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List of biobanks

March 12, 2024

A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks.[citation needed]

Classification edit

Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entity (government, commercial enterprise, or private research institution), by their geographical location, or by what sorts of samples they collect.

Biobanks may be classified by purpose or design. Disease-oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases, perhaps to look for biomarkers affiliated with disease.[1] Population-based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people, perhaps to look for biomarkers for disease susceptibility in a general population.[2]

List of biobanks
Biobank Affiliation Focus Type Location Founding Notes
All of Us Population non-profit United States
Autism Genetic Resource Exchange Autism Speaks Autism non-profit North America and Asia
Avon Longitudinal Study of Parents and Children University of Bristol non-profit United Kingdom 1990 [3][4]
BioBank Graz Medical University of Graz non-profit Austria [5]
BioBank Japan RIKEN, University of Tokyo Population, personalized medicine non-profit Japan 2003 [6]
Canadian Biosample Repository University of Alberta non-profit Canada
CARTaGENE biobank Centre hospitalier universitaire Sainte-Justine non-profit Quebec 2009 [7][8]
Cooperative Human Tissue Network Cancer government USA 1987
Coriell Institute for Medical Research Genetic Disorders, rare diseases, Stem Cells non-profit United States 1953
DeCODE genetics commercial Iceland [9]
Estonian Genome Project University of Tartu non-profit Estonia 2000
EuroBioBank Rare diseases non-profit Europe
FINBB Population non-profit Finland [10]
FinnGen Population, disease focused public-private Finland 2017 [11]
Generation Scotland NHS Scotland government Scotland 1999 [12][13]
Genomics England Rare diseases, cancer public-private England 2013 [14]
HUNT Biobank Norwegian University of Science and Technology non-profit Norway 2002
Integrated Biobank of Luxembourg Luxembourg Institute of Health Cancer, immunology Luxembourg
Interdisziplinäre Biomaterial- und Datenbank Würzburg University of Würzburg & Universitätsklinikum Würzburg public agency Würzburg, Germany 2013 [15]
Kaiser Permanente Research Bank Kaiser Permanente Population United States 2016[16] [17]
Lifelines University of Groningen & University Medical Centre Groningen Healthy aging non-profit Groningen, The Netherlands 2006
Million Veterans Project United States Department of Veterans Affairs American veterans non-profit United States [18]
MyCode Geisinger Health System Electronic health records, personalized medicine commercial Pennsylvania, United States 2007 [19]
nPOD University of Florida, JDRF Diabetes non-profit United States 2007 [20]
PATH Biobank Breast cancer non-profit Germany 2002
Plasma Services Group Autoimmune, Infectious, Coagulation, Diagnostics[21] commercial United States 2017
Sapien Biosciences Apollo Hospitals & Saarum Innovations Population, with special focus on tailoring treatment for Cancer private India (headquartered in Hyderabad) 2012 [22]
Signature biobank [fr] Research centre of the Montreal Mental Health Institute Mental health non-profit Canada (Quebec) 2012 [23]
The Malaysian Cohort National University of Malaysia non-profit Malaysia 2003
Tohoku Medical Megabank Project Tohoku University, Iwate Medical University Population, Birth and Three-Generation non-profit Japan 2012 [24][25]
UK Biobank non-profit United Kingdom 2006 [26]
Biobank Sweden Health and Social Care Inspectorate Collaborative biobank infrastructure (nearly 250 biobanks) government Sweden 2017 [27][28]

