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Wikipedia

Disability rights movement

The disability rights movement is a global[1][2][3] social movement that seeks to secure equal opportunities and equal rights for all people with disabilities.

It is made up of organizations of disability activists, also known as disability advocates, around the world working together with similar goals and demands, such as: accessibility and safety in architecture, transportation, and the physical environment; equal opportunities in independent living, employment equity, education, and housing; and freedom from discrimination, abuse, neglect, and from other rights violations.[4] Disability activists are working to break institutional, physical, and societal barriers that prevent people with disabilities from living their lives like other citizens.[4][5]

Disability rights is complex because there are multiple ways in which a person with a disability can have their rights violated in different socio-political, cultural, and legal contexts. For example, a common barrier that individuals with disabilities face deals with employment. Specifically, employers are often unwilling or unable to provide the necessary accommodations to enable individuals with disabilities to effectively carry out their job functions.[6]

History

United States

American disability rights have evolved significantly over the past century. Before the disability rights movement, President Franklin D. Roosevelt's refusal to be publicized in a position of vulnerability demonstrated and symbolized the existing stigma surrounding disabilities.[7] While campaigning, giving speeches, or acting as a public figure, he hid his disability. This perpetuated the ideology that "disability equates to weakness".[8]

Disability in the United States was viewed as a personal issue, and not many political or governmental organizations existed to support individuals in these groups. In the 1950s, there was a transition to volunteerism and parent-oriented organizations, such as the March of Dimes.[9] While this was the beginning of activism and seeking support for these groups, children with disabilities were largely hidden by their parents out of fear of forced rehabilitation.[8] When the civil rights movement took off in the 1960s, disability advocates joined it and the women's rights movements in order to promote equal treatment and challenge stereotypes. It was at this time that disability rights advocacy began to have a cross-disability focus. People with different kinds of disabilities (physical and mental disabilities, along with visual and hearing disabilities) and different essential needs came together to fight for a common cause.

It was not until 1990 that the Americans with Disabilities Act (ADA) was passed, legally prohibiting discrimination on account of disability, and mandating disability access in all buildings and public areas. The ADA is historically significant in that it defined the meaning of reasonable accommodation in order to protect employees and employers.[10] Today, disability rights advocates continue protecting those who are discriminated against, including work towards issues like law enforcement and treatment of people with disabilities.

United Nations

On a global scale, the United Nations has established the Convention on the Rights of Persons with Disabilities,[11] specifically discussing indigenous people with disabilities (Lockwood 146).[full citation needed]

Disability barriers

Alternative access to the subway in Japan
 
Floor marker for visually impaired people in Narita Airport, Japan

The social model of disability suggests disability is caused by the way society is organized, rather than by a person's impairment. This model suggests barriers in society are created by ableism. When barriers are removed, people with disabilities can be independent and equal in society.

There are three main types of barriers:[12]

  1. Attitudinal barriers: are created by people who see only disability when associating with people with disabilities in some way. These attitudinal barriers can be witnessed through bullying, discrimination, and fear. These barriers include low expectations of people with disabilities. These barriers contribute to all other barriers.[12][13][14] Attitudes towards people with disabilities in low and middle-income countries can be even more extreme.[15]
  2. Environmental barriers: inaccessible environments, natural or built, create disability by creating barriers to inclusion.
  3. Institutional barriers: include many laws, policies, practices, or strategies that discriminate against people with disabilities. For example, a study of five Southeast Asian countries found that electoral laws do not specially protect the political rights of persons with disabilities, while "some banks do not allow visually disabled people to open accounts, and HIV testing centers often refuse to accept sign language interpreters due to confidentiality policies".[16] Restrictive laws exist in some countries, particularly affecting people with intellectual or psychosocial disabilities.[17]

Other barriers include: internalised barriers (low expectations of people with disabilities can undermine their confidence and aspirations), inadequate data and statistics, lack of participation and consultation of disabled people.

Issues

People with physical disabilities

Access to public areas such as city streets, public buildings, and restrooms are some of the more visible changes brought about in recent decades to remove physical barriers. A noticeable change in some parts of the world is the installation of elevators, automatic doors, wide doors and corridors, transit lifts, wheelchair ramps, curb cuts, and the elimination of unnecessary steps where ramps and elevators are not available, allowing people in wheelchairs and with other mobility disabilities to use public sidewalks and public transit more easily and safely.

People with visual disabilities

 
Code signs for people with color vision deficiency

People with color vision deficiency regularly deal with implicit discrimination due to their inability to distinguish certain colors. A system of geometrically shaped code signs known as Coloradd was developed by Professor Miguel Neiva of the University of Minho, Portugal, in 2010 to indicate colours to people who have difficulty discerning them.[18]

People with intellectual and developmental disabilities

People with intellectual and developmental disabilities focus their efforts on ensuring that they have the same human rights as other people and that they are treated like human beings. Since the formation of the self advocacy movement in the 1960s, the largest focus of the movement has been to get people with I/DD out of institutions and into the community.[19] Another main focus is ensuring that people with intellectual and developmental disabilities are in integrated workplaces that pay at least minimum wage. In the US, it is still legal to pay people with I/DD below minimum wage in sheltered workshops.[20] Many people with intellectual and developmental disabilities are put under guardianship and are not allowed to make their own decisions about their lives.[21]

Another issue is the continued dehumanization of people with intellectual and developmental disabilities, which prompted the slogan People First, still used as a rallying cry and a common organizational name in the self advocacy movement.[22] Self advocates are also involved in the "R-Word" Campaign, in which they try to eliminate the use of the word "retard".[23] Self advocates successfully advocated to change the name of the Arc.

