a person takes once a day. It's remarkably easier than it used to be.

Bangkok, Thailand headquarters edit

amfAR established its first international headquarters in Klongtoey, Bangkok, Thailand, in 2001 to accompany its TREAT Asia network.[54] The headquarters establishes closer contact to its 21 adult and 20 pediatric clinics in 12 countries across East Asia.[55] The headquarters is internationally run as well, and works to streamline the logistics of projects in TREAT Asia.[54] Former Chairman Kenneth Cole announced that the decision to move headquarters to Thailand was due to the ability to use the government's generous resources that have been committed to treating the crisis, and have effectively reduced the HIV prevalence in the country to under 1.1% due to quick mobilization and dedicated work.[56]

Initiatives and campaigns edit

With $20 million over five years, the amfAR Institute for HIV Cure Research will support the work of scientists at UC San Francisco (UCSF), the Gladstone Institute for Virology and Immunology (GIVI), the Blood Systems Research Institute (BSRI) and other academic partners who are at the forefront of the effort to cure AIDS, rather than simply treating it as a chronic disease.[citation needed]

National initiatives edit

Countdown to a Cure for AIDS edit

amfAR has long intended to find a scientific cure to AIDS by the year 2020, and it created the Countdown to a Cure for AIDS in February 2014 as a way of speeding up this process.[57] The "Countdown" is an investment initiative that intends to give $100 million to scientists working to find a cure. Most grants are given through applications at the University of California, San Francisco. By the year 2017, amfAR had granted $42 million to researchers, and it gave over $3.5 million in grants to six research teams under the amfAR Research Consortium on HIV Eradication (ARCHE), and later $1.2 million to AIDS innovators.[58][59] By 2016, the Countdown, along with ARCHE had granted money to 139 principal investigators and key personnel across 16 states and 9 countries.[57]

The amfAR Institute for HIV Cure Research at the University of California, San Francisco began in 2015 as the central facility to achieve their Countdown to a Cure for AIDS by 2020. It began from a $20 million grant to UCSF. Many researchers who receive fellowships and grants from amfAR and ARCHE work at the new facilities at UCSF.[60] Under the Countdown to a Cure for AIDS, amfAR hosts an annual HIV Cure Summit, which aims to hear from voices in the research community on breakthroughs, as well as discuss discoveries that have motivated AIDS research, such as the breakthrough with the Berlin patient, who spurred the countdown in the first place.[57][61] In November 2020, amfAR signed an agreement with CytoDyn Inc. to explore the potential of its CCR-5 antagonist Vyrologix (Leronlimab) to mediate a functional HIV cure. According to Kevin Robert Frost, Chief Executive Officer at amfAR, "demonstrating that Leronlimab can functionally phenocopy CCR5 deficiency and replicate the London and Berlin patients would be a major advancement."[62]

Global initiatives edit

TREAT Asia edit

 

The Therapeutics Research, Education and AIDS Training (TREAT) in Asia was founded in 2001 under the leadership of Mathilde Krim.[63] The initiative aimed to create communication networks among Asian countries who are aiming to treat HIV, using Thailand as a model and a central headquarters for the operation. TREAT Asia is directed by Annette Sohn of the University of California San Francisco, who is a principal investigator alongside Matthew Law of the Kirby Institute at the University of South Wales.[64] The two lead a team of 18 scientists to perform research in the area on topics such as mental healthcare access of people with HIV/AIDS in Asian countries[65] and the effect of new drugs on children with HIV.[66]

The TREAT Asia member countries are all partners of the US National Institutes of Health's International Epidemiological Databases to Evaluate AIDS (IeDEA) global cohort consortium.[67] The countries include:[54]

There are over 60 research facilities, mostly hospitals and healthcare providers, in these countries that communicate with amfAR's headquarters in Thailand.[54] The foundation has said that they service around 84,000 people of all ages who are affected with HIV and AIDS who otherwise were not aided before the program began.[68]

The GMT Initiative edit

The GMT initiative is dedicated to providing HIV/AIDS assistance to men who have sex with men (MSM) and transgender people (which they term as the collective 'gay men and transgender (GMT)').[69] Unlike TREAT Asia, the GMT Initiative is truly global, with recent work in regarding their mentoring model in Paraguay, Thailand, Tajikistan and Kenya and Ukraine.[69] The GMT Initiative further aims to spur outreach to low-income individuals by providing the amfAR HIV Scholars Program with the Center for LGBT Health Research at the University of Pittsburgh. Scholarship recipients from 2015 include individuals from South Africa, Pakistan and Belize.[70]

The GMT Initiative aims to provide mentorship training to MSM and transgender individuals in countries with low access to AIDS support. It created a mentoring model that empowers 'GMT' to connect with younger individuals with HIV/AIDS in spite of a potential homophobic and stigmatized environment in the low and middle income countries that they service.[71]

Funding edit

 
Liza Minnelli with Kenneth Cole at annual amfAR Gala in 2006

As a 501(c)(3), amfAR files an annual 990 Form to the IRS, which is publicly accessible. The following information is garnered from their 2017 filing:

amfAR 2017 Revenue sources[18]
Source Amount (in USD) Difference from previous year (2016)
Contributions and Grants $50,842,378 -$7,967,828
Investment Income $1,434,528 +$325,634
Program Service Revenue $0 $0
Total: $52,276,906 -8,435,626

Contributions and grants edit

Contribution and Grants Breakdown, 2017
Source Amount (in USD)
Federated Campaigns $267,404
Membership Dues $0
Fundraising Events $33,063,451
Government Grants $11,546,419
All other gifts, grants

and misc. contributions

$135,714
Total: $50,842,378

Worldwide amfAR Galas edit

amfAR's largest source of revenue comes from its fundraising events,[18] large portions of that money comes from one of its annual charity event held at the Hôtel du Cap-Eden-Roc in Antibes, France, titled "amfAR's Annual Cinema Against AIDS".[72] The gala aims to raise money through auctioning items, as well as selling a limited number of tickets.[72] The idea originated with Taylor, who knew the power of these international, high profile events from her career as an actress. Since the first amfAR gala, the charity has raised over $210 million to support AIDS research causes.[73] The most recent gala held in Cannes raised around $20 million[73] at its 2016 gala, which is a marked decrease from the over $25 million it raised in the same 2016 and 2017 events.[74] It was speculated that this decrease in funding was due to both the absence of its largest donor Harvey Weinstein, as well as the scandal surrounding the ousting of Kenneth Cole.[75]

Celebrities frequently donate items to be auctioned off for the foundation, and past donors have included Uma Thurman, Karlie Kloss and Milla Jovovich, among others.[73] The 25th annual gala embraced the #MeToo movement, and was chaired by 25 prominent women on stage and screen, namely: Alessandra Ambrosio, Poppy Delevigne, Linda Evangelista, Sylvia Fendi, Aileen Getty, Kate Hudson, Scarlett Johansson, Milla Jovovich, Heidi Klum, Daphna Krim (daughter of Mathilde Krim), Karolina Kurkova, Sienna Miller, Angela Missoni, Mary Parent, Katy Perry, Natasha Poly, Aishwarya Rai, Vanessa Redgrave, Joely Richardson, Carine Roitfeld, Caroline Scheufele, Irina Shayk, Lara Stone, Donatella Versace, and Michelle Yeoh.[72] Past items auctioned have included numerous photographs by Andy Warhol, Annie Leibovitz portrait sessions, stays in fashion moguls and celebrity houses and 53-karat diamond jewelry.[76] Heidi Klum notably donated her Bentley S3 convertible to garner one of the highest bids at €200,000.

amfAR galas have been held in cities like New York City, Milan, Los Angeles, São Paulo and Hong Kong,[77] each garnering anywhere from €2,000,000 to €13,000,000 to support amfAR's research.[75]

Investment Income edit

Investment Income Breakdown, 2017
Source Amount (in USD)
Dividends, interest and other similar amounts $1,295,049
Income from investment of tax-exempt bond proceeds $0
Net gain $139,479
Total: $1,434,528

Though amFAR does not disclose individual donors of stocks, they publish the figure of $1,295,049 on their 990 Form to represent the interest and amount they receive through donations of stock.[78] Further fluctuations in losses through investment and payments of investment income are accounted through the Net Gain row, indicating a net gain of $139,479 following external investments and payments.