References edit

  1. ^ Bevilacqua, G.; Bosman, F.; Dassesse, T.; Höfler, H.; Janin, A.; Langer, R.; Larsimont, D.; Morente, M. M.; Riegman, P.; Schirmacher, P.; Stanta, G.; Zatloukal, K.; Caboux, E.; Hainaut, P. (2010). "The role of the pathologist in tissue banking: European Consensus Expert Group Report". Virchows Archiv. 456 (4): 449–454. doi:10.1007/s00428-010-0887-7. PMC 2852521. PMID 20157825.
  2. ^ Riegman, P. H. J.; Morente, M. M.; Betsou, F.; De Blasio, P.; Geary, P.; Marble Arch International Working Group on Biobanking for Biomedical Research (2008). "Biobanking for better healthcare". Molecular Oncology. 2 (3): 213–222. doi:10.1016/j.molonc.2008.07.004. PMC 5527804. PMID 19383342.
  3. ^ Boyd, A.; Golding, J.; Macleod, J.; Lawlor, D. A.; Fraser, A.; Henderson, J.; Molloy, L.; Ness, A.; Ring, S.; Davey Smith, G. (16 April 2012). "Cohort Profile: The 'Children of the 90s'--the index offspring of the Avon Longitudinal Study of Parents and Children". International Journal of Epidemiology. 42 (1): 111–127. doi:10.1093/ije/dys064. PMC 3600618. PMID 22507743.
  4. ^ Levitt, Mairi (2011). "Relating to Participants: How Close Do Biobanks and Donors Really Want to Be?". Health Care Analysis. 19 (3): 220–230. doi:10.1007/s10728-011-0193-9. PMID 21915714. S2CID 13953737.
  5. ^ "About Biobank Graz". Retrieved 2021-03-16.
  6. ^ Nagai, Akiko; Hirata, Makoto; Kamatani, Yoichiro; Muto, Kaori; Matsuda, Koichi; Kiyohara, Yutaka; Ninomiya, Toshiharu; Tamakoshi, Akiko; Yamagata, Zentaro; Mushiroda, Taisei; Murakami, Yoshinori (March 2017). "Overview of the BioBank Japan Project: Study design and profile". Journal of Epidemiology. 27 (3): S2–S8. doi:10.1016/j.je.2016.12.005. PMC 5350590. PMID 28189464.
  7. ^ Awadalla, Philip; Catherine Boileau; Yves Payette; Youssef Idaghour; Jean-Philippe Goulet; Bartha Knoppers; Pavel Hamet; Claude Laberge (October 15, 2012). "Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics". International Journal of Epidemiology. 42 (5): 1285–99. doi:10.1093/ije/dys160. PMID 23071140.
  8. ^ "Cartagene". cartagene.qc.ca. Retrieved 3 April 2013.
  9. ^ . decode.com. deCODE genetics. Archived from the original on 2008-05-09. Retrieved 2008-05-04.
  10. ^ "FinBioBank". Retrieved 2019-11-23.
  11. ^ "FinnGen-tutkimushanke vie suomalaiset löytöretkelle genomitietoon | Drupal". finngen.fi. Retrieved 2019-11-23.
  12. ^ Smith BH, Campbell H, Blackwood D, et al. (2006). "Generation Scotland: the Scottish Family Health Study; a new resource for researching genes and heritability". BMC Medical Genetics. 7: 74. doi:10.1186/1471-2350-7-74. PMC 1592477. PMID 17014726.
  13. ^ Macleod AK, Liewald DC, McGilchrist MM, Morris AD, Kerr SM, Porteous DJ (February 2009). "Some principles and practices of genetic biobanking studies". The European Respiratory Journal. 33 (2): 419–25. doi:10.1183/09031936.00043508. PMID 19181915.
  14. ^ "Genomics England | 100,000 Genomes Project". Retrieved 2019-11-23.
  15. ^ "Interdisziplinäre Biomaterial- und Datenbank Würzburg". ukw.de. Retrieved 2022-10-13.
  16. ^ "Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery". Kaiser Permanente. 11 April 2018.
  17. ^ "Kaiser Permanente Research Bank". Kaiser Permanente. Retrieved 8 November 2018.
  18. ^ Gaziano, John Michael; Concato, John; Brophy, Mary; Fiore, Louis; Pyarajan, Saiju; Breeling, James; Whitbourne, Stacey; Deen, Jennifer; Shannon, Colleen; Humphries, Donald; Guarino, Peter (February 2016). "Million Veteran Program: A mega-biobank to study genetic influences on health and disease". Journal of Clinical Epidemiology. 70: 214–223. doi:10.1016/j.jclinepi.2015.09.016. PMID 26441289.
  19. ^ Carey, David J.; Fetterolf, Samantha N.; Davis, F. Daniel; Faucett, William A.; Kirchner, H. Lester; Mirshahi, Uyenlinh; Murray, Michael F.; Smelser, Diane T.; Gerhard, Glenn S.; Ledbetter, David H. (2016). "The Geisinger MyCode community health initiative: an electronic health record–linked biobank for precision medicine research". Genetics in Medicine. Elsevier BV. 18 (9): 906–913. doi:10.1038/gim.2015.187. ISSN 1098-3600. PMC 4981567. PMID 26866580.
  20. ^ "JDRF nPOD | Network for Pancreatic Organ Donors with Diabetes". jdrfnpod.org. Retrieved 2016-09-22.
  21. ^ "Plasma Services Group - The Difference is in The Data". Plasma Services Group. Retrieved 2020-12-11.
  22. ^ "Sapien Biosciences | Asia's first biobank led CDx & phenotypic drug discovery company". Retrieved 2020-11-19.
  23. ^ "Banque Signature | Accès aux données et aux biospécimens". Banque Signature (in French). Retrieved 2023-03-27.
  24. ^ "ToMMo ｜ Tohoku Medical Megabank Organization". ToMMo ｜ Tohoku Medical Megabank Organization (in Japanese). 2015-02-10. Retrieved 2021-12-27.
  25. ^ "IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION". IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION (in Japanese). Retrieved 2022-01-05.
  26. ^ "UK Biobank". Retrieved 2019-11-23.
  27. ^ "Guide to Biobanks in Sweden" (PDF). biobanksverige.se. Retrieved 2023-03-03.
  28. ^ "About Biobank Sweden". biobanksverige.se. Retrieved 2023-03-03.

