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Factitious disorder imposed on another

Factitious disorder imposed on another (FDIA), also known as fabricated or induced illness by carers (FII), and first named as Munchausen syndrome by proxy (MSbP), is a condition in which a caregiver creates the appearance of health problems in another person, typically their child.[7][8] This may include injuring the child or altering test samples.[7] The caregiver then presents the person as being sick or injured.[5] Permanent injury or death of the victim may occur as a result of the disorder.[7] The behaviour occurs without a specific benefit to the caregiver.[5]

Factitious disorder imposed on another (FDIA)
Other names
  • Munchausen syndrome by proxy (MSbP)
  • Munchausen by proxy (MbP)
  • Factitious disorder imposed by another
  • Factitious disorder by proxy
  • Fabricated or induced illness by caregivers (FII)
  • Medical child abuse
SpecialtyPsychiatry
SymptomsVariable[1]
CausesUnknown[2]
Risk factorsComplications of pregnancy, caregiver who was abused as a child or has factitious disorder imposed on self[3]
Diagnostic methodRemoving the child from the caregiver results in improvement, video surveillance without the knowledge of the caregiver[4]
Differential diagnosisMedical disorder, other forms of child abuse, delusional disorder[5]
TreatmentRemoval of the child, therapy[2][4]
FrequencyEstimated 1 to 30 occurrences per 1,000,000 children[6]

The cause of FDIA is unknown.[2] The primary motive may be to gain attention and manipulate physicians.[4] Risk factors for FDIA include pregnancy related complications and a mother who was abused as a child or has factitious disorder imposed on self.[3] Diagnosis is supported when removing the child from the caregiver results in improvement of symptoms or video surveillance without the knowledge of the caregiver finds concerns.[4] Those affected by the disorder have been subjected to a form of physical abuse and medical neglect.[1]

Management of FDIA may require putting the child in foster care.[2][4][9] It is not known how effective therapy is for FDIA; it is assumed it may work for those who admit they have a problem.[4] The prevalence of FDIA is unknown,[5] but it appears to be relatively rare.[4] More than 95% of cases involve a person's mother.[3]

The prognosis for the caregiver is poor.[4] However, there is a burgeoning literature on possible courses of therapy.[3]

The condition was first named as "Munchausen syndrome by proxy" in 1977 by British pediatrician Roy Meadow.[4] Some aspects of FDIA may represent criminal behavior.[5]

Signs and symptoms

In factitious disorder imposed on another, a caregiver makes a dependent person appear mentally or physically ill in order to gain attention. To perpetuate the medical relationship, the caregiver systematically misrepresents symptoms, fabricates signs, manipulates laboratory tests, or even purposely harms the dependent (e.g. by poisoning, suffocation, infection, physical injury).[6] It is important to note the caregiver is not performing this behavior for obvious external reward, such as money.[5] Studies have shown a mortality rate of between six and ten percent, making it perhaps the most lethal form of abuse.[10][11]

In one study, the average age of the affected individual at the time of diagnosis was four years old. Slightly over 50% were aged 24 months or younger, and 75% were under six years old. The average duration from onset of symptoms to diagnosis was 22 months. By the time of diagnosis, six percent of the affected persons were dead, mostly from apnea (a common result of smothering) or starvation, and seven percent had long-term or permanent injury. About half of the affected had siblings; 25% of the known siblings were dead, and 61% of siblings had symptoms similar to the affected or that were otherwise suspicious. The mother was the perpetrator in 76.5% of the cases, the father in 6.7%.[11]

Most present about three medical problems in some combination of the 103 different reported symptoms. The most-frequently reported problems are apnea (26.8% of cases), anorexia or feeding problems (24.6% of cases), diarrhea (20%), seizures (17.5%), cyanosis (blue skin) (11.7%), behavior (10.4%), asthma (9.5%), allergy (9.3%), and fevers (8.6%).[11] Other symptoms include failure to thrive, vomiting, bleeding, rash, and infections.[10][12] Many of these symptoms are easy to fake because they are subjective. A parent reporting that their child had a fever in the past 24 hours is making a claim that is impossible to prove or disprove. The number and variety of presented symptoms contribute to the difficulty in reaching a proper diagnosis.

Aside from the motive (most commonly attributed to be a gain in attention or sympathy), another feature that differentiates FDIA from "typical" physical child abuse is the degree of premeditation involved. Whereas most physical abuse entails lashing out at a child in response to some behavior (e.g., crying, bedwetting, spilling food), assaults on the FDIA victim tend to be unprovoked and planned.[13]

Also unique to this form of abuse is the role that health care providers play by actively, albeit unintentionally, enabling the abuse. By reacting to the concerns and demands of perpetrators, medical professionals are manipulated into a partnership of child maltreatment.[6] Challenging cases that defy simple medical explanations may prompt health care providers to pursue unusual or rare diagnoses, thus allocating even more time to the child and the abuser. Even without prompting, medical professionals may be easily seduced into prescribing diagnostic tests and therapies that may be painful, costly, or potentially injurious to the child.[1] If the health practitioner resists ordering further tests, drugs, procedures, surgeries, or specialists, the FDIA abuser makes the medical system appear negligent for refusing to help a sick child and their selfless parent.[6] Like those with Munchausen syndrome, FDIA perpetrators are known to switch medical providers frequently until they find one that is willing to meet their level of need; this practice is known as "doctor shopping" or "hospital hopping".