Public health education and outreach edit

Syringe exchange programs edit

Krim's original view on needle exchange was largely affected by exposure through visits to foundational needle exchange programs:

On one visit, Mathilde met a clearly pregnant woman coming to exchange syringes. Mathilde was very upset. After the woman left the exchange, Mathilde spoke to the exchange worker. "That woman should be in treatment, not exchanging syringes." "Yes," the worker replied, "but the prenatal clinics do not accept drug addicts, and the drug abuse treatment programs do not accept pregnant women." -Don C. Des Jarlais, Ph.D.

After interactions like these, Krim began work with the Outside In needle exchange program in Portland, Oregon, beginning in 1989;[13] this program was a service program for youth who had run away. Led by Kathy Oliver, amfAR helped gain insurance support for the program, and later compiled a report that showed the effectiveness of the study: needle discard rates in Portland neighborhoods decreased as a result of the study.[79]

Krim later used amfAR's research funding apparatus to help David Purchase begin a needle and syringe exchange program in Tacoma, Washington.[13] He used the money granted to analyze Tacoma's syringe exchange programs. Similarly to the results found in the Portland study, Purchase found that hepatitis B, C and HIV rates were much lower for users in Pierce County who exchanged their needles than those who did not. The study also found low HIV rates among women who use the exchange for IUD injections.[80]

amfAR AIDS Handbook edit

The first AIDS handbook was published in 1999[14] as an effort to give a "comprehensive" and "concise" description of HIV/AIDS and methods of prevention. This 496-page book was intended for the general public,[81] as opposed to their HIV/AIDS Treatment Directory intended for medical professionals.[82][28] This book was used in a study[83] intended to see the effects of AIDS education on elementary education. The study found statistically significant increases in AIDS comprehension in students who were educated using the amfAR AIDS Handbook. The handbook stands as one of amfAR's attempts at public education for AIDS/HIV related topics.[84]

Trans Pacific Partnership opposition edit

In May 2015 amfAR released a report showing that increases in intellectual property rights of pharmaceutical countries would drive up the price of some drugs that are desperately needed in the developing world, namely countries who rely on affordable antiretroviral drugs.[85] The group says that would hamper the global fight against AIDS (and other diseases) at an unsustainable rate. This report marked the first time that amfAR involved itself in economic policy that indirectly pertained to AIDS, and its rally against Trade-Related Aspects of Intellectual Property Rights (TRIPS) reached national attention as a provision of the TPP that was traditionally seen to be benign.[86]

Controversies edit

Cole's chairmanship edit

Kenneth Cole served as the amfAR chairman for 14 years and as a board member for a total of 30 years.[87] In 2015, following years of controversy, he stepped down and now has no involvement in the organization.[88][89]

Harvey Weinstein scandal edit

At amfAR's 22nd annual benefit in Cannes, France, in May 2015, Harvey Weinstein made a deal with amfAR chairman Kenneth Cole: Weinstein would auction off two items (one being a sitting with a famous fashion photographer and the second being tickets to a Hollywood film awards event) on the condition that $600,000 of the proceeds raised at the auction would be donated as a charitable gift to the American Repertory Theater. The reason for this contingent was that the American Repertory Theater promised Weinstein a $1.25 million reimbursement and a $500,000 charitable donation to the play Finding Neverland, which Weinstein was producing at the theater, on the condition that third parties donate the same amount to the production.[89]

While the arrangement raised $309,669 for amfAR and was ruled "legitimate and lawful" by the law firm Gibson, Dunn & Cutcher, investigations and public outrage ensued surrounding the charity's financial integrity. A rift formed between Chairman Kenneth Cole and CEO Kevin Robert Frost, as evidenced by an email from Frost in 2015 saying, "Nothing about this deal feels right to me, and I believe we have not done due diligence to understand exactly what this money is being directed to or why amfAR is being used to facilitate these transfers."[90]

AmfAR's management initially refused, citing their longstanding policy against doing so, but Weinstein was persistent. He had apparently donated $2 million to ART on the condition that if he could raise more money from others before June 1, 2015, they would return the contribution. Cole and Weinstein reportedly agreed that ART and amfAR would split any money from the lots up to $1.2 million evenly, and all money above that amount would be exclusively amfAR's. Except for a last-second insert attributed to Cole noting that ART would get some of the money from one of the lots, a fashion shoot with Mario Testino, there was nothing else to indicate to bidders where their money was going. Cole told Vanity Fair later that he had always felt bullied by Weinstein, and the insert was a small act of resistance.[90]

Weinstein demanded amFAR repay him immediately instead of waiting for the money for the lots to come in. In early 2016 the organization's board retained attorney Tom Ajamie to investigate the transaction, who concluded that Weinstein's failure to disclose all relevant information had exposed amfAR to material risks to its reputation if the deal had turned out to be illegal. The report divided the board, with several members resigning over what they saw as Cole's failures. After Weinstein found out that some of the people Ajamie talked to had shared information about his rumored history of sexual misconduct, information that became public knowledge in September 2017, Weinstein demanded that board members who had read the report sign non-disclosure agreements, leading to more resignations.[90]

In April 2017, 19 members of the Board of Trustees contacted the Attorney General to explain that Cole had proceeded with this deal in spite of the objections of the wider executive management team, as confirmed by their spokesperson Steven Goldberg. Following legal struggles surrounding the benefit to private investors of charitable donations, Weinstein pushed amfAR to sign nondisclosure agreements that indicated no wrongdoing and no further probing. As a result, four members (Mervyn Silverman, Vincent Roberti, Arlen Andelson and Jonathan Canno) refused to sign and went to petition the Attorney General on the impropriety of Kenneth Cole. In that time two other board members had resigned.

Cole's term limit proposal edit

On November 13, NBC News obtained a letter signed by 60 gay rights community members calling for his resignation. This letter was signed by Greg Louganis, an Olympic diver; Larry Kramer, playwright and activist and amfAR contributor Peter Staley, among others. As a result of the scandal, Kenneth Cole stepped down as chairman after a 14-year tenure.[49] Cole initially couched his decision to step down, along with four other board members,[91] as the result of term limits being imposed by the amfAR Board of Trustees with his support.[92] Later, however, the attorney general's charity bureau sent a letter to the board on February 2, which exposed a proposal by Cole which allowed him to maintain his role as chairman in spite of new term limits.[92] The attorney general's office sent a second letter on February 6 that mandated the board update its term limits and end Cole's tenure. The attorney general allowed him to stay as a non-voting member for six months while his replacement is determined.[92] With the calls for resignation by many on the Board of Trustees, and a mandate from New York Attorney General Eric Schneiderman's office, Cole announced his decision to step down at an amfAR gala on Wednesday, February 7, 2018.[93]

Sharon Stone's advocacy edit

In 1995, actress Sharon Stone began to serve as a spokesperson for amfAR. She said this resulted in a negative impact on her career causing Hollywood to blacklist her for eight years. [1]