Autism rights movement

The autism rights movement is a social movement that emphasizes the concept of neurodiversity, viewing the autism spectrum as a result of natural variations in the human brain rather than a disorder to be cured.[24] The autism rights movement advocates for several goals, including greater acceptance of autistic behaviors; therapies that focus on coping skills rather than imitating the behaviors of neurotypical peers;[25] the creation of social networks and events that allow autistic people to socialize on their own terms;[26] and the recognition of the autistic community as a minority group.[25][27]

Autism rights or neurodiversity advocates believe that the autism spectrum is primarily genetic and should be accepted as a natural expression of the human genome. This perspective is distinct from two other views: the medical perspective, that autism is caused by a genetic defect and should be addressed by targeting the autism gene(s), and fringe theories that autism is caused by environmental factors such as vaccines.[24]

The movement is controversial. A common criticism against autistic activists is that the majority of them are "high-functioning" or have Asperger syndrome and do not represent the views of "low-functioning" autistic people.[27]

People with mental health issues

Advocates for the rights of people with mental health disabilities focus mainly on self-determination, and an individual's ability to live independently.[28]

The right to have an independent life, using paid assistant care instead of being institutionalized, if the individual wishes, is a major goal of the disability rights movement, and is the main goal of the similar independent living and self-advocacy movements, which are most strongly associated with people with intellectual disabilities and mental health disorders. These movements have supported people with disabilities to live as more active participants in society.[29]

Access to education and employment

Access to education and employment have also been a major focus of the disability rights movement. Adaptive technologies, enabling people to work jobs they could not have previously, help create access to jobs and economic independence. Access in the classroom has helped improve education opportunities and independence for people with disabilities.

Freedom from discrimination and abuse

Freedom from abuse, neglect, and violations of a person's rights are also important goals of the disability rights movement. Abuse and neglect includes inappropriate seclusion and restraint, inappropriate use of force by staff and/or providers, threats, harassment and/or retaliation by staff or providers, failure to provide adequate nutrition, clothing, and/or medical and mental health care, and/or failure to provide a clean and safe living environment, as well as other issues which pose a serious threat to the physical and psychological well-being of a person with a disability. Violations of patients' rights include failure to obtain informed consent for treatment, failure to maintain the confidentiality of treatment records, and inappropriate restriction of the right to communicate and associate with others, as well as other restrictions of rights.

As a result of the work done through the disability rights movement, significant disability rights legislation was passed in the 1970s through the 1990s in the U.S.[30]

Major events

Canada

Canada's largest province, Ontario, created legislation, Accessibility for Ontarians with Disabilities Act, 2005, with the goals of becoming accessible by 2025.

In 2019, the Accessible Canada Act became law. This is the first national Canadian legislation on accessibility that affects all government departments and federally regulated agencies.

India

The Rights of Persons with Disabilities Act, 2016 is the disability legislation passed by the Indian Parliament to fulfill its obligation to the United Nations Convention on the Rights of Persons with Disabilities, which India ratified in 2007. The Act replaced the existing Persons With Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995. It came into effect on 28 December 2016. This law recognizes 21 disabilities.

United Kingdom

 
Disability rights activist outside Scottish Parliament, 30 March 2013

In the United Kingdom, following extensive activism by people with disabilities over several decades, the Disability Discrimination Act 1995 (DDA 1995) was passed. This made it unlawful in the United Kingdom to discriminate against people with disabilities in relation to employment, the provision of goods and services, education and transport. The Equality and Human Rights Commission provides support for this Act. Equivalent legislation exists in Northern Ireland, which is enforced by the Northern Ireland Equality Commission.

Following the introduction of the Bedroom Tax (officially the Under-occupancy penalty) in the Welfare Reform Act 2012, disability activists have played a significant role in the development of Bedroom Tax protests.[31] A wide range of benefit changes are estimated to affect disabled people disproportionately and to compromise disabled people's right to independent living.[32][33]

The Down Syndrome Bill will provide legal recognition to people living with Down syndrome.[34]

United States

In 1948, a watershed for the movement was the proof of the existence of physical and program barriers. The proof was provided as a specification for barrier free usable facilities for people with disabilities. The specifications provided the minimum requirements for barrier free physical and program access. An example of barriers are; providing only steps to enter buildings; lack of maintenance of walkways; locations not connected with public transit; lack of visual and hearing communications ends up segregating individuals with disabilities from independent, participation, and opportunities. The ANSI - Barrier Free Standard (phrase coined by Dr. Timothy Nugent, the lead investigator) called "ANSI A117.1, Making Buildings Accessible to and Usable by the Physically Handicapped", provides the indisputable proof that the barriers exist. The standard is the outcome of physical therapists, bio-mechanical engineers, and individuals with disabilities who developed and participated in over 40 years of research. The standard provides the criteria for modifying programs and the physical site to provide independence. The standard has been emulated globally since its introduction in Europe, Asia, Japan, Australia, and Canada, in the early 1960s.

One of the most important developments of the disability rights movement was the growth of the independent living movement, which emerged in California in the 1960s through the efforts of Edward Roberts and other wheelchair-using individuals. This movement, a subset of the disability rights movement, postulates that people with disabilities are the best experts on their needs, and therefore they must take the initiative, individually and collectively, in designing and promoting better solutions and must organize themselves for political power. Besides de-professionalization and self-representation, the independent living movement's ideology comprises de-medicalization of disability, de-institutionalization and cross-disability (i.e. inclusion in the independent living movement regardless of diagnoses).[5] Similarly, the Architectural Barriers Act was passed in 1968, mandating that federally constructed buildings and facilities be accessible to people with physical disabilities. This act is generally considered to be the first ever-federal disability rights legislation.[35] Unfortunately for those with cognitive disabilities, their disability made it more difficult to be the best expert of their own needs, hindering their ability to self-advocate as their wheelchair-using counterparts could. Self-representation was much more difficult for those who could not articulate their thoughts, leading to their dependence on others to carry on the movement.