The perpetrator continues the abuse because maintaining the child in the role of patient satisfies the abuser's needs. The cure for the victim is to separate the child completely from the abuser. When parental visits are allowed, sometimes there is a disastrous outcome for the child. Even when the child is removed, the perpetrator may then abuse another child: a sibling or other child in the family.[6]

Factitious disorder imposed on another can have many long-term emotional effects on a child. Depending on their experience of medical interventions, a percentage of children may learn that they are most likely to receive the positive parental attention they crave when they are playing the sick role in front of health care providers. Several case reports describe Munchausen syndrome patients suspected of themselves having been FDIA victims.[14] Seeking personal gratification through illness can thus become a lifelong and multi-generational disorder in some cases.[6] In stark contrast, other reports suggest survivors of FDIA develop an avoidance of medical treatment with post-traumatic responses to it.[15]

The adult caregiver who has abused the child often seems comfortable and not upset over the child's hospitalization. While the child is hospitalized, medical professionals must monitor the caregiver's visits to prevent an attempt to worsen the child's condition.[16] In addition, in many jurisdictions, medical professionals have a duty to report such abuse to legal authorities.[17]

Diagnosis

Use of the term "Munchausen syndrome by proxy" is controversial. In the World Health Organization's International Statistical Classification of Diseases, 10th Revision (ICD-10), the official diagnosis is factitious disorder (301.51 in ICD-9, F68.12 in ICD-10). Within the United States, factitious disorder imposed on another (FDIA or FDIoA) was officially recognized as a disorder in 2013,[18] while in the United Kingdom, it is known as fabricated or induced illness by carers (FII).[19]

In DSM-5, the diagnostic manual published by the American Psychiatric Association in 2013, this disorder is listed under 300.19 Factitious disorder. This, in turn, encompasses two types:[18]

  • Factitious Disorder Imposed on Self
  • Factitious Disorder Imposed on Another (Previously Factitious Disorder by Proxy); the diagnosis is assigned to the perpetrator; the person affected may be assigned an abuse diagnosis (e.g. child abuse).

Both types include an optional specifier to identify if the observed behavior was a single episode or part of recurrent episodes.[18]

Warning signs

Warning signs of the disorder include:[16]

  • A child who has one or more medical problems that do not respond to treatment or that follow an unusual course that is persistent, puzzling, and unexplained.
  • Physical or laboratory findings that are highly unusual, discrepant with patient's presentation or history, or physically or clinically impossible.
  • A parent who appears medically knowledgeable, fascinated with medical details and hospital gossip, appears to enjoy the hospital environment, and expresses interest in the details of other patients' problems.
  • A highly attentive parent who is reluctant to leave their child's side and who themselves seem to require constant attention.
  • A parent who appears unusually calm in the face of serious difficulties in their child's medical course while being highly supportive and encouraging of the physician, or one who is angry, devalues staff, and demands further intervention, more procedures, second opinions, and transfers to more sophisticated facilities.
  • The suspected parent may work in the health-care field themselves or profess an interest in a health-related job.
  • The signs and symptoms of a child's illness may lessen or simply vanish in the parent's absence (hospitalization and careful monitoring may be necessary to establish this causal relationship).
  • A family history of similar or unexplained illness or death in a sibling.
  • A parent with symptoms similar to their child's own medical problems or an illness history that itself is puzzling and unusual.
  • A suspected emotionally distant relationship between parents; the spouse often fails to visit the patient and has little contact with physicians even when the child is hospitalized with a serious illness.
  • A parent who reports dramatic, negative events, such as house fires, burglaries, or car accidents, that affect them and their family while their child is undergoing treatment.
  • A parent who seems to have an insatiable need for adulation or who makes self-serving efforts for public acknowledgment of their abilities.
  • A child who inexplicably deteriorates whenever discharge is planned.
  • A child that looks for cueing from a parent in order to feign illness when medical personnel are present.
  • A child that is overly articulate regarding medical terminology and their own disease process for their age.
  • A child that presents to the Emergency Department with a history of repeat illness, injury, or hospitalization.

Epidemiology

FDIA is rare. Incidence rate estimates range from 1 to 28 per million children,[6] although some assume that it may be much more common.[6] One study in Italy found that 4 out of more than 700 children admitted to the hospital met the criteria (0.53%). In this study, stringent diagnostic criteria were used, which required at least one test outcome or event that could not possibly have occurred without deliberate intervention by the FDIA person.[20]

Studies have showed that over 90 percent of FDIA cases, the abuser is the mother or another female guardian or caregiver.[13][21][22] A psychodynamic model of this kind of maternal abuse exists.[23]

Fathers and other male caregivers have been the perpetrators in only seven percent of the cases studied.[11] When they are not actively involved in the abuse, the fathers or male guardians of FDIA victims are often described as being distant, emotionally disengaged, and powerless. These men play a passive role in FDIA by being frequently absent from the home and rarely visiting the hospitalized child. Usually, they vehemently deny the possibility of abuse, even in the face of overwhelming evidence or their child's pleas for help.[6][13]

Overall, male and female children are equally likely to be the victim of FDIA. In the few cases where the father is the perpetrator, however, the victim is three times more likely to be male.[11]

Society and culture

Terminology

The term "Munchausen syndrome by proxy", in the United States, has never officially been included as a discrete mental disorder by the American Psychiatric Association,[24] which publishes the Diagnostic and Statistical Manual of Mental Disorders (DSM), now in its fifth edition.[5] Although the DSM-III (1980) and DSM-III-R (1987) included Munchausen syndrome, they did not include MSbP. DSM-IV (1994) and DSM-IV-TR (2000) added MSbP as a proposal only, and although it was finally recognized as a disorder in DSM-5 (2013), each of the last three editions of the DSM designated the disorder by a different name.