See also edit

References edit

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  2. ^ a b c d e f "Board of Trustees". amfAR. Retrieved 29 May 2017.
  3. ^ a b c (PDF). amfAR. Archived from the original (PDF) on 11 November 2018. Retrieved 10 November 2018.
  4. ^ "Syringe Exchange Saves Lives and Money". Retrieved 2018-11-08.
  5. ^ . www.amfar.org. Archived from the original on 2018-11-10. Retrieved 2018-10-26.
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  7. ^ Shilts, Randy (1987). And The Band Played On. London, England: St. Martin's Press. p. 157. ISBN 978-0-312-00994-6.
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  15. ^ a b Zhou, Jialun; Dore, Gregory J; Zhang, Fujie; Lim, Poh Lian; Chen, Yi-Ming A (2007-08-15). "Hepatitis B and C virus coinfection in The TREAT Asia HIV Observational Database". Journal of Gastroenterology and Hepatology. 22 (9): 1510–1518. doi:10.1111/j.1440-1746.2007.05062.x. ISSN 0815-9319. PMID 17645479. S2CID 1201811.
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  22. ^ "Foundation for AIDS Research (amfAR) | Charity Ratings | America's Most Independent Charity Watchdog | CharityWatch". www.charitywatch.org. Retrieved 2018-10-27.
  23. ^ "Charity Navigator - Rating for amfAR". Charity Navigator. Retrieved 2018-10-27.
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  25. ^ "Dame Elizabeth Taylor". amfAR.
  26. ^ "HIV/AIDS Epidemic in America". C-SPAN.
  27. ^ "Early Intervention in AIDS". C-SPAN.
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External links edit

  • Official website
  • "Honoree List". AmfAR. from the original on November 8, 2023. Retrieved November 8, 2023.