In 1973 the (American) Rehabilitation Act became law; Sections 501, 503, and 504 prohibited discrimination in federal programs and services and all other programs or services receiving federal funds. Key language in the Rehabilitation Act, found in Section 504, states "No otherwise qualified handicapped [sic] individual in the United States, shall, solely by reason of his [sic] handicap [sic], be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving federal financial assistance."[36][37] The act also specifies money that can be allocated to help disabled people receive training for the work force as well as to assist in making sure that they can then reach work without running into inaccessibility problems. This was the first civil rights law guaranteeing equal opportunity for people with disabilities.[38]

Another crucial turning point was the 504 Sit-in in 1977 of government buildings operated by the United States Department of Health, Education, and Welfare (HEW), conceived by Frank Bowe and organized by the American Coalition of Citizens with Disabilities, that led to the release of regulations pursuant to Section 504 of the Rehabilitation Act of 1973. On April 5, 1977, activists began to demonstrate and some sat-in in the offices found in ten of the federal regions including New York City, Los Angeles, Boston, Denver, Chicago, Philadelphia, and Atlanta. One of the most noteworthy protests occurred in San Francisco. The protesters demanded the signing of regulations for Section 504 of the Rehabilitation Act of 1973.The successful sit-in was led by Judith Heumann. The first day of protests marked the first of a 25-day sit-in. Close to 120 disability activists and protesters occupied the HEW building, and Secretary Joseph Califano finally signed on April 28, 1977. This protest was significant not only because its goal was achieved, but also because it was the foremost concerted effort between people of different disabilities coming together in support of legislation that affected the overall disability population, rather than only specific groups.

In 1978 disability rights activists in Denver, Colorado, organized by the Atlantis Community, held a sit-in and blockade of the Denver Regional Transit Authority buses in 1978. They were protesting the fact that city's transit system was completely inaccessible for physically disabled people. This action proved to be just the first in a series of civil disobedience demonstrations that lasted for a year until the Denver Transit Authority finally bought buses equipped with wheelchair lifts. In 1983, Americans Disabled for Accessible Public Transit (ADAPT) was responsible for another civil disobedience campaign also in Denver that lasted seven years. They targeted the American Public Transport Association in protest of inaccessible public transportation; this campaign ended in 1990 when bus lifts for people using wheelchairs were required nationwide by the Americans with Disabilities Act.[36]

Another significant protest related to disability rights was the Deaf President Now protest by the Gallaudet University students in Washington, D.C., in March 1988. The eight-day (March 6 – March 13) demonstration and occupation and lock-out of the school began when the Board of Trustees appointed a new hearing President, Elisabeth Zinser, over two Deaf candidates. The students' primary grievance was that the university, which was dedicated to the education of people who are Deaf, had never had a Deaf president, someone representative of them. Of the protesters' four demands, the main one was the resignation of the current president and the appointment of a Deaf one. The demonstration consisted of about 2,000 student and nonstudent participants. The protests took place on campus, in government buildings, and in the streets. In the end, all the students' demands were met and I. King Jordan was appointed the first Deaf President of the university.[30]

In 1990, the Americans with Disabilities Act became law, and it provided comprehensive civil rights protection for people with disabilities. Closely modeled after the Civil Rights Act and Section 504, the law was the most sweeping disability rights legislation in American history. It mandated that local, state, and federal governments and programs be accessible, that employers with more than 15 employees make "reasonable accommodations" for workers with disabilities and not discriminate against otherwise qualified workers with disabilities, and that public accommodations such as restaurants and stores not discriminate against people with disabilities and that they make reasonable modifications to ensure access for disabled members of the public. The act also mandated access in public transportation, communication, and in other areas of public life.

The first Disability Pride March in the United States was held in Boston in 1990. A second Disability Pride March was held in Boston in 1991. There were no subsequent Disability Pride Marches/Parades for many years, until Chicago on Sunday, July 18, 2004.[39][40] It was funded with $10,000 in seed money that Sarah Triano received in 2003 as part of the Paul G. Hearne Leadership award from the American Association of People with Disabilities.[40] According to Triano, 1,500 people attended the parade.[40] Yoshiko Dart was the parade marshal.[39]

Exhibitions and collections

To mark the 10th anniversary of the Americans with Disabilities Act, the Smithsonian Institution National Museum of American History opened an exhibition that examined the history of activism by people with disabilities, their friends, and families to secure the civil rights guaranteed to all Americans. Objects on view included the pen President George H. W. Bush used to sign the Act and one of the first ultralight wheelchairs. The exhibition was designed for maximum accessibility. Web-based kiosks - prototypes for a version that will eventually be available to museums and other cultural institutions - provided alternate formats to experience the exhibition. The exhibition was open from July 6, 2000, to July 23, 2001.[41]

Debates and approaches

A key debate in the disability rights movement is between affirmative action for persons with disabilities versus fighting for equitable treatment. According to a 1992 polling organization, many fear that integrating people with disabilities into the workplace may affect their company image, or it may result in decreased productivity.[42] This coincides with the 1992 parliamentary review of the Employment Equity Act, which stated that employers should look to implement equity without having an official quota system.[43] This remains an ongoing debate.

An additional debate is between institutionalizing persons with disabilities versus supporting them in their homes. In 1963 during John F. Kennedy's presidency, he transformed the national view of mental health by boosting funding for community-based programs and drafting legislation for mental health care. He also created the President's Panel on Mental Retardation, which created recommendations for new programs that governments can implement on a state level, therefore moving away from "custodial institutions".[44] This shift away from institutionalization has generated a long-lasting stigma against mental health institutions, which is why in politics there is often not enough funding for this concept.

According to the US Supreme Court case Humphrey v. Cady, civil commitment laws and eligibility for intervention exist only in the instance when the person is ruled an immediate danger to themself or others.[45] The difficulty of proving "immediate danger" has led to the unexpected outcome that it is harder to commit mentally ill patients to hospital and easier to send them to prison. According to the National Alliance on Mental Illness, about 15% male inmates and 30% female inmates have some kind of serious mental illness which remains untreated.[46]

Another ongoing debate is how to cultivate self-determination for persons with disabilities. The common article 1 of the International Covenant on Civil and Political Rights and the International Covenant on Economic, Social and Cultural Rights asserts that "All peoples have the right to self-determination" with free will.[47] Because this highlights the concept of free and autonomous choice, one argument is that any government interference deters self-determination,[48] thus leaving it to persons with disabilities to seek out any help they need from charities and nonprofit organizations. Charitable organizations such as churches believe in helping persons with disabilities with nothing in return. On the other hand, another approach is a participatory, symbiotic relationship, which include methods like professional development and resource provisions. More specifically, one approach is to allow persons with disabilities to self-articulate their needs and generate their own solutions and analyses.[49][50] Instead of passive participation, which is participation by being told what to do or what has been done, this approach proposes to allow this group to be self-sufficient and make their own decisions. Barriers to this include defining who is a self-sufficient individual with a disability, circling back to the concept of self-determination.