FDIA has been given different names in different places and at different times. What follows is a partial list of alternative names that have been either used or proposed (with approximate dates):[25]

  • Factitious Disorder Imposed on Another (current) (U.S., 2013) American Psychiatric Association, DSM-5
  • Factitious Disorder by Proxy (FDP, FDbP) (proposed) (U.S., 2000) American Psychiatric Association, DSM-IV-TR[26]
  • Fictitious Disorder by Proxy (FDP, FDbP) (proposed) (U.S., 1994) American Psychiatric Association, DSM-IV
  • Fabricated or Induced Illness by Carers (FII) (U.K., 2002) The Royal College of Pediatrics and Child Health[27]
  • Factitious Illness by Proxy (1996) World Health Organization[28]
  • Pediatric Condition Falsification (PCF) (proposed) (U.S., 2002) American Professional Society on the Abuse of Children proposed this term to diagnose the victim (child); the perpetrator (caregiver) would be diagnosed "factitious disorder by proxy"; MSbP would be retained as the name applied to the 'disorder' that contains these two elements, a diagnosis in the child and a diagnosis in the caretaker.[29]
  • Induced Illness (Munchausen Syndrome by Proxy) (Ireland, 1999–2002) Department of Health and Children[25]
  • Munchausen Syndrome by Proxy (2002) Professor Roy Meadow.[25][4]
  • Meadow's Syndrome (1984–1987) named after Roy Meadow.[30] This label, however, had already been in use since 1957 to describe a completely unrelated and rare form of cardiomyopathy.[31]
  • Polle Syndrome (1977–1984) coined by Burman and Stevens, from the then-common belief that Baron Münchhausen's second wife gave birth to a daughter named Polle during their marriage.[32][33] The baron declared that the baby was not his, and the child died from "seizures" at the age of 10 months. The name fell out of favor after 1984, when it was discovered that Polle was not the baby's name, but rather was the name of her mother's hometown.[34][35]

While it initially included only the infliction of harmful medical care, the term has subsequently been extended to include cases in which the only harm arose from medical neglect, noncompliance, or even educational interference.[1] The term is derived from Munchausen syndrome, a psychiatric factitious disorder wherein those affected feign disease, illness, or psychological trauma to draw attention, sympathy, or reassurance to themselves.[36] Munchausen syndrome by proxy perpetrators, by contrast, are willing to fulfill their need for positive attention by hurting their own child, thereby assuming the sick role onto their child, by proxy. These proxies then gain personal attention and support by taking on this fictitious "hero role" and receive positive attention from others, by appearing to care for and save their so-called sick child.[6] They are named after Baron Munchausen, a literary character based on Hieronymus Karl Friedrich, Freiherr von Münchhausen (1720–1797), a German nobleman and well-known storyteller. In 1785, writer and con artist Rudolf Erich Raspe anonymously published a book in which a fictional version of "Baron Munchausen" tells fantastic and impossible stories about himself, establishing a popular literary archetype of a bombastic exaggerator.[37][38]

Initial description

"Munchausen syndrome" was first described by British endocrinologist and haematologist Richard Asher in 1951[39] as when someone invents or exaggerates medical symptoms, sometimes engaging in self-harm, to gain attention or sympathy.

The term "Munchausen syndrome by proxy" was first coined by John Money and June Faith Werlwas in a 1976 paper titled "Folie à deux in the parents of psychosocial dwarfs: Two cases"[40][41] to describe the abuse-induced and neglect-induced symptoms of the syndrome of abuse dwarfism. That same year, Sneed and Bell wrote an article titled "The Dauphin of Munchausen: factitious passage of renal stones in a child".[42]

According to other sources, the term was created by the British pediatrician Roy Meadow in 1977.[34][43][44] In 1977, Meadow – then professor of pediatrics at the University of Leeds, England – described the extraordinary behavior of two mothers. According to Meadow, one had poisoned her toddler with excessive quantities of salt. The other had introduced her own blood into her baby's urine sample. This second case occurred during a series of Outpatient visits to the Paediatric Clinic of Dr. Bill Arrowsmith at Doncaster Royal Infirmary. He referred to this behavior as Munchausen syndrome by proxy (MSbP).[45]

The medical community was initially skeptical of FDIA's existence, but it gradually gained acceptance as a recognized condition.

Controversy

During the 1990s and early 2000s, Roy Meadow was an expert witness in several murder cases involving MSbP/FII. Meadow was knighted for his work for child protection, though later, his reputation, and consequently the credibility of MSbP, became damaged when several convictions of child killing, in which he acted as an expert witness, were overturned. The mothers in those cases were wrongly convicted of murdering two or more of their children, and had already been imprisoned for up to six years.[46][44]