amfar, foundation, aids, research, known, until, 2005, american, foundation, aids, research, international, nonprofit, organization, dedicated, support, aids, research, prevention, treatment, education, advocacy, aids, related, public, policy, american, founda. amfAR the Foundation for AIDS Research known until 2005 as the American Foundation for AIDS Research is an international nonprofit organization dedicated to the support of AIDS research HIV prevention treatment education and the advocacy of AIDS related public policy American Foundation for AIDS ResearchAbbreviationamfARFormationSeptember 1983 40 years ago 1983 09 Merger ofAIDS Medical FoundationNational AIDS Research FoundationTax ID no 13 3163817 1 Legal statusResearch charityFocusAIDS ResearchHeadquartersNew York New YorkCoordinates40 42 17 N 74 00 22 W 40 704772 N 74 006174 W 40 704772 74 006174RegionWorldwideChairman of the BoardWilliam H RoedyChief Executive OfficerKevin Frost 2 Board of directorsWilliam H Roedy Chairman of the Board Cindy Rachofsky Vice Chairman Michael J Klingensmith Treasurer Arlen Andelson Secretary 2 Main organBoard of TrusteesRevenue 50 539 089 2016 3 Expenses 41 938 531 2016 3 Endowment 80 773 661 2016 3 Websitewww wbr amfar wbr org amfAR is a tax exempt corporation under Internal Revenue Code section 501 c 3 4 and operates as an independent nonprofit with worldwide initiatives 5 amfAR was formed in September 1985 by actress Elizabeth Taylor Dr Michael Gottleib Dr Mathilde Krim physician Dr Joseph Sonnabend and activist Michael Callen The organization was created when Taylor and Gottleib s California based National AIDS Research Foundation 6 which sought to actively engage in HIV related drug development 7 merged with Krim s New York based AIDS Medical Foundation AMF which sought to lessen the stigma surrounding HIV AIDS diagnoses as well as to increase funding to the cause What resulted was a foundation that prioritized both research and development as well as policy influence This foundation was one of the first of its kind to embody both aspects of healthcare amfAR currently has three headquarters located in New York City Washington D C and Bangkok Thailand 8 amfAR spurs research and development through providing grants and fellowships to organizations such as the Family Institute of Health and individuals through the Mathilde Krim Fellowships in Basic Biomedical Research 9 10 amfAR has provided over 3 300 grants to research teams across the world and has invested over 400 million to research aiming to effectively treat HIV and AIDS related illness 11 amfAR s funds historically have gone to funding research and as a result have helped pioneer community based clinical research trials in the 1980s as well as the involvement of AIDS patients in the drug approval process see also Denver Principles 12 Changes in leadership have marked changes in focus resulting in shifts from public health outreach needle exchange program pushes 13 to public education the amfAR AIDS Handbook 14 to international research and outreach 15 amfAR has embarked on various national and international campaigns to spur AIDS HIV research create a dialogue and decrease stigma surrounding the disease Through TREAT Asia and GMT amfAR took international roots and began funding research and outreach on all inhabited continents 16 National initiatives have included the Countdown to a Cure for AIDS The Institute for HIV Cures Research and amfAR Research Consortium on HIV Eradication ARCHE were both created to aid this countdown both to help fund research as well as provide a facility at which those researcher can work 17 To supplement the funding of these initiatives amfAR is funded through sources like stock donations and their annual galas which represent the majority of their source of funding 18 After Kenneth Cole stepped down as chairman he was replaced by William H Roedy 2 The current CEO Kevin Robert Frost joined amfAR in 1994 and became CEO in 2004 19 Together they lead 9 members of the Management Team 19 25 Board of Trustees members 2 and over 100 advisors to both their scientific and political platforms 20 21 CharityWatch rates the Foundation for AIDS Research an A grade 22 Charity Navigator rates amfAR a four star charity 23 Contents 1 History 1 1 Origins 1 2 Elizabeth Taylor s Critical Role 1 3 Leadership Under Krim 1 4 amfAR After Krim 2 Headquarters and facilities 2 1 Institute for HIV Cures Research 2 2 Bangkok Thailand headquarters 3 Initiatives and campaigns 3 1 National initiatives 3 1 1 Countdown to a Cure for AIDS 3 2 Global initiatives 3 2 1 TREAT Asia 3 2 2 The GMT Initiative 4 Funding 4 1 Contributions and grants 4 2 Worldwide amfAR Galas 4 3 Investment Income 5 Public health education and outreach 5 1 Syringe exchange programs 5 2 amfAR AIDS Handbook 5 3 Trans Pacific Partnership opposition 6 Controversies 6 1 Cole s chairmanship 6 1 1 Harvey Weinstein scandal 6 1 2 Cole s term limit proposal 6 1 3 Sharon Stone s advocacy 7 See also 8 References 9 External linksHistory editOrigins edit In the early 1980s a group of researchers and scientists including Mathilde Krim Ph D then a researcher at New York s Memorial Sloan Kettering Cancer Center formed an informal study group to investigate the condition that came to be known as AIDS In 1983 Krim Dr Joseph Sonnabend Michael Callen and several others launched the New York based AIDS Medical Foundation In Los Angeles Dr Michael S Gottlieb and amfAR Founding National Chairman Elizabeth Taylor spearheaded the creation of the National AIDS Research Foundation with a 250 000 contribution from Rock Hudson shortly before his AIDS related death in October 1985 The two organizations merged in September 1985 to become American Foundation for AIDS Research amfAR 24 nbsp Nancy Pelosi and Elizabeth Taylor Testifying Before the House Budget Committee on HIV AIDS Funding 5978837887 cropped Elizabeth Taylor s Critical Role edit As Founding National Chairman of amfAR Elizabeth Taylor became the organization s principal spokesperson and titular head She made countless public appearances on the foundation s behalf and secured multiple 1 million gifts 25 As a star and public figure her involvement attracted enormous media attention to amfAR and she made trips to Thailand Japan and Europe on the foundation s behalf In 1987 she testified before Congress to plead for a funding increase for emergency AIDS care in areas hardest hit by the epidemic 26 Her testimony helped draw media attention which built public support for the Comprehensive AIDS Resources Emergency CARE Act She then persuaded President Ronald Reagan to acknowledge the disease for the first time in a speech in 1987 Three years later she once again testified before Congress 27 with Jeanne White mother of Ryan White The pair urged Congress to pass the CARE Act of 1990 The CARE Act named for White was passed into law by Congress on August 18th 1990 Though the bill passed funds were slow to be allocated so Elizabeth went back to Congress to fight for the promised funding The act became the United States largest federally funded program for people living with HIV AIDS In 2009 President Barack Obama signed the fourth extension of the act The program provides care for 500 00 people a year and funds over 2 000 organizations nbsp Mathilde Krim in 1962 the year she departed Cornell Medical College Leadership Under Krim editKrim s achievements during her time as a leader of amfAR involved increased public education and direct political action Primarily Krim spearheaded the publishing of amfAR s first HIV AIDS Treatment Directory which provides medical professionals updated information on the treatment of HIV AIDS as well as clinical trials that People With AIDS PWAs can participate in 28 The publishing of this directory continued for 11 volumes until the year 2001 29 Following the increased involvement of AIDS activists and patients with the drug approval process Krim and Elizabeth Taylor testified before the National Institute of Health and Congress on the importance of clinical trials within community settings 30 These testimonies and lobbying efforts by Krim and Taylor led to the first Adult AIDS Clinical Trials Group which allowed people with AIDS and HIV to actively take part in the testing needed to approve AIDS drugs 31 Krim further shaped the structure of amfAR s fellowships as she impelled the first grant of money to Peter Piot for his landmark study on female to male AIDS transmission in Kenya 32 They felt that this was a disease that resulted from a sleazy lifestyle drugs or kinky sex that certain people had learned their lesson and it served them right Dr Krim told The New York Times Magazine in 1988 That was the attitude even on the part of respectable foundations that are supposed to be concerned about human welfare 33 One of Krim s final projects was her push for needle exchange programs in the face of mass stigma toward IV drug users Amid the 1980s War on Drugs Krim s thoughts on sterile needle exchange is reflected in a quote saying It was a brilliant idea It