See also

Lawsuits

External links

Listen to this article (8 minutes)
 
This audio file was created from a revision of this article dated 20 April 2009 (2009-04-20), and does not reflect subsequent edits.
  • Independent Living Resources
  • National Organization on Disability
  • Society for Disability Studies
  • Lives Worth Living site for Independent Lens on PBS
  • The Disability Rights Movement An online exhibition from the National Museum of American History

Further reading

  • Colker, Ruth and Milani, Adam. Everyday Law for Individuals with Disabilities (Paradigm Publishers, 2005). ISBN 978-1-59451-145-5
  • Fleischer, Doris Zames and Zames, Frieda. The Disability Rights Movement: From Charity to Confrontation (Temple University Press, 2nd Edition, 2011). ISBN 978-1-4399-0743-6
  • Johnson, Mary and The Ragged Edge Online Community. Disability Awareness - do it right! Your all-in-one how-to guide (The Advocado Press, 2006). ISBN 978-0-9721189-1-0
  • Longmore, Paul, K. and Umansky, Laurie, editors, The New Disability History: American Perspectives (New York University Press, 2001). ISBN 978-0-8147-8564-5
  • O'Brien, Ruth. Crippled Justice: The History of Modern Disability Policy in the Workplace (University Of Chicago Press, 2001). ISBN 978-0-226-61659-9
  • Pelka, Fred. (1997). The ABC-CLIO Companion to the Disability Rights Movement. Santa Barbara CA: ABC-CLIO. ISBN 978-0-87436-834-5
  • Pelka, Fred. (2012). What We Have Done: An Oral History of the Disability Rights Movement. Amherst, Boston MA: University of Massachusetts Press. ISBN 978-1-55849-919-5
  • The Regents of the University of California. The Disability Rights and Independent Living Movement (Berkeley, CA: The University of California Berkeley, 2001). Web. Copyright © 2007 The Regents of the University of California. All rights reserved. Document maintained on server: www.lib.berkeley.edu/ by The Bancroft Library. www.bancroft.berkeley.edu/collections/drilm/aboutus/project.html
  • Shapiro, Joseph P. (1993). No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Times Books ISBN 978-0-8129-2412-1
  • Stroman, Duane. (2003). The Disability Rights Movement: From Deinstitutionalization to Self-Determination. University Press of America. ISBN 978-0-7618-2480-0
  • Vega, Eugenio (2022) Crónica del siglo de la peste. Pandemias, discapacidad y diseño. Madrid, Experimenta Libros. ISBN 978-84-18049-73-6
  • Williamson, Bess (2019). Accessible America. A History of Disability and Design. New York University Press. ISBN 978-1-4798024-94