One case was that of Sally Clark. Clark was a lawyer wrongly convicted in 1999 of the murder of her two baby sons, largely on the basis of Meadow's evidence. As an expert witness for the prosecution, Meadow asserted that the odds of there being two unexplained infant deaths in one family were one in 73 million. That figure was crucial in sending Clark to jail but was hotly disputed by the Royal Statistical Society, who wrote to the Lord Chancellor to complain.[47] It was subsequently shown that the true odds were much greater once other factors (e.g. genetic or environmental) were taken into consideration, meaning that there was a significantly higher likelihood of two deaths happening as a chance occurrence than Meadow had claimed during the trial. Those odds in fact range from a low of 1:8500 to as high as 1:200.[48] It emerged later that there was clear evidence of a Staphylococcus aureus infection that had spread as far as the child's cerebrospinal fluid.[49] Clark was released in January 2003 after three judges quashed her convictions in the Court of Appeal in London,[49][50] but suffering from catastrophic trauma of the experience, she later died from alcohol poisoning. Meadow was involved as a prosecution witness in three other high-profile cases resulting in mothers being imprisoned and subsequently cleared of wrongdoing: Trupti Patel,[51] Angela Cannings[52] and Donna Anthony.[53]

In 2003, Lord Howe, the Opposition spokesman on health, accused Meadow of inventing a "theory without science" and refusing to produce any real evidence to prove that Munchausen syndrome by proxy actually exists. It is important to distinguish between the act of harming a child, which can be easily verified, and motive, which is much harder to verify and which FDIA tries to explain. For example, a caregiver may wish to harm a child out of malice and then attempt to conceal it as illness to avoid detection of abuse, rather than to draw attention and sympathy.

The distinction is often crucial in criminal proceedings, in which the prosecutor must prove both the act and the mental element constituting a crime to establish guilt. In most legal jurisdictions, a doctor can give expert witness testimony as to whether a child was being harmed but cannot speculate regarding the motive of the caregiver. FII merely refers to the fact that illness is induced or fabricated and does not specifically limit the motives of such acts to a caregiver's need for attention and/or sympathy.

In all, around 250 cases resulting in conviction in which Meadow was an expert witness were reviewed, with few[citation needed] changes, but all where the only evidence was Meadow's expert testimony were overturned. Meadow was investigated by the British General Medical Council (GMC) over evidence he gave in the Sally Clark trial. In July 2005, the GMC declared Meadow guilty of "serious professional misconduct", and he was struck off the medical register for giving "erroneous" and "misleading" evidence.[54] At appeal, High Court judge Mr. Justice Collins said that the severity of his punishment "approaches the irrational" and set it aside.[55][56]

Collins's judgment raises important points concerning the liability of expert witnesses – his view is that referral to the GMC by the losing side is an unacceptable threat and that only the Court should decide whether its witnesses are seriously deficient and refer them to their professional bodies.[57]

In addition to the controversy surrounding expert witnesses, an article appeared in the forensic literature that detailed legal cases involving controversy surrounding the murder suspect.[58] The article provides a brief review of the research and criminal cases involving Munchausen syndrome by proxy in which psychopathic mothers and caregivers were the murderers. It also briefly describes the importance of gathering behavioral data, including observations of the parents who commit the criminal acts. The article references the 1997 work of Southall, Plunkett, Banks, Falkov, and Samuels, in which covert video recorders were used to monitor the hospital rooms of suspected FDIA victims. In 30 out of 39 cases, a parent was observed intentionally suffocating their child; in two they were seen attempting to poison a child; in another, the mother deliberately broke her three-month-old daughter's arm. Upon further investigation, those 39 patients, ages 1 month to 3 years old, had 41 siblings; 12 of those had died suddenly and unexpectedly.[59] The use of covert video, while apparently extremely effective, raises controversy in some jurisdictions over privacy rights.

Legal status

In most legal jurisdictions, doctors are allowed to give evidence only in regard to whether the child is being harmed. They are not allowed to give evidence in regard to the motive. Australia and the UK have established the legal precedent that FDIA does not exist as a medico-legal entity.

In a June 2004 appeal hearing, the Supreme Court of Queensland, Australia, stated:

As the term factitious disorder (Munchausen's Syndrome) by proxy is merely descriptive of a behavior, not a psychiatrically identifiable illness or condition, it does not relate to an organized or recognized reliable body of knowledge or experience. Dr. Reddan's evidence was inadmissible.[60]

The Queensland Supreme Court further ruled that the determination of whether or not a defendant had caused intentional harm to a child was a matter for the jury to decide and not for the determination by expert witnesses:

The diagnosis of Doctors Pincus, Withers, and O'Loughlin that the appellant intentionally caused her children to receive unnecessary treatment through her own acts and the false reporting of symptoms of the factitious disorder (Munchausen Syndrome) by proxy is not a diagnosis of a recognized medical condition, disorder, or syndrome. It is simply placing her within the medical term used in the category of people exhibiting such behavior. In that sense, their opinions were not expert evidence because they related to matters that could be decided on the evidence by ordinary jurors. The essential issue as to whether the appellant reported or fabricated false symptoms or did acts to intentionally cause unnecessary medical procedures to injure her children was a matter for the jury's determination. The evidence of Doctors Pincus, Withers, and O'Loughlin that the appellant was exhibiting the behavior of factitious disorder (Munchausen syndrome by proxy) should have been excluded.[61]

Principles of law and implications for legal processes that may be deduced from these findings are that:

  • Any matters brought before a Court of Law should be determined by the facts, not by suppositions attached to a label describing a behavior, i.e., MSBP/FII/FDBP;
  • MSBP/FII/FDBP is not a mental disorder (i.e., not defined as such in DSM IV), and the evidence of a psychiatrist should not therefore be admissible;
  • MSBP/FII/FDBP has been stated to be a behavior describing a form of child abuse and not a medical diagnosis of either a parent or a child. A medical practitioner cannot therefore state that a person "suffers" from MSBP/FII/FDBP, and such evidence should also therefore be inadmissible. The evidence of a medical practitioner should be confined to what they observed and heard and what forensic information was found by recognized medical investigative procedures;
  • A label used to describe a behavior is not helpful in determining guilt and is prejudicial. By applying an ambiguous label of MSBP/FII to a woman is implying guilt without factual supportive and corroborative evidence;
  • The assertion that other people may behave in this way, i.e., fabricate and/or induce illness in children to gain attention for themselves (FII/MSBP/FDBY), contained within the label is not factual evidence that this individual has behaved in this way. Again therefore, the application of the label is prejudicial to fairness and a finding based on fact.