External links edit

  • List of biobanks

March 12, 2024
list, biobanks, biobank, physical, place, which, stores, biological, specimens, some, cases, participant, data, also, collected, stored, access, policies, details, vary, across, biobanks, generally, involve, obtaining, ethics, approval, from, institutional, re. A biobank is a physical place which stores biological specimens In some cases participant data is also collected and stored Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards IRB and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken The samples and data are safeguarded so that researchers can use them in experiments deemed adequate This article contains a list of biobanks citation needed Contents 1 Classification 2 References 3 External linksClassification editBiobanks can be classified in several ways Some examples of how they can be classified is by their controlling entity government commercial enterprise or private research institution by their geographical location or by what sorts of samples they collect Biobanks may be classified by purpose or design Disease oriented biobanks usually have a hospital affiliation through which they collect samples representing a variety of diseases perhaps to look for biomarkers affiliated with disease 1 Population based biobanks need no particular hospital affiliation because they sample from large numbers of all kinds of people perhaps to look for biomarkers for disease susceptibility in a general population 2 List of biobanksBiobank Affiliation Focus Type Location Founding NotesAll of Us Population non profit United StatesAutism Genetic Resource Exchange Autism Speaks Autism non profit North America and AsiaAvon Longitudinal Study of Parents and Children University of Bristol non profit United Kingdom 1990 3 4 BioBank Graz Medical University of Graz non profit Austria 5 BioBank Japan RIKEN University of Tokyo Population personalized medicine non profit Japan 2003 6 Canadian Biosample Repository University of Alberta non profit CanadaCARTaGENE biobank Centre hospitalier universitaire Sainte Justine non profit Quebec 2009 7 8 Cooperative Human Tissue Network Cancer government USA 1987Coriell Institute for Medical Research Genetic Disorders rare diseases Stem Cells non profit United States 1953DeCODE genetics commercial Iceland 9 Estonian Genome Project University of Tartu non profit Estonia 2000EuroBioBank Rare diseases non profit EuropeFINBB Population non profit Finland 10 FinnGen Population disease focused public private Finland 2017 11 Generation Scotland NHS Scotland government Scotland 1999 12 13 Genomics England Rare diseases cancer public private England 2013 14 HUNT Biobank Norwegian University of Science and Technology non profit Norway 2002Integrated Biobank of Luxembourg Luxembourg Institute of Health Cancer immunology LuxembourgInterdisziplinare Biomaterial und Datenbank Wurzburg University of Wurzburg amp Universitatsklinikum Wurzburg public agency Wurzburg Germany 2013 15 Kaiser Permanente Research Bank Kaiser Permanente Population United States 2016 16 17 Lifelines University of Groningen amp University Medical Centre Groningen Healthy aging non profit Groningen The Netherlands 2006Million Veterans Project United States Department of Veterans Affairs American veterans non profit United States 18 MyCode Geisinger Health System Electronic health records personalized medicine commercial Pennsylvania United States 2007 19 nPOD University of Florida JDRF Diabetes non profit United States 2007 20 PATH Biobank Breast cancer non profit Germany 2002Plasma Services Group Autoimmune Infectious Coagulation Diagnostics 21 commercial United States 2017Sapien Biosciences Apollo Hospitals amp Saarum Innovations Population with special focus on tailoring treatment for Cancer private India headquartered in Hyderabad 2012 22 Signature biobank fr Research centre of the Montreal Mental Health Institute Mental health non profit Canada Quebec 2012 23 The Malaysian Cohort National University of Malaysia non profit Malaysia 2003Tohoku Medical Megabank Project Tohoku University Iwate Medical University Population Birth and Three Generation non profit Japan 2012 24 25 UK Biobank non profit United Kingdom 2006 26 Biobank Sweden Health and Social Care Inspectorate Collaborative biobank infrastructure nearly 250 biobanks government Sweden 2017 27 28 References edit Bevilacqua G Bosman F Dassesse T Hofler H Janin A Langer R Larsimont D Morente M M Riegman P Schirmacher P Stanta G Zatloukal K Caboux E Hainaut P 2010 The role of the pathologist