would work the drug users would use the clean needles and it would be inexpensive 13 Krim worked with the Outside In needle exchange program in Portland Oregon in 1989 and funded trials of needle exchange programs in Tacoma Washington between 1989 1991 13 amfAR used the results of these studies as well as a study in New Haven Connecticut to compile a report with the National Academy of Science which concluded that syringe exchange programs were safe and effective 34 Before stepping down Krim saw the international surge of amfAR with the creation of initiatives such as TREAT Asia and in 2004 the TREAT Asia HIV Observational Database the only HIV database in Asia 35 15 In 2005 Mathilde Krim stepped down as founding chair According to amfAR she served as CEO from 1990 through 2004 and is described as the heart and soul of the organization Charles Kaiser described Krim as determined to prevent America from using AIDS to stigmatize homosexuals in his book The Gay Metropolis The Landmark History of Gay Life in America 36 She was widely viewed as someone who fought on the front lines against prejudices against many people with AIDS Apart from aiding research for life saving drugs Krim was equally a proponent of reshaping public opinion as noted by the New York Times tributes to her and those who interacted with her 37 amfAR After Krim edit The year after Krim stepped down in 2004 the CDC reported that 1 000 000 Americans were living with HIV AIDS 38 In an effort to reduce the stigma surrounding HIV AIDS amfAR s new chairman Kenneth Cole 39 led amfAR to partner with Viacom Inc and the Kaiser Family Foundation to launch an initiative called KNOW HIV AIDS 40 This program funded an AIDS awareness campaign titled We All Have AIDS 41 which marked a more controversial tone in amfAR s new public strategy In line with the launching of program initiatives amfAR under Cole launched the TREAT Asia pediatric network 42 and the MSM initiative which was a global effort to help educate treat and prevent HIV AIDS in men who have sex with men 43 In honor of its founding chair amfAR launched the Mathilde Krim Fellowship in Basic Biomedical Research in 2008 44 The goal of this fellowship is to spur young and independent research groups who are actively searching for HIV AIDS medical advancements 44 This grant has spurred discoveries such as the first recorded birth of new HIV virus particles by Dr Nolwenn Jouvenet as well as other developments at the pinnacle of HIV research 45 Other recipients of the Mathilde Krim Fellowship such as Bing Chen 46 and Rosa Cardoso 47 have made discoveries that have been central to the modern understanding of the HIV virus 48 After Cole stepped down as chairman due to a fraud investigation surrounding money diversion 49 he was replaced by William H Roedy 2 The current CEO Kevin Robert Frost joined amfAR in 1994 and became CEO in 2004 19 Together they lead 9 members of the Management Team 19 25 Board of Trustees members 2 and over 100 advisors to both their scientific and political platforms 20 21 Headquarters and facilities editamfAR s Sheldon W Andelson Public Policy Office is located in Washington D C 50 and is where many Rosenfield public policy fellows 51 and employees work as well as its management team of CEO and Board of Trustees 50 amfAR s original headquarters as well as their largest operations facilities is in New York City Institute for HIV Cures Research editIn 2015 amfAR announced a collaboration with the University of California San Francisco Medical School to create their first Institute for HIV Cures Research 52 This facility works to foster research and was founded with the goal of finding a cure to AIDS by the year 2020 53 The leaders of the institute are Paul Volberding MD who is the head of the UCSF AIDS Research Institute Satish Pillai PhD who part of the Blood Systems Institute as well as Warner Greene MD PhD who helps direct the program 52 To remark on the progress that the institute had been making since its foundation Volberding told CBS News in 2016 To see the pace from the days that we could do very little other than watch our patients die to finding the first treatments and then working hard to make those treatments better to where we are now has been remarkable We have a lot of different options of three or four drug combinations put together in a single pill that a person takes once a day It s remarkably easier than it used to be Bangkok Thailand headquarters edit amfAR established its first international headquarters in Klongtoey Bangkok Thailand in 2001 to accompany its TREAT Asia network 54 The headquarters establishes closer contact to its 21 adult and 20 pediatric clinics in 12 countries across East Asia 55 The headquarters is internationally run as well and works to streamline the logistics of projects in TREAT Asia 54 Former Chairman Kenneth Cole announced that the decision to move headquarters to Thailand was due to the ability to use the government s generous resources that have been committed to treating the crisis and have effectively reduced the HIV prevalence in the country to under 1 1 due to quick mobilization and dedicated work 56 Initiatives and campaigns editWith 20 million over five years the amfAR Institute for HIV Cure Research will support the work of scientists at UC San Francisco UCSF the Gladstone Institute for Virology and Immunology GIVI the Blood Systems Research Institute BSRI and other academic partners who are at the forefront of the effort to cure AIDS rather than simply treating it as a chronic disease citation needed National initiatives edit Countdown to a Cure for AIDS edit amfAR has long intended to find a scientific cure to AIDS by the year 2020 and it created the Countdown to a Cure for AIDS in February 2014 as a way of speeding up this process 57 The Countdown is an investment initiative that intends to give 100 million to scientists working to find a cure Most grants are given through applications at the University of California San Francisco By the year 2017 amfAR had granted 42 million to researchers and it gave over 3 5 million in grants to six research teams under the amfAR Research Consortium on HIV Eradication ARCHE and later 1 2 million to AIDS innovators 58 59 By 2016 the Countdown along with ARCHE had granted money to 139 principal investigators and key personnel across 16 states and 9 countries 57 The amfAR Institute for HIV Cure Research at the University of California San Francisco began in 2015 as the central facility to achieve their Countdown to a Cure for AIDS by 2020 It began from a 20 million grant to UCSF Many researchers who receive fellowships and grants from amfAR and ARCHE work at the new facilities at UCSF 60 Under the Countdown to a Cure for AIDS amfAR hosts an annual HIV Cure Summit which aims to hear from voices in the research community on breakthroughs as well as discuss discoveries that have motivated AIDS research such as the breakthrough with the Berlin patient who spurred the countdown in the first place 57 61 In November 2020 amfAR signed an agreement with CytoDyn Inc to explore the potential of its CCR 5 antagonist Vyrologix Leronlimab to mediate a functional HIV cure According to Kevin Robert Frost Chief Executive Officer at amfAR demonstrating that Leronlimab can functionally phenocopy CCR5 deficiency and replicate the London and Berlin patients would be a major advancement 62 Global initiatives edit TREAT Asia edit nbsp The Therapeutics Research Education and AIDS Training TREAT in Asia was founded in 2001 under the leadership of Mathilde Krim 63 The initiative aimed to create communication networks among Asian countries who are aiming to treat HIV using Thailand as a model and a central headquarters for the operation TREAT Asia is directed by Annette Sohn of the University of California San Francisco who is a principal investigator alongside Matthew Law of the Kirby Institute at the University of South Wales 64 The two lead a team of 18 scientists to perform research in the area on topics such as mental healthcare access of people with HIV AIDS in Asian countries 65 and the effect of new drugs on children with HIV 66 The TREAT Asia member countries are all partners of the US National Institutes of Health s International Epidemiological Databases to Evaluate AIDS IeDEA global cohort consortium 67 The countries include 54 Australia Cambodia China and Hong Kong SAR India Indonesia Japan Malaysia New Zealand Philippines Singapore South Korea Taiwan Thailand Vietnam There are over 60 research facilities mostly hospitals and healthcare providers in these countries that communicate with amfAR s headquarters in Thailand 54 The foundation has said that they service around 84 000 people of all ages who are affected with HIV and AIDS who otherwise were not aided before the program began 68 The GMT Initiative edit The GMT initiative is dedicated to providing HIV AIDS assistance to men who have sex with men MSM and transgender people which they term as the collective gay men and transgender GMT 69 Unlike TREAT Asia the GMT