The Queensland Judgment was adopted into English law in the High Court of Justice by Mr. Justice Ryder. In his final conclusions regarding Factitious Disorder, Ryder states that:

I have considered and respectfully adopt the dicta of the Supreme Court of Queensland in R v. LM [2004] QCA 192 at paragraph 62 and 66. I take full account of the criminal law and foreign jurisdictional contexts of that decision but I am persuaded by the following argument upon its face that it is valid to the English law of evidence as applied to children proceedings.

The terms "Munchausen syndrome by proxy" and "factitious (and induced) illness (by proxy)" are child protection labels that are merely descriptions of a range of behaviors, not a pediatric, psychiatric or psychological disease that is identifiable. The terms do not relate to an organized or universally recognized body of knowledge or experience that has identified a medical disease (i.e. an illness or condition) and there are no internationally accepted medical criteria for the use of either label.

In reality, the use of the label is intended to connote that in the individual case there are materials susceptible of analysis by pediatricians and of findings of fact by a court concerning fabrication, exaggeration, minimization or omission in the reporting of symptoms and evidence of harm by act, omission or suggestion (induction). Where such facts exist the context and assessments can provide an insight into the degree of risk that a child may face and the court is likely to be assisted as to that aspect by psychiatric and/or psychological expert evidence.

All of the above ought to be self evident and has in any event been the established teaching of leading pediatricians, psychiatrists and psychologists for some while. That is not to minimize the nature and extent of professional debate about this issue which remains significant, nor to minimize the extreme nature of the risk that is identified in a small number of cases.

In these circumstances, evidence as to the existence of MSBP or FII in any individual case is as likely to be evidence of mere propensity which would be inadmissible at the fact finding stage (see Re CB and JB supra). For my part, I would consign the label MSBP to the history books and however useful FII may apparently be to the child protection practitioner I would caution against its use other than as a factual description of a series of incidents or behaviors that should then be accurately set out (and even then only in the hands of the pediatrician or psychiatrist/psychologist). I cannot emphasis too strongly that my conclusion cannot be used as a reason to re-open the many cases where facts have been found against a carer and the label MSBP or FII has been attached to that carer's behavior. What I seek to caution against is the use of the label as a substitute for factual analysis and risk assessment.[62]

In his book Playing Sick (2004), Marc Feldman notes that such findings have been in the minority among U.S. and even Australian courts. Pediatricians and other physicians have banded together to oppose limitations on child-abuse professionals whose work includes FII detection.[63] The April 2007 issue of the journal Pediatrics specifically mentions Meadow as an individual who has been inappropriately maligned.

In the context of child protection (a child being removed from the custody of a parent), the Australian state of New South Wales uses a "on the balance of probabilities" test, rather than a "beyond reasonable doubt" test. Therefore, in the case "The Secretary, Department of Family and Community Services and the Harper Children [2016] NSWChC 3", the expert testimony of Professor David Isaacs that a certain blood test result was "highly unlikely" to occur naturally or accidentally (without any speculation about motive), was sufficient to refuse the return of the affected child and his younger siblings to the mother. The children had initially been removed from the mother's custody after the blood test results became known. The fact that the affected child quickly improved both medically and behaviourly after being removed was also a factor.[64]

Notable cases

Beverley Allitt, a British nurse who murdered four children and injured a further nine in 1991 at Grantham and Kesteven Hospital, Lincolnshire, was diagnosed with Munchausen syndrome by proxy.[65]

Wendi Michelle Scott is a Frederick, Maryland, mother who was charged with sickening her four-year-old daughter.[66]

The book Sickened, by Julie Gregory, details her life growing up with a mother who had Munchausen by proxy, who took her to various doctors, coached her to act sicker than she was and to exaggerate her symptoms, and who demanded increasingly invasive procedures to diagnose Gregory's enforced imaginary illnesses.[67]

Lisa Hayden-Johnson of Devon was jailed for three years and three months after subjecting her son to a total of 325 medical actions – including being forced to use a wheelchair and being fed through a tube in his stomach. She claimed her son had a long list of illnesses including diabetes, food allergies, cerebral palsy, and cystic fibrosis, describing him as "the most ill child in Britain" and receiving numerous cash donations and charity gifts, including two cruises.[68]

In the mid-1990s, Kathy Bush gained public sympathy for the plight of her daughter, Jennifer, who by the age of 8 had undergone 40 surgeries and spent over 640 days in hospitals[69] for gastrointestinal disorders. The acclaim led to a visit with first lady Hillary Clinton, who championed the Bushs' plight as evidence of need for medical reform. However, in 1996, Kathy Bush was arrested and charged with child abuse and Medicaid fraud, accused of sabotaging Jennifer's medical equipment and drugs to agitate and prolong her illness.[69] Jennifer was moved to foster care where she quickly regained her health. The prosecutors claimed Kathy was driven by Munchausen Syndrome by Proxy, and she was convicted to a five-year sentence in 1999.[70] Kathy was released after serving three years in 2005, always maintaining her innocence, and having gotten back in contact with Jennifer via correspondence.[71]