References

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disability, rights, movement, confused, with, disability, studies, disability, rights, movement, global, social, movement, that, seeks, secure, equal, opportunities, equal, rights, people, with, disabilities, made, organizations, disability, activists, also, k. Not to be confused with Disability studies The disability rights movement is a global 1 2 3 social movement that seeks to secure equal opportunities and equal rights for all people with disabilities It is made up of organizations of disability activists also known as disability advocates around the world working together with similar goals and demands such as accessibility and safety in architecture transportation and the physical environment equal opportunities in independent living employment equity education and housing and freedom from discrimination abuse neglect and from other rights violations 4 Disability activists are working to break institutional physical and societal barriers that prevent people with disabilities from living their lives like other citizens 4 5 Disability rights is complex because there are multiple ways in which a person with a disability can have their rights violated in different socio political cultural and legal contexts For example a common barrier that individuals with disabilities face deals with employment Specifically employers are often unwilling or unable to provide the necessary accommodations to enable individuals with disabilities to effectively carry out their job functions 6 Contents 1 History 1 1 United States 1 2 United Nations 2 Disability barriers 3 Issues 3 1 People with physical disabilities 3 1 1 People with visual disabilities 3 2 People with intellectual and developmental disabilities 3 3 Autism rights movement 3 4 People with mental health issues 3 5 Access to education and employment 3 6 Freedom from discrimination and abuse 4 Major events 4 1 Canada 4 2 India 4 3 United Kingdom 4 4 United States 5 Exhibitions and collections 6 Debates and approaches 7 See also 7 1 Lawsuits 8 External links 9 Further reading 10 ReferencesHistory EditUnited States Edit American disability rights have evolved significantly over the past century Before the disability rights movement President Franklin D Roosevelt s refusal to be publicized in a position of vulnerability demonstrated and symbolized the existing stigma surrounding disabilities 7 While campaigning giving speeches or acting as a public figure he hid his disability This perpetuated the ideology that disability equates to weakness 8 Disability in the United States was viewed as a personal issue and not many political or governmental organizations existed to support individuals in these groups In the 1950s there was a transition to volunteerism and parent oriented organizations such as the March of Dimes 9 While this was the beginning of activism and seeking support for these groups children with disabilities were largely hidden by their parents out of fear of forced rehabilitation 8 When the civil rights movement took off in the 1960s disability advocates joined it and the women s rights movements in order to promote equal treatment and challenge stereotypes It was at this time that disability rights advocacy began to have a cross disability focus People with different kinds of disabilities physical and mental disabilities along with visual and hearing disabilities and different essential needs came together to fight for a common cause It was not until 1990 that the Americans with Disabilities Act ADA was passed legally prohibiting discrimination on account of disability and mandating disability access in all buildings and public areas The ADA is historically significant in that it defined the meaning of reasonable accommodation in order to protect employees and employers 10 Today disability rights advocates continue protecting those who are discriminated against including work towards issues like law enforcement and treatment of people with disabilities United Nations Edit On a global scale the United Nations has established the Convention on the Rights of Persons with Disabilities 11 specifically discussing indigenous people with disabilities Lockwood 146 full citation needed Disability barriers Edit source source source source Alternative access to the subway in Japan Floor marker for visually impaired people in Narita Airport Japan The social model of disability suggests disability is caused by the way society is organized rather than by a person s impairment This model suggests barriers in society are created by ableism When barriers are removed people with disabilities can be independent and equal in society There are three main types of barriers 12 Attitudinal barriers are created by people who see only disability when associating with people with disabilities in some way These attitudinal barriers can be witnessed through bullying discrimination and fear These barriers include low expectations of people with disabilities These barriers contribute to all other barriers 12 13 14 Attitudes towards people with disabilities in low and middle income countries can be even more extreme 15 Environmental barriers inaccessible environments natural or built create disability by creating barriers to inclusion Institutional barriers include many laws policies practices or strategies that discriminate against people with disabilities For example a study of five Southeast Asian countries found that electoral laws do not specially protect the political rights of persons with disabilities while some banks do not allow visually disabled people to open accounts and HIV testing centers often refuse to accept sign language interpreters due to confidentiality policies 16 Restrictive laws exist in some countries particularly affecting people with intellectual or psychosocial disabilities 17 Other barriers include internalised barriers low expectations of people with disabilities can undermine their confidence and aspirations inadequate data and statistics lack of participation and consultation of disabled people Issues EditPeople with physical disabilities Edit Access to public areas such as city streets public buildings and restrooms are some of the more visible changes brought about in recent decades to remove physical barriers A noticeable change in some parts of the world is the installation of elevators automatic doors wide doors and corridors transit lifts wheelchair ramps curb cuts and the elimination of unnecessary steps where ramps and elevators are not available allowing people in wheelchairs and with other mobility disabilities to use public sidewalks and public transit more easily and safely People with visual disabilities Edit Code signs for people with color vision deficiency Main article Problems for the Color Blind in Society People with color vision deficiency regularly deal with implicit discrimination due to their inability to distinguish certain colors A system of geometrically shaped code signs known as Coloradd was developed by Professor Miguel Neiva of the University of Minho Portugal in 2010 to indicate colours to people who have difficulty discerning them 18 People with intellectual and developmental disabilities Edit Main article Self advocacy People with intellectual and developmental disabilities focus their efforts on ensuring that they have the same human rights as other people and that they are treated like human beings Since the formation of the self advocacy movement in the 1960s the largest focus of the movement has been to get people with I DD out of institutions and into the community 19 Another main focus is ensuring that people with intellectual and developmental disabilities are in integrated workplaces that pay at least minimum wage In the US it is still legal to pay people with I DD below minimum wage in sheltered workshops 20 Many people with intellectual and developmental disabilities are put under guardianship and are not allowed to make their own decisions about their lives 21 Another issue is the continued dehumanization of people with intellectual and developmental disabilities which prompted the slogan People First still used as a rallying cry and a common organizational name in the self advocacy movement 22 Self advocates are also involved in the R Word Campaign in which they try to eliminate the use of the word retard 23 Self advocates successfully advocated to change the name of the Arc Autism rights movement Edit Further information Autism rights movement and Neurodiversity See also Autism friendly The autism rights movement is a social movement that emphasizes the concept of neurodiversity viewing the autism spectrum as a result of natural variations in the human brain rather than a disorder to be cured 24 The