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Human Genome Organisation

January 10, 2023

The Human Genome Organisation (HUGO) is a non-profit organization founded in 1988. HUGO represents an international coordinating scientific body in response to initiatives such as the Human Genome Project. HUGO has four active committees, including the HUGO Gene Nomenclature Committee (HGNC), and the HUGO Committee on Ethics, Law and Society (CELS).[1]

Human Genome Organisation
AbbreviationHUGO
Formation1989
TypeINGO
Region served
Worldwide
Official language
English, French
WebsiteHUGO Official website

History

HUGO was established at the first meeting on genome mapping and sequencing at Cold Spring Harbor in 1988. The idea of starting the organization stemmed from South African biologist Sydney Brenner,[2] who is best known for his significant contributions to work on the genetic code and other areas of molecular biology, as well as winning the 2002 Nobel Prize in Physiology or Medicine.[3]

A Founding Council was elected at the meeting with a total of 42 scientists from 17 different countries, with Victor A. McKusick serving as founding President.[2] In 2016, HUGO was located at the EWHA Womans University in Seoul, South Korea.[4] In 2020, the HUGO headquarters moved to Farmington, Connecticut, USA.

HUGO has convened a Human Genome Meeting (HGM) every year since 1996.[5]

In partnership with geneticist Yuan-Tsong Chen and Alice Der-Shan Chen, founders of the Chen Foundation, HUGO presents the Chen Award to those with research accomplishments in human genetics and genomics in Asia Pacific.[6]

In 2020, HUGO merged with the Human Genomic Variation Society (HGVS) and Human Variome Project (HVP).

Presidents

Charles Lee (South Korea, USA) – 2017 – Present

Stylianos Antonarakis (Switzerland) – 2012 to 2017

Edison Liu (Singapore) – 2007 to 2012

Leena Peltonen (Finland) – 2005 to 2007

Yoshiyuki Sakaki (Japan) – 2002 to 2005

Lap‐Chee Tsui (Canada) – 2000 to 2002

Gert‐Jan van Ommen (Netherlands) – 1998 to 1999

Grant Sutherland (Australia) -1996 to 1997

Thomas Caskey (USA) – 1993 to 1995

Walter Bodmer (UK) – 1991 to 1993

Victor McKusick (USA), Founding President – 1988 to 1991

HUGO Committee on Ethics, Law and Society

HUGO's Committee on Ethics, Law and Society (CELS) is an interdisciplinary academic working group that is a uniquely positioned to analyse bioethical matters in genomics at a conceptual level and with an international perspective. To this end, CELS mission is to explore and inform professional discourse on the ethical aspects of genetics and genomics, normally though scholarly engagement, thought-provoking papers, and policy guiding statements.[citation needed]

The first meeting of the HUGO Ethics Committee took place in Amsterdam in October 1992, chaired by Nancy Wexler (Columbia University). In 2010, under the leadership of then HUGO president Edison Liu (The Jackson Laboratory) and a new chair Ruth Chadwick (Cardiff University), the committee became the HUGO Committee on Ethics, Law and Society (CELS). Benjamin Capps was nominated to be the present chair at the HUGO Human Genome Meeting, held in Barcelona in 2017.[citation needed]

Chairs

2017–present: Benjamin Capps (UK, Canada)

2010-2017: Ruth Chadwick (UK)

1996-2008: Bartha Knoppers (Canada)

1992-1996: Nancy Wexler (USA)

Statements

The Human Genome Organisation (HUGO) and the 2020 COVID-19 pandemic (Human Genomics 15:12), 2021

Statement on Bioinformatics and Capturing the Benefits of Genome Sequencing for Society, 2019

Statement on Supreme Court: Genes are not patentable, June 2013

Statement on Stem Cells, November 2004

Statement on the scope of gene patents, research exemption, and licensing of patented gene sequences for diagnostics, 2003

Statement on Human Genomic Databases, December 2002

Statement in Gene Therapy Research, April 2001

Statement on Benefit Sharing, April 2000

Statement on Cloning, March 1999

Statement on DNA Sampling: Control and Access, February 1998

Statement on the Principled Conduct of Genetics Research, December 1995

See also

References

  1. ^ "Human Genome Organisation (HUGO) International Ltd. - HUGO Committee on Ethics, Law and Society". www.hugo-international.org. Retrieved 4 September 2020.
  2. ^ a b Mckusick, V (August 1989). "The human genome organisation: History, purposes, and membership". Genomics. 5 (2): 385–387. doi:10.1016/0888-7543(89)90077-3. PMID 2676842.
  3. ^ Friedberg, Errol (2019). "Sydney Brenner (1927-2019) Mischievous steward of molecular biology's golden age". Nature. 568 (7753): 459. doi:10.1038/d41586-019-01192-9. ISSN 0028-0836. PMID 30988427.
  4. ^ Peterson, Joyce. "JAX Genomic Medicine Scientific Director Charles Lee named president of international Human Genome Organization (HUGO)". The Jackson Laboratory. Retrieved 4 September 2020.
  5. ^ "Human Genome Organisation (HUGO) International Ltd. - Human Genome Meeting". www.hugo-international.org. Retrieved 4 September 2020.
  6. ^ "Chen Award". Human Genome Organisation. Retrieved 2 March 2020.