Initiative is truly global with recent work in regarding their mentoring model in Paraguay Thailand Tajikistan and Kenya and Ukraine 69 The GMT Initiative further aims to spur outreach to low income individuals by providing the amfAR HIV Scholars Program with the Center for LGBT Health Research at the University of Pittsburgh Scholarship recipients from 2015 include individuals from South Africa Pakistan and Belize 70 The GMT Initiative aims to provide mentorship training to MSM and transgender individuals in countries with low access to AIDS support It created a mentoring model that empowers GMT to connect with younger individuals with HIV AIDS in spite of a potential homophobic and stigmatized environment in the low and middle income countries that they service 71 Funding edit nbsp Liza Minnelli with Kenneth Cole at annual amfAR Gala in 2006 As a 501 c 3 amfAR files an annual 990 Form to the IRS which is publicly accessible The following information is garnered from their 2017 filing amfAR 2017 Revenue sources 18 Source Amount in USD Difference from previous year 2016 Contributions and Grants 50 842 378 7 967 828 Investment Income 1 434 528 325 634 Program Service Revenue 0 0 Total 52 276 906 8 435 626 Contributions and grants edit Contribution and Grants Breakdown 2017 Source Amount in USD Federated Campaigns 267 404 Membership Dues 0 Fundraising Events 33 063 451 Government Grants 11 546 419 All other gifts grants and misc contributions 135 714 Total 50 842 378 Worldwide amfAR Galas edit amfAR s largest source of revenue comes from its fundraising events 18 large portions of that money comes from one of its annual charity event held at the Hotel du Cap Eden Roc in Antibes France titled amfAR s Annual Cinema Against AIDS 72 The gala aims to raise money through auctioning items as well as selling a limited number of tickets 72 The idea originated with Taylor who knew the power of these international high profile events from her career as an actress Since the first amfAR gala the charity has raised over 210 million to support AIDS research causes 73 The most recent gala held in Cannes raised around 20 million 73 at its 2016 gala which is a marked decrease from the over 25 million it raised in the same 2016 and 2017 events 74 It was speculated that this decrease in funding was due to both the absence of its largest donor Harvey Weinstein as well as the scandal surrounding the ousting of Kenneth Cole 75 Celebrities frequently donate items to be auctioned off for the foundation and past donors have included Uma Thurman Karlie Kloss and Milla Jovovich among others 73 The 25th annual gala embraced the MeToo movement and was chaired by 25 prominent women on stage and screen namely Alessandra Ambrosio Poppy Delevigne Linda Evangelista Sylvia Fendi Aileen Getty Kate Hudson Scarlett Johansson Milla Jovovich Heidi Klum Daphna Krim daughter of Mathilde Krim Karolina Kurkova Sienna Miller Angela Missoni Mary Parent Katy Perry Natasha Poly Aishwarya Rai Vanessa Redgrave Joely Richardson Carine Roitfeld Caroline Scheufele Irina Shayk Lara Stone Donatella Versace and Michelle Yeoh 72 Past items auctioned have included numerous photographs by Andy Warhol Annie Leibovitz portrait sessions stays in fashion moguls and celebrity houses and 53 karat diamond jewelry 76 Heidi Klum notably donated her Bentley S3 convertible to garner one of the highest bids at 200 000 amfAR galas have been held in cities like New York City Milan Los Angeles Sao Paulo and Hong Kong 77 each garnering anywhere from 2 000 000 to 13 000 000 to support amfAR s research 75 Investment Income edit Investment Income Breakdown 2017 Source Amount in USD Dividends interest and other similar amounts 1 295 049 Income from investment of tax exempt bond proceeds 0 Net gain 139 479 Total 1 434 528 Though amFAR does not disclose individual donors of stocks they publish the figure of 1 295 049 on their 990 Form to represent the interest and amount they receive through donations of stock 78 Further fluctuations in losses through investment and payments of investment income are accounted through the Net Gain row indicating a net gain of 139 479 following external investments and payments Public health education and outreach editSyringe exchange programs editKrim s original view on needle exchange was largely affected by exposure through visits to foundational needle exchange programs On one visit Mathilde met a clearly pregnant woman coming to exchange syringes Mathilde was very upset After the woman left the exchange Mathilde spoke to the exchange worker That woman should be in treatment not exchanging syringes Yes the worker replied but the prenatal clinics do not accept drug addicts and the drug abuse treatment programs do not accept pregnant women Don C Des Jarlais Ph D After interactions like these Krim began work with the Outside In needle exchange program in Portland Oregon beginning in 1989 13 this program was a service program for youth who had run away Led by Kathy Oliver amfAR helped gain insurance support for the program and later compiled a report that showed the effectiveness of the study needle discard rates in Portland neighborhoods decreased as a result of the study 79 Krim later used amfAR s research funding apparatus to help David Purchase begin a needle and syringe exchange program in Tacoma Washington 13 He used the money granted to analyze Tacoma s syringe exchange programs Similarly to the results found in the Portland study Purchase found that hepatitis B C and HIV rates were much lower for users in Pierce County who exchanged their needles than those who did not The study also found low HIV rates among women who use the exchange for IUD injections 80 amfAR AIDS Handbook edit The first AIDS handbook was published in 1999 14 as an effort to give a comprehensive and concise description of HIV AIDS and methods of prevention This 496 page book was intended for the general public 81 as opposed to their HIV AIDS Treatment Directory intended for medical professionals 82 28 This book was used in a study 83 intended to see the effects of AIDS education on elementary education The study found statistically significant increases in AIDS comprehension in students who were educated using the amfAR AIDS Handbook The handbook stands as one of amfAR s attempts at public education for AIDS HIV related topics 84 Trans Pacific Partnership opposition edit In May 2015 amfAR released a report showing that increases in intellectual property rights of pharmaceutical countries would drive up the price of some drugs that are desperately needed in the developing world namely countries who rely on affordable antiretroviral drugs 85 The group says that would hamper the global fight against AIDS and other diseases at an unsustainable rate This report marked the first time that amfAR involved itself in economic policy that indirectly pertained to AIDS and its rally against Trade Related Aspects of Intellectual Property Rights TRIPS reached national attention as a provision of the TPP that was traditionally seen to be benign 86 Controversies editCole s chairmanship edit Kenneth Cole served as the amfAR chairman for 14 years and as a board member for a total of 30 years 87 In 2015 following years of controversy he stepped down and now has no involvement in the organization 88 89 Harvey Weinstein scandal edit At amfAR s 22nd annual benefit in Cannes France in May 2015 Harvey Weinstein made a deal with amfAR chairman Kenneth Cole Weinstein would auction off two items one being a sitting with a famous fashion photographer and the second being tickets to a Hollywood film awards event on the condition that 600 000 of the proceeds raised at the auction would be donated as a charitable gift to the American Repertory Theater The reason for this contingent was that the American Repertory Theater promised Weinstein a 1 25 million reimbursement and a 500 000 charitable donation to the play Finding Neverland which Weinstein was producing at the theater on the condition that third parties donate the same amount to the production 89 While the arrangement raised 309 669 for amfAR and was ruled legitimate and lawful by the law firm Gibson Dunn amp Cutcher investigations and public outrage ensued surrounding the charity s financial integrity A rift formed between Chairman Kenneth Cole and CEO Kevin Robert Frost as evidenced by an email from Frost in 2015 saying Nothing about this deal feels right to me and I believe we have not done due diligence to understand exactly what this money is being directed to or why amfAR is being used to facilitate these transfers 90 AmfAR s management initially refused citing their longstanding policy against doing so but Weinstein was persistent He had apparently donated 2 million to ART on the condition that if he could raise more money from others before June 1 2015 they would return the contribution Cole and Weinstein reportedly agreed that ART and amfAR would split any money from the lots up to 1 2 million evenly and all money above that amount would be exclusively amfAR s Except