autism rights movement advocates for several goals including greater acceptance of autistic behaviors therapies that focus on coping skills rather than imitating the behaviors of neurotypical peers 25 the creation of social networks and events that allow autistic people to socialize on their own terms 26 and the recognition of the autistic community as a minority group 25 27 Autism rights or neurodiversity advocates believe that the autism spectrum is primarily genetic and should be accepted as a natural expression of the human genome This perspective is distinct from two other views the medical perspective that autism is caused by a genetic defect and should be addressed by targeting the autism gene s and fringe theories that autism is caused by environmental factors such as vaccines 24 The movement is controversial A common criticism against autistic activists is that the majority of them are high functioning or have Asperger syndrome and do not represent the views of low functioning autistic people 27 People with mental health issues Edit Advocates for the rights of people with mental health disabilities focus mainly on self determination and an individual s ability to live independently 28 The right to have an independent life using paid assistant care instead of being institutionalized if the individual wishes is a major goal of the disability rights movement and is the main goal of the similar independent living and self advocacy movements which are most strongly associated with people with intellectual disabilities and mental health disorders These movements have supported people with disabilities to live as more active participants in society 29 Access to education and employment Edit Access to education and employment have also been a major focus of the disability rights movement Adaptive technologies enabling people to work jobs they could not have previously help create access to jobs and economic independence Access in the classroom has helped improve education opportunities and independence for people with disabilities Freedom from discrimination and abuse Edit Freedom from abuse neglect and violations of a person s rights are also important goals of the disability rights movement Abuse and neglect includes inappropriate seclusion and restraint inappropriate use of force by staff and or providers threats harassment and or retaliation by staff or providers failure to provide adequate nutrition clothing and or medical and mental health care and or failure to provide a clean and safe living environment as well as other issues which pose a serious threat to the physical and psychological well being of a person with a disability Violations of patients rights include failure to obtain informed consent for treatment failure to maintain the confidentiality of treatment records and inappropriate restriction of the right to communicate and associate with others as well as other restrictions of rights As a result of the work done through the disability rights movement significant disability rights legislation was passed in the 1970s through the 1990s in the U S 30 Major events EditSee also Timeline of disability rights outside the United States and Timeline of disability rights in the United States Canada Edit Canada s largest province Ontario created legislation Accessibility for Ontarians with Disabilities Act 2005 with the goals of becoming accessible by 2025 In 2019 the Accessible Canada Act became law This is the first national Canadian legislation on accessibility that affects all government departments and federally regulated agencies India Edit The Rights of Persons with Disabilities Act 2016 is the disability legislation passed by the Indian Parliament to fulfill its obligation to the United Nations Convention on the Rights of Persons with Disabilities which India ratified in 2007 The Act replaced the existing Persons With Disabilities Equal Opportunities Protection of Rights and Full Participation Act 1995 It came into effect on 28 December 2016 This law recognizes 21 disabilities United Kingdom Edit Disability rights activist outside Scottish Parliament 30 March 2013 In the United Kingdom following extensive activism by people with disabilities over several decades the Disability Discrimination Act 1995 DDA 1995 was passed This made it unlawful in the United Kingdom to discriminate against people with disabilities in relation to employment the provision of goods and services education and transport The Equality and Human Rights Commission provides support for this Act Equivalent legislation exists in Northern Ireland which is enforced by the Northern Ireland Equality Commission Following the introduction of the Bedroom Tax officially the Under occupancy penalty in the Welfare Reform Act 2012 disability activists have played a significant role in the development of Bedroom Tax protests 31 A wide range of benefit changes are estimated to affect disabled people disproportionately and to compromise disabled people s right to independent living 32 33 The Down Syndrome Bill will provide legal recognition to people living with Down syndrome 34 United States Edit Further information Timeline of disability rights in the United States Further information Suffrage for Americans with Disabilities In 1948 a watershed for the movement was the proof of the existence of physical and program barriers The proof was provided as a specification for barrier free usable facilities for people with disabilities The specifications provided the minimum requirements for barrier free physical and program access An example of barriers are providing only steps to enter buildings lack of maintenance of walkways locations not connected with public transit lack of visual and hearing communications ends up segregating individuals with disabilities from independent participation and opportunities The ANSI Barrier Free Standard phrase coined by Dr Timothy Nugent the lead investigator called ANSI A117 1 Making Buildings Accessible to and Usable by the Physically Handicapped provides the indisputable proof that the barriers exist The standard is the outcome of physical therapists bio mechanical engineers and individuals with disabilities who developed and participated in over 40 years of research The standard provides the criteria for modifying programs and the physical site to provide independence The standard has been emulated globally since its introduction in Europe Asia Japan Australia and Canada in the early 1960s One of the most important developments of the disability rights movement was the growth of the independent living movement which emerged in California in the 1960s through the efforts of Edward Roberts and other wheelchair using individuals This movement a subset of the disability rights movement postulates that people with disabilities are the best experts on their needs and therefore they must take the initiative individually and collectively in designing and promoting better solutions and must organize themselves for political power Besides de professionalization and self representation the independent living movement s ideology comprises de medicalization of disability de institutionalization and cross disability i e inclusion in the independent living movement regardless of diagnoses 5 Similarly the Architectural Barriers Act was passed in 1968 mandating that federally constructed buildings and facilities be accessible to people with physical disabilities This act is generally considered to be the first ever federal disability rights legislation 35 Unfortunately for those with cognitive disabilities their disability made it more difficult to be the best expert of their own needs hindering their ability to self advocate as their wheelchair using counterparts could Self representation was much more difficult for those who could not articulate their thoughts leading to their dependence on others to carry on the movement In 1973 the American Rehabilitation Act became law Sections 501 503 and 504 prohibited discrimination in federal programs and services and all other programs or services receiving federal funds Key language in the Rehabilitation Act found in Section 504 states No otherwise qualified handicapped sic individual in the United States shall solely by reason of his sic handicap sic be excluded from the participation in be denied the benefits of or be subjected to discrimination under any program or activity receiving federal financial assistance 36 37 The act also specifies money that can be allocated to help disabled people receive training for the work force as well as to assist in making sure that they can then reach work without running into inaccessibility problems This was the first civil rights law guaranteeing equal opportunity for people with disabilities 