External links

  • HUGO homepage
  • HGNC homepage
  • CELS homepage

January 10, 2023
human, genome, organisation, hugo, profit, organization, founded, 1988, hugo, represents, international, coordinating, scientific, body, response, initiatives, such, human, genome, project, hugo, four, active, committees, including, hugo, gene, nomenclature, c. The Human Genome Organisation HUGO is a non profit organization founded in 1988 HUGO represents an international coordinating scientific body in response to initiatives such as the Human Genome Project HUGO has four active committees including the HUGO Gene Nomenclature Committee HGNC and the HUGO Committee on Ethics Law and Society CELS 1 Human Genome OrganisationAbbreviationHUGOFormation1989TypeINGORegion servedWorldwideOfficial languageEnglish FrenchWebsiteHUGO Official website Contents 1 History 1 1 Presidents 2 HUGO Committee on Ethics Law and Society 2 1 Chairs 2 2 Statements 3 See also 4 References 5 External linksHistory EditHUGO was established at the first meeting on genome mapping and sequencing at Cold Spring Harbor in 1988 The idea of starting the organization stemmed from South African biologist Sydney Brenner 2 who is best known for his significant contributions to work on the genetic code and other areas of molecular biology as well as winning the 2002 Nobel Prize in Physiology or Medicine 3 A Founding Council was elected at the meeting with a total of 42 scientists from 17 different countries with Victor A McKusick serving as founding President 2 In 2016 HUGO was located at the EWHA Womans University in Seoul South Korea 4 In 2020 the HUGO headquarters moved to Farmington Connecticut USA HUGO has convened a Human Genome Meeting HGM every year since 1996 5 In partnership with geneticist Yuan Tsong Chen and Alice Der Shan Chen founders of the Chen Foundation HUGO presents the Chen Award to those with research accomplishments in human genetics and genomics in Asia Pacific 6 In 2020 HUGO merged with the Human Genomic Variation Society HGVS and Human Variome Project HVP Presidents Edit Charles Lee South Korea USA 2017 PresentStylianos Antonarakis Switzerland 2012 to 2017Edison Liu Singapore 2007 to 2012Leena Peltonen Finland 2005 to 2007Yoshiyuki Sakaki Japan 2002 to 2005Lap Chee Tsui Canada 2000 to 2002Gert Jan van Ommen Netherlands 1998 to 1999Grant Sutherland Australia 1996 to 1997Thomas Caskey USA 1993 to 1995Walter Bodmer UK 1991 to 1993Victor McKusick USA Founding President 1988 to 1991HUGO Committee on Ethics Law and Society EditHUGO s Committee on Ethics Law and Society CELS is an interdisciplinary academic working group that is a uniquely positioned to analyse bioethical matters in genomics at a conceptual level and with an international perspective To this end CELS mission is to explore and inform professional discourse on the ethical aspects of genetics and genomics normally though scholarly engagement thought provoking papers and policy guiding statements citation needed The first meeting of the HUGO Ethics Committee took place in Amsterdam in October 1992 chaired by Nancy Wexler Columbia University In 2010 under the leadership of then HUGO president Edison Liu The Jackson Laboratory and a new chair Ruth Chadwick Cardiff University the committee became the HUGO Committee on Ethics Law and Society CELS Benjamin Capps was nominated to be the present chair at the HUGO Human Genome Meeting held in Barcelona in 2017 citation needed Chairs Edit 2017 present Benjamin Capps UK Canada 2010 2017 Ruth Chadwick UK 1996 2008 Bartha Knoppers Canada 1992 1996 Nancy Wexler USA Statements Edit The Human Genome Organisation HUGO and the 2020 COVID 19 pandemic Human Genomics 15 12 2021Statement on Bioinformatics and Capturing the Benefits of Genome Sequencing for Society 2019Statement on Supreme Court Genes are not patentable June 2013Statement on Stem Cells November 2004Statement on the scope of gene patents research exemption and licensing of patented gene sequences for diagnostics 2003Statement on Human Genomic Databases December 2002Statement in Gene Therapy Research April 2001Statement on Benefit Sharing April 2000Statement on Cloning March 1999Statement on DNA Sampling Control and Access February 1998Statement on the Principled Conduct of Genetics Research December 1995See also EditHUGO Gene Nomenclature Committee Victor A McKusick Ira Carmen List of genetics research organizations International Mammalian Genome SocietyReferences Edit Human Genome Organisation HUGO International Ltd HUGO Committee on Ethics Law and Society www hugo international org Retrieved 4 September 2020 a b Mckusick V August 1989 The human genome organisation History purposes and membership Genomics 5 2 385 387 doi 10 1016 0888 7543 89 90077 3 PMID 2676842 Friedberg Errol 2019 Sydney Brenner 1927 2019 Mischievous steward of molecular biology s golden age Nature 568 7753 459 doi 10 1038 d41586 019 01192 9 ISSN 0028 0836 PMID 30988427 Peterson Joyce JAX Genomic Medicine Scientific Director Charles Lee named president of international Human Genome Organization HUGO The Jackson Laboratory Retrieved 4 September 2020 Human Genome Organisation HUGO International Ltd Human Genome Meeting www hugo international org Retrieved 4 September 2020 Chen Award Human Genome Organisation Retrieved 2 March 2020 External links EditHUGO homepage HGNC homepage CELS homepage Retrieved from https en wikipedia org w index php title Human Genome Organisation amp oldid 1116891078, wikipedia, wiki, book, books, library,

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