In 2014, 26-year-old Lacey Spears was charged in Westchester County, New York, with second-degree depraved murder and first-degree manslaughter. She fed her son dangerous amounts of salt after she conducted research on the Internet about its effects. Her actions were allegedly motivated by the social media attention she gained on Facebook, Twitter, and blogs. She was convicted of second-degree murder on March 2, 2015,[72] and sentenced to 20 years to life in prison.[73]

Dee Dee Blanchard was a Missouri mother who was murdered by her daughter and a boyfriend in 2015 after having claimed for years that her daughter, Gypsy Rose, was sick and disabled; to the point of shaving her head, making her use a wheelchair in public, and subjecting her to unnecessary medication and surgery. Gypsy possessed no outstanding illnesses. Feldman said it is the first case he is aware of in a quarter-century of research where the victim killed the abuser.[74] Their story was shown on HBO's documentary film Mommy Dead and Dearest[75] and is featured in the Hulu limited series The Act.[76] Gypsy Rose pleaded guilty to second-degree murder and is serving a ten-year sentence, her boyfriend was convicted of first-degree murder and is sentenced to life in prison without parole.

Rapper Eminem has spoken about how his mother would frequently take him to hospitals to receive treatment for illnesses that he did not have. His song "Cleanin' Out My Closet" includes a lyric regarding the illness, "...going through public housing systems victim of Münchausen syndrome. My whole life I was made to believe I was sick, when I wasn't 'til I grew up and blew up..." His mother's illness resulted in Eminem receiving custody of his younger brother, Nathan.[77]

In 2013, when Justina Pelletier was 14, her parents took her to the emergency room at Boston Children's Hospital where doctors diagnosed her problems as psychiatric, but when her parents rejected the diagnosis and attempted to have her released, the hospital filed a report with Massachusetts Department of Children and Families alleging medical child abuse.[78][79] This resulted in her being housed for 18 months in the psychiatric hospital, with her parents having limited access, until a judge ordered her returned to her parents.[78] In 2016 her parents sued Boston Children's for medical malpractice, alleging that their civil rights were violated.[79] At the trial, Pelletier's treating neurologist stated that several of her doctors suspected factitious disorder by proxy, and wanted her parents to stop encouraging her to be sick.[80] Her parents lost the lawsuit, with one juror stating that Pelletier's parents thought of psychiatry as "psychological baloney".[81]

Megan Bhari (1996/7-2018) and her mother had formed a charity, Believe in Magic, to help ill children based on the claim that Megan had a brain tumor. It is unclear to what extent FDIA, Factitious Disorder Imposed on Self, and malingering may have been present but an inquest after her death found no morphological abnormalities in her brain.[82]

Directed towards animals

Medical literature describes a subset of FDIA caregivers, where the proxy is a pet rather than another person.[83] These cases are labeled Munchausen syndrome by proxy: pet (MSbP:P). In these cases, pet owners correspond to caregivers in traditional FDIA presentations involving human proxies.[84][85] No extensive survey has yet been made of the extant literature, and there has been no speculation as to how closely FDIA:P tracks with human FDIA.[citation needed]