for a last second insert attributed to Cole noting that ART would get some of the money from one of the lots a fashion shoot with Mario Testino there was nothing else to indicate to bidders where their money was going Cole told Vanity Fair later that he had always felt bullied by Weinstein and the insert was a small act of resistance 90 Weinstein demanded amFAR repay him immediately instead of waiting for the money for the lots to come in In early 2016 the organization s board retained attorney Tom Ajamie to investigate the transaction who concluded that Weinstein s failure to disclose all relevant information had exposed amfAR to material risks to its reputation if the deal had turned out to be illegal The report divided the board with several members resigning over what they saw as Cole s failures After Weinstein found out that some of the people Ajamie talked to had shared information about his rumored history of sexual misconduct information that became public knowledge in September 2017 Weinstein demanded that board members who had read the report sign non disclosure agreements leading to more resignations 90 In April 2017 19 members of the Board of Trustees contacted the Attorney General to explain that Cole had proceeded with this deal in spite of the objections of the wider executive management team as confirmed by their spokesperson Steven Goldberg Following legal struggles surrounding the benefit to private investors of charitable donations Weinstein pushed amfAR to sign nondisclosure agreements that indicated no wrongdoing and no further probing As a result four members Mervyn Silverman Vincent Roberti Arlen Andelson and Jonathan Canno refused to sign and went to petition the Attorney General on the impropriety of Kenneth Cole In that time two other board members had resigned Cole s term limit proposal edit On November 13 NBC News obtained a letter signed by 60 gay rights community members calling for his resignation This letter was signed by Greg Louganis an Olympic diver Larry Kramer playwright and activist and amfAR contributor Peter Staley among others As a result of the scandal Kenneth Cole stepped down as chairman after a 14 year tenure 49 Cole initially couched his decision to step down along with four other board members 91 as the result of term limits being imposed by the amfAR Board of Trustees with his support 92 Later however the attorney general s charity bureau sent a letter to the board on February 2 which exposed a proposal by Cole which allowed him to maintain his role as chairman in spite of new term limits 92 The attorney general s office sent a second letter on February 6 that mandated the board update its term limits and end Cole s tenure The attorney general allowed him to stay as a non voting member for six months while his replacement is determined 92 With the calls for resignation by many on the Board of Trustees and a mandate from New York Attorney General Eric Schneiderman s office Cole announced his decision to step down at an amfAR gala on Wednesday February 7 2018 93 Sharon Stone s advocacy edit In 1995 actress Sharon Stone began to serve as a spokesperson for amfAR She said this resulted in a negative impact on her career causing Hollywood to blacklist her for eight years 1 See also editTimeline of HIV AIDS Luc Montagnier Recipient of Mathilde Krim Fellowship for Basic Biomedical Research ACT UP Denver Principles People With AIDS Management of HIV AIDSReferences edit Form 990 PDF amfAR Investors Relations Archived from the original PDF on 8 December 2014 Retrieved 6 December 2014 a b c d e f Board of Trustees amfAR Retrieved 29 May 2017 a b c 2016 Annual Report PDF amfAR Archived from the original PDF on 11 November 2018 Retrieved 10 November 2018 Syringe Exchange Saves Lives and Money Retrieved 2018 11 08 amfAR Around The World The Foundation for AIDS Research HIV AIDS Research www amfar org Archived from the original on 2018 11 10 Retrieved 2018 10 26 A Brief History of amfAR amfAR The Foundation for AIDS Research Retrieved 2023 12 14 Shilts Randy 1987 And The Band Played On London England St Martin s Press p 157 ISBN 978 0 312 00994 6 amfAR Contact Us The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 10 26 Merson Michael H O Malley Jeffrey Serwadda David Apisuk Chantawipa 2008 08 09 The history and challenge of HIV prevention The Lancet 372 9637 475 488 doi 10 1016 S0140 6736 08 60884 3 ISSN 0140 6736 PMID 18687461 S2CID 26554589 amfAR Allan Rosenfield M D HIV AIDS Public Policy Internship and Fellowship program Office of Career Strategy Yale University ocs yale edu Archived from the original on 2020 07 25 Retrieved 2018 10 26 amFAR Grants Tripled Fort Lauderdale The Campbell Foundation Funding AIDS HIV research Fort Lauderdale The Campbell Foundation Retrieved 2018 10 26 Mathilde Krim American medical researcher Encyclopedia Britannica Retrieved 2018 10 26 a b c d e Jarlais Don C Des 2006 07 13 Mathilde Krim amfAR and the Prevention of HIV Infection Among Injecting Drug Users A Brief History AIDS Patient Care and STDs 20 7 467 471 doi 10 1089 apc 2006 20 467 ISSN 1087 2914 PMID 16839243 a b Ward Darrell E Krim Mathilde 1999 The amfAR AIDS Handbook The Complete Guide to Understanding HIV and AIDS W W Norton amp Company ISBN 9780393316360 a b Zhou Jialun Dore Gregory J Zhang Fujie Lim Poh Lian Chen Yi Ming A 2007 08 15 Hepatitis B and C virus coinfection in The TREAT Asia HIV Observational Database Journal of Gastroenterology and Hepatology 22 9 1510 1518 doi 10 1111 j 1440 1746 2007 05062 x ISSN 0815 9319 PMID 17645479 S2CID 1201811 Funders Concerned about AIDS 2011 U S and European Philanthropic Support to Address HIV AIDS in 2011 PDF European HIV AIDS Funders Retrieved 5 November 2018 Massachusetts General Hospital Corporate amp Foundation Relations Office of Development 16 December 2016 PRIVATE FUNDING OPPORTUNITIES DEC 16 2016 PDF Massachusetts General Hospital Retrieved 7 November 2018 a b c Form 990 2016 PDF amfAR Investors Relations Archived from the original PDF on 10 November 2018 Retrieved 10 November 2018 a b c d amfAR amfAR Management Team The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 10 27 a b amfAR Scientific Advisory Committee The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 10 27 a b amfAR Program Advisory Council The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 10 27 Foundation for AIDS Research amfAR Charity Ratings America s Most Independent Charity Watchdog CharityWatch www charitywatch org Retrieved 2018 10 27 Charity Navigator Rating for amfAR Charity Navigator Retrieved 2018 10 27 The Formation of amfAR Elizabeth Taylor Retrieved 2024 01 03 Dame Elizabeth Taylor amfAR HIV AIDS Epidemic in America C SPAN Early Intervention in AIDS C SPAN a b AmFAR HIV AIDS treatment directory available AIDS Treatment News 362 8 2001 03 23 ISSN 1052 4207 PMID 11569958 amfAR HIV AIDS Treatment Directory Available TheBody com Retrieved 2018 10 27 Petricciani John C 1993 Global immunization against AIDS economic considerations Vaccine 11 8 873 877 doi 10 1016 0264 410x 93 90364 4 ISSN 0264 410X PMID 8356848 Ioannidis John P A Cappelleri Joseph C Sacks Henry S Lau Joseph 1997 10 01 The relationship between study design results and reporting of randomized clinical trials of HIV infection Controlled Clinical Trials 18 5 431 444 doi 10 1016 S0197 2456 97 00097 4 ISSN 0197 2456 PMID 9315426 H Mayer Kenneth 2009 HIV Prevention A Comprehensive Approach London England United Kingdom Elsevier pp 169 535 ISBN 978 0 12 374235 3 amfAR Dr Mathilde Krim The Foundation for AIDS Research HIV AIDS Research Amfar org Retrieved 21 September 2018 Jones T Stephen 1997 04 03 Book Review Preventing HIV Transmission The role of sterile needles and bleach Edited by Jacques Normand David Vlahov and Lincoln E Moses 334 pp Washington D C National Academy Press 1995 37 95 0 309 05296 3 New England Journal of Medicine 336 14 1035 1036 doi 10 1056 nejm199704033361425 ISSN 0028 4793 Zhou Jialun Kumarasamy N Ditangco Rossana Kamarulzaman Adeeba Lee Christopher K C Li Patrick C K Paton Nicholas I Phanuphak Praphan Pujari Sanjay February 2005 The TREAT Asia HIV Observational Database Journal of Acquired Immune Deficiency Syndromes 38 2 174 179 doi 10 1097 01 qai 0000145351 96815 d5 ISSN 1525 4135 PMC 3070962 PMID 15671802 Kaiser Charles 1997 The Gay Metropolis The Landmark History of Gay Life in America New York NY Houghton Mifflin ISBN 978 0802143174 McFadden Robert D 16 January 2018 Mathilde Krim Mobilizing Force in an AIDS Crusade Dies at 91 The New York Times Retrieved 2018 10 26 HIV in the United States Statistics Overview Statistics Center HIV AIDS CDC www cdc gov 2018 08 06 Retrieved 2018 10 27 Wilson Eric December 2005 From Kenneth Cole a New Solidarity The New York Times Retrieved 2018 10 27 Kenneth Cole Launches New Public Service Campaign on World AIDS Day Kaiser Health News 2005 12 02 Retrieved 2018 10 27 Berwick Donald 2002 01 26 We all have AIDS case for reducing the cost of HIV drugs to zero BMJ Clinical Research Ed 324 7331 214 216 doi 10 1136 bmj 324 7331 214 