38 Another crucial turning point was the 504 Sit in in 1977 of government buildings operated by the United States Department of Health Education and Welfare HEW conceived by Frank Bowe and organized by the American Coalition of Citizens with Disabilities that led to the release of regulations pursuant to Section 504 of the Rehabilitation Act of 1973 On April 5 1977 activists began to demonstrate and some sat in in the offices found in ten of the federal regions including New York City Los Angeles Boston Denver Chicago Philadelphia and Atlanta One of the most noteworthy protests occurred in San Francisco The protesters demanded the signing of regulations for Section 504 of the Rehabilitation Act of 1973 The successful sit in was led by Judith Heumann The first day of protests marked the first of a 25 day sit in Close to 120 disability activists and protesters occupied the HEW building and Secretary Joseph Califano finally signed on April 28 1977 This protest was significant not only because its goal was achieved but also because it was the foremost concerted effort between people of different disabilities coming together in support of legislation that affected the overall disability population rather than only specific groups In 1978 disability rights activists in Denver Colorado organized by the Atlantis Community held a sit in and blockade of the Denver Regional Transit Authority buses in 1978 They were protesting the fact that city s transit system was completely inaccessible for physically disabled people This action proved to be just the first in a series of civil disobedience demonstrations that lasted for a year until the Denver Transit Authority finally bought buses equipped with wheelchair lifts In 1983 Americans Disabled for Accessible Public Transit ADAPT was responsible for another civil disobedience campaign also in Denver that lasted seven years They targeted the American Public Transport Association in protest of inaccessible public transportation this campaign ended in 1990 when bus lifts for people using wheelchairs were required nationwide by the Americans with Disabilities Act 36 Another significant protest related to disability rights was the Deaf President Now protest by the Gallaudet University students in Washington D C in March 1988 The eight day March 6 March 13 demonstration and occupation and lock out of the school began when the Board of Trustees appointed a new hearing President Elisabeth Zinser over two Deaf candidates The students primary grievance was that the university which was dedicated to the education of people who are Deaf had never had a Deaf president someone representative of them Of the protesters four demands the main one was the resignation of the current president and the appointment of a Deaf one The demonstration consisted of about 2 000 student and nonstudent participants The protests took place on campus in government buildings and in the streets In the end all the students demands were met and I King Jordan was appointed the first Deaf President of the university 30 In 1990 the Americans with Disabilities Act became law and it provided comprehensive civil rights protection for people with disabilities Closely modeled after the Civil Rights Act and Section 504 the law was the most sweeping disability rights legislation in American history It mandated that local state and federal governments and programs be accessible that employers with more than 15 employees make reasonable accommodations for workers with disabilities and not discriminate against otherwise qualified workers with disabilities and that public accommodations such as restaurants and stores not discriminate against people with disabilities and that they make reasonable modifications to ensure access for disabled members of the public The act also mandated access in public transportation communication and in other areas of public life The first Disability Pride March in the United States was held in Boston in 1990 A second Disability Pride March was held in Boston in 1991 There were no subsequent Disability Pride Marches Parades for many years until Chicago on Sunday July 18 2004 39 40 It was funded with 10 000 in seed money that Sarah Triano received in 2003 as part of the Paul G Hearne Leadership award from the American Association of People with Disabilities 40 According to Triano 1 500 people attended the parade 40 Yoshiko Dart was the parade marshal 39 Exhibitions and collections EditTo mark the 10th anniversary of the Americans with Disabilities Act the Smithsonian Institution National Museum of American History opened an exhibition that examined the history of activism by people with disabilities their friends and families to secure the civil rights guaranteed to all Americans Objects on view included the pen President George H W Bush used to sign the Act and one of the first ultralight wheelchairs The exhibition was designed for maximum accessibility Web based kiosks prototypes for a version that will eventually be available to museums and other cultural institutions provided alternate formats to experience the exhibition The exhibition was open from July 6 2000 to July 23 2001 41 Debates and approaches EditA key debate in the disability rights movement is between affirmative action for persons with disabilities versus fighting for equitable treatment According to a 1992 polling organization many fear that integrating people with disabilities into the workplace may affect their company image or it may result in decreased productivity 42 This coincides with the 1992 parliamentary review of the Employment Equity Act which stated that employers should look to implement equity without having an official quota system 43 This remains an ongoing debate An additional debate is between institutionalizing persons with disabilities versus supporting them in their homes In 1963 during John F Kennedy s presidency he transformed the national view of mental health by boosting funding for community based programs and drafting legislation for mental health care He also created the President s Panel on Mental Retardation which created recommendations for new programs that governments can implement on a state level therefore moving away from custodial institutions 44 This shift away from institutionalization has generated a long lasting stigma against mental health institutions which is why in politics there is often not enough funding for this concept According to the US Supreme Court case Humphrey v Cady civil commitment laws and eligibility for intervention exist only in the instance when the person is ruled an immediate danger to themself or others 45 The difficulty of proving immediate danger has led to the unexpected outcome that it is harder to commit mentally ill patients to hospital and easier to send them to prison According to the National Alliance on Mental Illness about 15 male inmates and 30 female inmates have some kind of serious mental illness which remains untreated 46 Another ongoing debate is how to cultivate self determination for persons with disabilities The common article 1 of the International Covenant on Civil and Political Rights and the International Covenant on Economic Social and Cultural Rights asserts that All peoples have the right to self determination with free will 47 Because this highlights the concept of free and autonomous choice one argument is that any government interference deters self determination 48 thus leaving it to persons with disabilities to seek out any help they need from charities and nonprofit organizations Charitable organizations such as churches believe in helping persons with disabilities with nothing in return On the other hand another approach is a participatory symbiotic relationship which include methods like professional development and resource provisions More specifically one approach is to allow persons with disabilities to self articulate their needs and generate their own solutions and analyses 49 50 Instead of passive participation which is participation by being told what to do or what has been done this approach proposes to allow this group to be self sufficient and make their own decisions Barriers to this include defining who is a self sufficient individual with a disability circling back to the concept of self determination See also Edit Society portalAutonomy Big Apple Pothole and Sidewalk Protection Committee Community Alliance for the Ethical Treatment of Youth Declaration on the Rights of Disabled Persons Disability flag Fat acceptance movement Inclusion disability rights List of disability rights activists List of disability rights organizations Medical model of disability Nothing About Us Without Us Person Centred Planning Psychiatric survivors movement Reasonable accommodation Social model