in tissue banking European Consensus Expert Group Report Virchows Archiv 456 4 449 454 doi 10 1007 s00428 010 0887 7 PMC 2852521 PMID 20157825 Riegman P H J Morente M M Betsou F De Blasio P Geary P Marble Arch International Working Group on Biobanking for Biomedical Research 2008 Biobanking for better healthcare Molecular Oncology 2 3 213 222 doi 10 1016 j molonc 2008 07 004 PMC 5527804 PMID 19383342 Boyd A Golding J Macleod J Lawlor D A Fraser A Henderson J Molloy L Ness A Ring S Davey Smith G 16 April 2012 Cohort Profile The Children of the 90s the index offspring of the Avon Longitudinal Study of Parents and Children International Journal of Epidemiology 42 1 111 127 doi 10 1093 ije dys064 PMC 3600618 PMID 22507743 Levitt Mairi 2011 Relating to Participants How Close Do Biobanks and Donors Really Want to Be Health Care Analysis 19 3 220 230 doi 10 1007 s10728 011 0193 9 PMID 21915714 S2CID 13953737 About Biobank Graz Retrieved 2021 03 16 Nagai Akiko Hirata Makoto Kamatani Yoichiro Muto Kaori Matsuda Koichi Kiyohara Yutaka Ninomiya Toshiharu Tamakoshi Akiko Yamagata Zentaro Mushiroda Taisei Murakami Yoshinori March 2017 Overview of the BioBank Japan Project Study design and profile Journal of Epidemiology 27 3 S2 S8 doi 10 1016 j je 2016 12 005 PMC 5350590 PMID 28189464 Awadalla Philip Catherine Boileau Yves Payette Youssef Idaghour Jean Philippe Goulet Bartha Knoppers Pavel Hamet Claude Laberge October 15 2012 Cohort profile of the CARTaGENE study Quebec s population based biobank for public health and personalized genomics International Journal of Epidemiology 42 5 1285 99 doi 10 1093 ije dys160 PMID 23071140 Cartagene cartagene qc ca Retrieved 3 April 2013 From Genes to Drugs decode com deCODE genetics Archived from the original on 2008 05 09 Retrieved 2008 05 04 FinBioBank Retrieved 2019 11 23 FinnGen tutkimushanke vie suomalaiset loytoretkelle genomitietoon Drupal finngen fi Retrieved 2019 11 23 Smith BH Campbell H Blackwood D et al 2006 Generation Scotland the Scottish Family Health Study a new resource for researching genes and heritability BMC Medical Genetics 7 74 doi 10 1186 1471 2350 7 74 PMC 1592477 PMID 17014726 Macleod AK Liewald DC McGilchrist MM Morris AD Kerr SM Porteous DJ February 2009 Some principles and practices of genetic biobanking studies The European Respiratory Journal 33 2 419 25 doi 10 1183 09031936 00043508 PMID 19181915 Genomics England 100 000 Genomes Project Retrieved 2019 11 23 Interdisziplinare Biomaterial und Datenbank Wurzburg ukw de Retrieved 2022 10 13 Kaiser Permanente Research Bank Collects Genetic and Environmental Data to Improve Health and Care Delivery Kaiser Permanente 11 April 2018 Kaiser Permanente Research Bank Kaiser Permanente Retrieved 8 November 2018 Gaziano John Michael Concato John Brophy Mary Fiore Louis Pyarajan Saiju Breeling James Whitbourne Stacey Deen Jennifer Shannon Colleen Humphries Donald Guarino Peter February 2016 Million Veteran Program A mega biobank to study genetic influences on health and disease Journal of Clinical Epidemiology 70 214 223 doi 10 1016 j jclinepi 2015 09 016 PMID 26441289 Carey David J Fetterolf Samantha N Davis F Daniel Faucett William A Kirchner H Lester Mirshahi Uyenlinh Murray Michael F Smelser Diane T Gerhard Glenn S Ledbetter David H 2016 The Geisinger MyCode community health initiative an electronic health record linked biobank for precision medicine research Genetics in Medicine Elsevier BV 18 9 906 913 doi 10 1038 gim 2015 187 ISSN 1098 3600 PMC 4981567 PMID 26866580 JDRF nPOD Network for Pancreatic Organ Donors with Diabetes jdrfnpod org Retrieved 2016 09 22 Plasma Services Group The Difference is in The Data Plasma Services Group Retrieved 2020 12 11 Sapien Biosciences Asia s first biobank led CDx amp phenotypic drug discovery company Retrieved 2020 11 19 Banque Signature Acces aux donnees et aux biospecimens Banque Signature in French Retrieved 2023 03 27 ToMMo Tohoku Medical Megabank Organization ToMMo Tohoku Medical Megabank Organization in Japanese 2015 02 10 Retrieved 2021 12 27 IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION IWATE TOHOKU MEDICAL MEGABANK ORGANIZATION in Japanese Retrieved 2022 01 05 UK Biobank Retrieved 2019 11 23 Guide to Biobanks in Sweden PDF biobanksverige se Retrieved 2023 03 03 About Biobank Sweden biobanksverige se Retrieved 2023 03 03 External links editList of biobanks Retrieved from https en wikipedia org w index php title List of biobanks amp oldid 1188631012, wikipedia, wiki, book, books, library,

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