ISSN 0959 8138 PMC 1122133 PMID 11809645 Kariminia Azar Chokephaibulkit Kulkanya Pang Joselyn Lumbiganon Pagakrong Hansudewechakul Rawiwan Amin Janaki Kumarasamy Nagalingeswaran Puthanakit Thanyawee Kurniati Nia February 2011 Cohort Profile The TREAT Asia Pediatric HIV Observational Database International Journal of Epidemiology 40 1 15 24 doi 10 1093 ije dyp358 ISSN 0300 5771 PMC 3106968 PMID 20100820 Clark Hollie A Oraka Emeka DiNenno Elizabeth A Wesolowski Laura G Chavez Pollyanna R Pitasi Marc A Delaney Kevin P 2018 09 01 Men Who Have Sex with Men MSM Who Have Not Previously Tested for HIV Results from the MSM Testing Initiative United States 2012 2015 AIDS and Behavior 23 2 359 365 doi 10 1007 s10461 018 2266 3 ISSN 1573 3254 PMC 6986464 PMID 30173345 a b amfAR Mathilde Krim Fellowships in Basic Biomedical Research The Foundation for AIDS Research HIV AIDS Research www amfar org Archived from the original on 2018 11 10 Retrieved 2018 10 27 Jouvenet Nolwenn February 2009 Broad Spectrum Inhibition of Retroviral and Filoviral Particle Release by Tetherin Journal of Virology 83 4 4 1837 44 doi 10 1128 JVI 02211 08 PMC 2643743 PMID 19036818 via Elsevier Science Direct Bing E G Hays R D Jacobson L P Chen B Gange S J Kass N E Chmiel J S Zucconi S L 2000 Health related quality of life among people with HIV disease Results from the Multicenter AIDS Cohort Study Quality of Life Research 9 1 55 63 doi 10 1023 a 1008919227665 ISSN 0962 9343 PMID 10981206 S2CID 25546396 Pejchal Robert Gach Johannes S Brunel Florence M Cardoso Rosa M Stanfield Robyn L Dawson Philip E Burton Dennis R Zwick Michael B Wilson Ian A 2009 09 01 A Conformational Switch in Human Immunodeficiency Virus gp41 Revealed by the Structures of Overlapping Epitopes Recognized by Neutralizing Antibodies Journal of Virology 83 17 8451 8462 doi 10 1128 JVI 00685 09 ISSN 0022 538X PMC 2738203 PMID 19515770 Time Line quod lib umich edu Retrieved 2018 10 27 a b Kenneth Cole resigns as amfAR chairman following Harvey Weinstein controversy USA TODAY Retrieved 2018 10 27 a b Programs lobby la psu edu Archived from the original on 2010 07 28 Retrieved 2018 11 07 amfAR Rosenfield Fellowships The Foundation for AIDS Research HIV AIDS Research www amfar org Archived from the original on 2018 11 10 Retrieved 2018 11 07 a b amfAR Institute for HIV Cure Research AIDS Research Institute ari ucsf edu Retrieved 2018 11 07 Opinion An Opening in the War Against AIDS The New York Times 2 December 2015 Retrieved 2018 11 07 a b c d Asia Pacific IeDEA International epidemiology Databases to Evaluate AIDS www iedea org Retrieved 2018 11 07 amfAR TREAT Asia Network Sites The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 11 07 HIV and AIDS in Thailand AVERT 2015 07 21 Retrieved 2018 11 07 a b c Overview Countdown to a Cure for AIDS Retrieved 2018 11 07 Needle Chael Novel Cure Research Supported by amfAR A amp U Magazine aumag org Retrieved 2018 11 07 Research Projects amp Funding Treatment Action Group www treatmentactiongroup org Retrieved 2018 11 07 Scientists on the frontline of cure research AIDS Research Institute ari ucsf edu Retrieved 2018 11 07 Brown Timothy Ray 2015 01 01 I Am the Berlin Patient A Personal Reflection AIDS Research and Human Retroviruses 31 1 2 3 doi 10 1089 aid 2014 0224 ISSN 0889 2229 PMC 4287108 PMID 25328084 Inc CytoDyn 2020 11 23 CytoDyn Announces Partnership with amfAR to Accelerate HIV Cure Research GlobeNewswire News Room Retrieved 2020 11 24 a href Template Cite web html title Template Cite web cite web a last has generic name help amfAR Global Initiatives The Foundation for AIDS Research HIV AIDS Research www amfar org Archived from the original on 2018 11 10 Retrieved 2018 11 07 Hansudewechakul Rawiwan Sirisanthana Virat Kurniati Nia Puthanakit Thanyawee Lumbiganon Pagakrong Yusoff Nik Khairulddin Nik Fong Siew Moy Nallusamy Revathy Srasuebkul Preeyaporn 2010 12 01 Antiretroviral Therapy Outcomes of HIV infected children in the TREAT Asia Pediatric HIV Observational Database Journal of Acquired Immune Deficiency Syndromes 55 4 503 509 doi 10 1097 QAI 0b013e3181f5379a ISSN 1525 4135 PMC 2975064 PMID 20842043 Barriers to mental healthcare and treatment for people living with HIV in the Asia Pacific ResearchGate Retrieved 2018 11 07 Boettiger David G Law Matthew H Sohn Annette Davies Mary Ann Wools Kaloustian Kara Leroy Valeriane Yotebieng Marcel Vinikoor Michael Vreeman Rachel 2018 09 11 Temporal Trends in Co trimoxazole Use Among Children on Antiretroviral Therapy and the Impact of Co trimoxazole on Mortality Rates in Children Without Severe Immunodeficiency Journal of the Pediatric Infectious Diseases Society 8 5 450 460 doi 10 1093 jpids piy087 PMC 6831936 PMID 30215763 Sohn Annette 2015 WHO PDF World Health Organization Altman Lawrence K 7 July 2004 Companies in Asia Rush to Produce Anti H I V Drugs The New York Times Retrieved 2018 11 07 a b Scardi Paolo Azanza Ricardo Cristy L Perez Demydenko Camilo Coelho Alan A 2018 The amfAR GMT Initiative Mentoring Model Strengthening Organizational Capacity and Impact Through Local Expertise Journal of Applied Crystallography 51 6 doi 10 1107 s160057671801289x S2CID 105756269 Center for LGBT Health Research amfAR s GMT Initiative supports grassroots organizations that respond to the devastating impact of HIV AIDS pre lgbthlres pitt edu Retrieved 2018 11 07 Stall Ron Egan James Kinsky Suzanne Coulter Robert Friedman M Matthews Derrick Klindera Kent Cowing Michael 2016 04 01 Overview of the University of Pittsburgh amfAR Training Program in HIV Prevention Research for MSM and Male to Female Transgender Populations in Low and Middle Income Countries AIDS and Behavior 20 Suppl 3 426 436 doi 10 1007 s10461 016 1382 1 PMID 27037548 S2CID 28568080 a b c Dobson Jim Exclusive Extravagant Celebrity amfAR Gala Auction Items At The 2018 Cannes Film Festival Forbes Retrieved 2018 11 02 a b c Sabah 19 May 2018 Star Power Dims at Post Weinstein Cannes Aids Gala The Borneo Post Celebrities Raise More Than 25 Million at amfAR s Gala in Cannes The New York Times 20 May 2016 Retrieved 2018 11 02 a b Pomeroy Robin Cannes swankiest party goes ahead without driving force Weinstein U S Retrieved 2018 11 02 AmFar gala raises 25 million for AIDS research USA TODAY Retrieved 2018 11 02 amfAR Home The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 11 02 amfAR Gifts of Stock The Foundation for AIDS Research HIV AIDS Research www amfar org Retrieved 2018 11 07 Programs National Research Council US and Institute of Medicine US Panel on Needle Exchange and Bleach Distribution 1994 Behavioral and Community Impact of the Portland Syringe Exchange Program National Academies Press US Hagan H Jarlais D C Friedman S R Purchase D Alter M J November 1995 Reduced risk of hepatitis B and hepatitis C among injection drug users in the Tacoma syringe exchange program American Journal of Public Health 85 11 1531 1537 doi 10 2105 ajph 85 11 1531 ISSN 0090 0036 PMC 1615682 PMID 7485666 Noble Barnes amp The AmFAR AIDS Handbook The Complete Guide to Understanding HIV and AIDS Barnes amp Noble Retrieved 2018 10 28 The AmFAR AIDS Handbook W W Norton amp Company books wwnorton com Retrieved 2018 10 28 Chandarana Praful C Conlon Patrick Noh Samuel Field Victoria A 1990 The Impact of AIDS Education Among Elementary School Students Canadian Journal of Public Health 81 4 285 289 JSTOR 41989908 PMID 2207952 results search 1995 05 15 The AIDS Handbook Revised A Guide to the Prevention of AIDS and HIV 3rd ed Macmillan Education ISBN 9780333945766 Trans Pacific Partnership Curbing Access to Medicines Now and in the Future PDF American Foundation for AIDS Research May 2015 Archived from the original PDF on 17 May 2018 Retrieved 10 November 2018 A major AIDS research group says the TPP will make it harder to fight AIDS Vox Retrieved 2018 10 27 Laurence Jeffrey 2018 03 01 In Gratitude Personal Memories of the Late Dr Mathilde Krim July 9 1926 January 15 2018 AIDS Patient Care and STDs 32 3 81 83 doi 10 1089 apc 2018 29002 com ISSN 1087 2914 PMID 29436840 Making AIDS History Kenneth Cole Retrieved 2018 10 27 a b Twohey Megan Rashbaum William K 3 November 2017 Transactions Tied to Weinstein and AIDS Charity Are Under Investigation The New York Times Retrieved 2018 10 27 a b c Cohan William D December 20 2017 Nothing About This Deal Feels Right to Me Inside Harvey Weinstein s Other Nightmare Vanity Fair Retrieved February 4 2018 Ali Yashar 2017 10 18 How Harvey Weinstein And Kenneth Cole Covered Up A Shady Deal Huffington Post Retrieved 2018 10 27 a b c Kenneth Cole pushed out as amfAR chair in wake of Weinstein flap NBC News Retrieved 2018 10 27 Kenneth Cole steps down as amfAR chairman amid controversy NY Daily News nydailynews com Associated Press Retrieved 2018 10 27 External links editOfficial website Honoree List AmfAR Archived from the original on November 8 2023 Retrieved November 8 2023 Retrieved from https en wikipedia org w index php title AmfAR amp oldid 1217065747, wikipedia, wiki, book, books, library,

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