of disability Transgenerational design Universal design Visitability Lawsuits Edit Access Now v Southwest Airlines Mills vs Board of Education of District of ColumbiaExternal links EditListen to this article 8 minutes source source This audio file was created from a revision of this article dated 20 April 2009 2009 04 20 and does not reflect subsequent edits Audio help More spoken articles Independent Living Resources National Organization on Disability Society for Disability Studies Lives Worth Living site for Independent Lens on PBS The Disability Rights Movement An online exhibition from the National Museum of American HistoryFurther reading EditColker Ruth and Milani Adam Everyday Law for Individuals with Disabilities Paradigm Publishers 2005 ISBN 978 1 59451 145 5 Fleischer Doris Zames and Zames Frieda The Disability Rights Movement From Charity to Confrontation Temple University Press 2nd Edition 2011 ISBN 978 1 4399 0743 6 Johnson Mary and The Ragged Edge Online Community Disability Awareness do it right Your all in one how to guide The Advocado Press 2006 ISBN 978 0 9721189 1 0 Longmore Paul K and Umansky Laurie editors The New Disability History American Perspectives New York University Press 2001 ISBN 978 0 8147 8564 5 O Brien Ruth Crippled Justice The History of Modern Disability Policy in the Workplace University Of Chicago Press 2001 ISBN 978 0 226 61659 9 Pelka Fred 1997 The ABC CLIO Companion to the Disability Rights Movement Santa Barbara CA ABC CLIO ISBN 978 0 87436 834 5 Pelka Fred 2012 What We Have Done An Oral History of the Disability Rights Movement Amherst Boston MA University of Massachusetts Press ISBN 978 1 55849 919 5 The Regents of the University of California The Disability Rights and Independent Living Movement Berkeley CA The University of California Berkeley 2001 Web Copyright c 2007 The Regents of the University of California All rights reserved Document maintained on server www lib berkeley edu by The Bancroft Library www bancroft berkeley edu collections drilm aboutus project html Shapiro Joseph P 1993 No Pity People with Disabilities Forging a New Civil Rights Movement New York Times Books ISBN 978 0 8129 2412 1 Stroman Duane 2003 The Disability Rights Movement From Deinstitutionalization to Self Determination University Press of America ISBN 978 0 7618 2480 0 Vega Eugenio 2022 Cronica del siglo de la peste Pandemias discapacidad y diseno Madrid Experimenta Libros ISBN 978 84 18049 73 6 Williamson Bess 2019 Accessible America A History of Disability and Design New York University Press ISBN 978 1 4798024 94References Edit Groce Nora Ellen July 1 2018 Global disability an emerging issue The Lancet Global Health 6 7 e724 e725 doi 10 1016 S2214 109X 18 30265 1 PMID 29903370 S2CID 49208126 International Disability Rights Disability Rights Education amp Defense Fund Berkeley CA amp Washington DC 27 December 2012 Retrieved 18 October 2017 Bell Beverly 5 August 2014 The Global Disability Rights Movement Winning Power Participation and Access Huffington Post Retrieved 18 October 2017 a b Karan Joan Abuse Neglect and Patient Rights by the Disability Rights Wisconsin website Disability Rights Wisconsin Archived from the original on 18 November 2018 Retrieved 6 October 2014 a b Bagenstos Samuel 2009 Law and the Contradictions of the Disability Rights Movement New Haven Yale University Press doi 10 12987 yale 9780300124491 001 0001 ISBN 978 0 300 12449 1 JSTOR j ctt1npkj3 OCLC 871782238 S2CID 151301307 Long Alex 2014 Reasonable Accommodation as Professional Responsibility Reasonable Accommodation as Professionalism PDF University of California Davis 3 10 Archived from the original PDF on 23 October 2014 47 U C D L Rev 1753 2013 2014 Alter Jonathan 2007 The Defining Moment FDR s Hundred Days and the Triumph of Hope New York Simon amp Schuster p 355 ISBN 9780743246019 a b Fleischer amp Zames Doris amp Frieda 2001 The Disability Rights Movement From Charity to Confrontation Temple University Press pp 9 Purpose of the March of Dimes Befort amp Donesky Stephen amp Tracey 2000 Reassignment Under the American Disabilities Act Reasonable Accommodation Affirmative Action or Both University of Minnesota Law School 57 1045 Convention on the Rights of Persons with Disabilities CRPD a b World Report on Disability PDF WHO 2011 Disability Poverty and Development PDF Harvard Law School Project on Disability London amp Glasgow Department for International Development DFID February 2000 Archived from the original PDF on 2019 12 18 Children with Disabilities PDF UNICEF 2013 Archived from the original PDF on 2021 01 19 Retrieved 2016 09 20 Voices of the Marginalised ADD International 2014 2016 Accessible Elections for persons with disabilities in five Southeast Asian countries PDF USAID 2013 Ju beh Al Disability Inclusive Development Toolkit PDF 2015 CBM ColorAdd o codigo de cores para daltonicos in Portuguese Archived from the original on 10 March 2014 Retrieved 14 September 2013 The Goals of Self Advocacy Parallels in Time A History of Developmental Disabilities Retrieved 9 January 2023 Real Work for Real Pay A Self Advocate s Guide to Employment Policy Autistic Self Advocacy Network 2 October 2018 Retrieved 9 January 2023 Autonomy Decision Making and Guardianship AAIDD CMS We Are People First Parallels in TIme A History of Developmental Disabilities Retrieved 9 January 2023 R word Spread the Word to End the Word Special Olympics The Joseph P Kennedy Jr Foundation for the Benefit of Persons with Intellectual Disabilities 2008 Archived from the original on 29 October 2008 Retrieved 6 October 2014 a b Solomon Andrew 2008 05 25 The autism rights movement New York Archived from the original on 27 May 2008 Retrieved 2008 05 27 a b Ratner Paul 10 July 2016 Should Autism Be Cured or Is Curing Offensive Big Think Retrieved 16 June 2019 Autism Network International presents Autreat Archived 2001 12 14 at the Wayback Machine 2008 05 23 AIN a b Jaarsma Pier Welin Stellan 2012 Autism as a natural human variation reflections on the claims of the neurodiversity movement Health Care Analysis 20 1 20 30 doi 10 1007 s10728 011 0169 9 ISSN 1573 3394 PMID 21311979 S2CID 18618887 Barnartt Sharon N Scotch Richard 2001 Disability Protests Contentious Politics 1970 1999 Washington D C Gallaudet University Press ISBN 978 1 56368 112 7 OCLC 1325905290 Johnson Roberta Ann 1999 Mobilizing the Disabled In Jo Freeman amp Victoria Johnson ed Waves of Protest Social Movements Since the Sixties pp 25 45 Lanham MD Rowman and Littlefield ISBN 978 0 8476 8748 0 OCLC 40395836 a b Fleischer Doris 2001 The Disability Rights Movement Philadelphia Temple University Press ISBN 1 56639 812 6 Wynne Jones Ros 17 July 2013 Bedroom tax protesters deliver letters on devastating effect on disabled people s lives Daily Mirror Retrieved 9 August 2013 Limited life chances of disabled people in Britain revealed by damning report The Guardian Johnston Chris 3 April 2017 Limited life chances of disabled people in Britain revealed by damning report The Guardian US Kings Place London Scott trust eISSN 1756 3224 ISSN 0261 3077 OCLC 60623878 Archived from the original on 4 April 2017 Retrieved 1 July 2022 This article is more than 5 years old World leading Down s syndrome bill clears first hurdle in Parliament BBC News 2021 11 26 Retrieved 2021 11 27 Where We Came From A Brief History of the Disability Rights Movement and Disability Discrimination PDF drckansas org Disability Rights Center of Kansas 2010 Archived from the original PDF on 2014 05 20 Retrieved 2020 01 02 a b The Regents of the University of California 2008 The Disability Rights and Independent Living Movement Berkeley CA The University of California Berkeley Retrieved 6 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with Disabilities through Legislation PDF International Labour Organization 2014 pp 20 30 ISBN 978 92 2 129122 0 JOHN F KENNEDY AND PEOPLE WITH INTELLECTUAL DISABILITIES Presidential Library and Museum Civil Commitment and the Mental Health Care Continuum Historical Trends and Principles for Law and Practice PDF Office of the Chief Medical Officer Substance Abuse and Mental Health Services Administration Rockville MD 2019 p 8 Archived from the original PDF on 16 June 2022 Jailing People with Mental Illness National Alliance on Mental Illness Arlington VA Archived from the original on 11 March 2021 Freeman Michael 1999 The Right to Self Determination in International Politics Six Theories in Search of a Policy PDF Review of International Studies Cambridge University Press 25 3 355 370 doi 10 1017 S0260210599003551 JSTOR 20097605 S2CID 145283657 Archived from the original PDF on July 1 2022 Morris Jenny 2005 Citizenship and disabled people A scoping paper prepared for the Disability 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