See also

References

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factitious, disorder, imposed, another, fdia, also, known, fabricated, induced, illness, carers, first, named, munchausen, syndrome, proxy, msbp, condition, which, caregiver, creates, appearance, health, problems, another, person, typically, their, child, this. Factitious disorder imposed on another FDIA also known as fabricated or induced illness by carers FII and first named as Munchausen syndrome by proxy MSbP is a condition in which a caregiver creates the appearance of health problems in another person typically their child 7 8 This may include injuring the child or altering test samples 7 The caregiver then presents the person as being sick or injured 5 Permanent injury or death of the victim may occur as a result of the disorder 7 The behaviour occurs without a specific benefit to the caregiver 5 Factitious disorder imposed on another FDIA Other namesMunchausen syndrome by proxy MSbP Munchausen by proxy MbP Factitious disorder imposed by anotherFactitious disorder by proxyFabricated or induced illness by caregivers FII Medical child abuseSpecialtyPsychiatrySymptomsVariable 1 CausesUnknown 2 Risk factorsComplications of pregnancy caregiver who was abused as a child or has factitious disorder imposed on self 3 Diagnostic methodRemoving the child from the caregiver results in improvement video surveillance without the knowledge of the caregiver 4 Differential diagnosisMedical disorder other forms of child abuse delusional disorder 5 TreatmentRemoval of the child therapy 2 4 FrequencyEstimated 1 to 30 occurrences per 1 000 000 children 6 The cause of FDIA is unknown 2 The primary motive may be to gain attention and manipulate physicians 4 Risk factors for FDIA include pregnancy related complications and a mother who was abused as a child or has factitious disorder imposed on self 3 Diagnosis is supported when removing the child from the caregiver results in improvement of symptoms or video surveillance without the knowledge of the caregiver finds concerns 4 Those affected by the disorder have been subjected to a form of physical abuse and medical neglect 1 Management of FDIA may require putting the child in foster care 2 4 9 It is not known how effective therapy is for FDIA it is assumed it may work for those who admit they have a problem 4 The prevalence of FDIA is unknown 5 but it appears to be relatively rare 4 More than 95 of cases involve a person s mother 3 The prognosis for the caregiver is poor 4 However there is a burgeoning literature on possible courses of therapy 3 The condition was first named as Munchausen syndrome by proxy in 1977 by British pediatrician Roy Meadow 4 Some aspects of FDIA may represent criminal behavior 5 Contents 1 Signs and symptoms 2 Diagnosis 2 1 Warning signs 3 Epidemiology 4 Society and culture 4 1 Terminology 4 2 Initial description 4 3 Controversy 4 4 Legal status 4 5 Notable cases 5 Directed towards animals 6 See also 7 ReferencesSigns and symptoms EditIn factitious disorder imposed on another a caregiver makes a dependent person appear mentally or physically ill in order to gain attention To perpetuate the medical relationship the caregiver systematically misrepresents symptoms fabricates signs manipulates laboratory tests or even purposely harms the dependent e g by poisoning suffocation infection physical injury 6 It is important to note the caregiver is not performing this behavior for obvious external reward such as money 5 Studies have shown a mortality rate of between six and ten percent making it perhaps the most lethal form of abuse 10 11 In one study the average age of the affected individual at the time of diagnosis was four years old Slightly over 50 were aged 24 months or younger and 75 were under six years old The average duration from onset of symptoms to diagnosis was 22 months By the time of diagnosis six percent of the affected persons were dead mostly from apnea a common result of smothering or starvation and seven percent had long term or permanent injury About half of the affected had siblings 25 of the known siblings were dead and 61 of siblings had symptoms similar to the affected or that were otherwise suspicious The mother was the perpetrator in 76 5 of the cases the father in 6 7 11 Most present about three medical problems in some combination of the 103 different reported symptoms The most frequently reported problems are apnea 26 8 of cases anorexia or feeding problems 24 6 of cases diarrhea 20 seizures 17 5 cyanosis blue skin 11 7 behavior 10 4 asthma 9 5 allergy 9 3 and fevers 8 6 11 Other symptoms include failure to thrive vomiting bleeding rash and infections 10 12 Many of these symptoms are easy to fake because they are subjective A parent reporting that their child had a fever in the past 24 hours is making a claim that is impossible to prove or disprove The number and variety of presented symptoms contribute to the difficulty in reaching a proper diagnosis Aside from the motive most commonly attributed to be a gain in attention or sympathy another feature that differentiates FDIA from typical physical child abuse is the degree of premeditation involved Whereas most physical abuse entails lashing out at a child in response to some behavior e g crying bedwetting spilling food assaults on the FDIA victim tend to be unprovoked and planned 13 Also unique to this form of abuse is the role that health care providers play by actively albeit unintentionally enabling the abuse By reacting to the concerns and demands of perpetrators medical professionals are manipulated into a partnership of child maltreatment 6 Challenging cases that defy simple medical explanations may prompt health care providers to pursue unusual or rare diagnoses thus allocating even more time to the child and the abuser Even without prompting medical professionals may be easily seduced into prescribing diagnostic tests and therapies that may be painful costly or potentially injurious to the child 1 If the health practitioner resists ordering further tests drugs procedures surgeries or specialists the FDIA abuser makes the medical system appear negligent for refusing to help a sick child and their selfless parent 6 Like those with Munchausen syndrome FDIA perpetrators are known to switch medical providers frequently until they find one that is willing to meet their level of need this practice is known as doctor shopping or hospital hopping The perpetrator continues the abuse because maintaining the child in the role of patient satisfies the abuser s needs The cure for the victim is to separate the child completely from the abuser When parental visits are allowed sometimes there is a disastrous outcome for the child Even when the child is removed the perpetrator may then abuse another child a sibling or other child in the family 6 Factitious disorder imposed on another can have many long term emotional effects on a child Depending on their experience of medical interventions a percentage of children may learn that they are most likely to receive the positive parental attention they crave when they are playing the sick role in front of health care providers Several case reports describe Munchausen syndrome patients suspected of themselves having been FDIA victims 14 Seeking personal gratification through illness can thus become a lifelong and multi generational disorder in some cases 6 In stark contrast other reports suggest survivors of FDIA develop an avoidance of medical treatment with post traumatic responses to it 15 The adult caregiver who has abused the child often seems comfortable and not upset over the child s hospitalization While the child is hospitalized medical professionals must monitor the caregiver s visits to prevent an attempt to worsen the child s condition 16 In addition in many jurisdictions medical professionals have a duty to report such abuse to legal authorities 17 Diagnosis EditUse of the term Munchausen syndrome by proxy is controversial In the World Health Organization s International Statistical Classification of Diseases 10th Revision ICD 10 the official diagnosis is factitious disorder 301 51 in ICD 9 F68 12 in ICD 10 Within the United States factitious disorder imposed on another FDIA or FDIoA was officially recognized as a disorder in 2013 18 while in the United Kingdom it is known as fabricated or induced illness by carers FII 19 In DSM 5 the diagnostic manual published by the American Psychiatric Association in 2013 this disorder is listed under 300 19 Factitious disorder This in turn encompasses two types 18 Factitious Disorder Imposed on Self Factitious Disorder Imposed on Another Previously Factitious Disorder by Proxy the diagnosis is assigned to the perpetrator the person affected may be assigned an abuse diagnosis e g child abuse Both types include an optional specifier to identify if the observed behavior was a single episode or part of recurrent episodes 18 Warning signs Edit Warning signs of the disorder include 16 A child who has one or more medical problems that do not respond to treatment or that follow an unusual course that is persistent puzzling and unexplained Physical or laboratory findings that are highly unusual discrepant with patient s presentation or history or physically or clinically impossible A parent who appears medically knowledgeable fascinated with medical details and hospital gossip appears to enjoy the hospital environment and expresses interest in the details of other patients problems A highly attentive parent who is reluctant to leave their child s side and who themselves seem to require constant attention A parent who appears unusually calm in the face of serious difficulties in their child s medical course while being highly supportive and encouraging of the physician or one who is angry devalues staff and demands further intervention more procedures second opinions and transfers to more sophisticated facilities The suspected parent may work in the health care field themselves or profess an interest in a health related job The signs and symptoms of a child s illness may lessen or simply vanish in the parent s absence hospitalization and careful monitoring may be necessary to establish this causal relationship A family history of similar or unexplained illness or death in a sibling A parent with symptoms similar to their child s own medical problems or an illness history that itself is puzzling and unusual A suspected emotionally distant relationship between parents the spouse often fails to visit the patient and has little contact with physicians even when the child is hospitalized with a serious illness A parent who reports dramatic negative events such as house fires burglaries or car accidents that affect them and their family while their child is undergoing treatment A parent who seems to have an insatiable need for adulation or who makes self serving efforts for public acknowledgment of their abilities A child who inexplicably deteriorates whenever discharge is planned A child that looks for cueing from a parent in order to feign illness when medical personnel are present A child that is overly articulate regarding medical terminology and their own disease process for their age A child that presents to the Emergency Department with a history of repeat illness injury or hospitalization Epidemiology EditFDIA is rare Incidence rate estimates range from 1 to 28 per million children 6 although some assume that it may be much more common 6 One study in Italy found that 4 out of more than 700 children admitted to the hospital met the criteria 0 53 In this study stringent diagnostic criteria were used which required at least one test outcome or event that could not possibly have occurred without deliberate intervention by the FDIA person 20 Studies have showed that over 90 percent of FDIA cases the abuser is the mother or another female guardian or caregiver 13 21 22 A psychodynamic model of this kind of maternal abuse exists 23 Fathers and other male caregivers have been the perpetrators in only seven percent of the cases studied 11 When they are not actively involved in the abuse the fathers or male guardians of FDIA victims are often described as being distant emotionally disengaged and powerless These men play a passive role in FDIA by being frequently absent from the home and rarely visiting the hospitalized child Usually they vehemently deny the possibility of abuse even in the face of overwhelming evidence or their child s pleas for help 6 13 Overall male and female children are equally likely to be the victim of FDIA In the few cases where the father is the perpetrator however the victim is three times more likely to be male 11 Society and culture EditTerminology Edit The term Munchausen syndrome by proxy in the United States has never officially been included as a discrete mental disorder by the American Psychiatric Association 24 which publishes the Diagnostic and Statistical Manual of Mental Disorders DSM now in its fifth edition 5 Although the DSM III 1980 and DSM III R 1987 included Munchausen syndrome they did not include MSbP DSM IV 1994 and DSM IV TR 2000 added MSbP as a proposal only and although it was finally recognized as a disorder in DSM 5 2013 each of the last three editions of the DSM designated the disorder by a different name FDIA has been given different names in different places and at different times What follows is a partial list of alternative names that have been either used or proposed with approximate dates 25 Factitious Disorder Imposed on Another current U S 2013 American Psychiatric Association DSM 5 Factitious Disorder by Proxy FDP FDbP proposed U S 2000 American Psychiatric Association DSM IV TR 26 Fictitious Disorder by Proxy FDP FDbP proposed U S 1994 American Psychiatric Association DSM IV Fabricated or Induced Illness by Carers FII U K 2002 The Royal College of Pediatrics and Child Health 27 Factitious Illness by Proxy 1996 World Health Organization 28 Pediatric Condition Falsification PCF proposed U S 2002 American Professional Society on the Abuse of Children proposed this term to diagnose the victim child the perpetrator caregiver would be diagnosed factitious disorder by proxy MSbP would be retained as the name applied to the disorder that contains these two elements a diagnosis in the child and a diagnosis in the caretaker 29 Induced Illness Munchausen Syndrome by Proxy Ireland 1999 2002 Department of Health and Children 25 Munchausen Syndrome by Proxy 2002 Professor Roy Meadow 25 4 Meadow s Syndrome 1984 1987 named after Roy Meadow 30 This label however had already been in use since 1957 to describe a completely unrelated and rare form of cardiomyopathy 31 Polle Syndrome 1977 1984 coined by Burman and Stevens from the then common belief that Baron Munchhausen s second wife gave birth to a daughter named Polle during their marriage 32 33 The baron declared that the baby was not his and the child died from seizures at the age of 10 months The name fell out of favor after 1984 when it was discovered that Polle was not the baby s name but rather was the name of her mother s hometown 34 35 While it initially included only the infliction of harmful medical care the term has subsequently been extended to include cases in which the only harm arose from medical neglect noncompliance or even educational interference 1 The term is derived from Munchausen syndrome a psychiatric factitious disorder wherein those affected feign disease illness or psychological trauma to draw attention sympathy or reassurance to themselves 36 Munchausen syndrome by proxy perpetrators by contrast are willing to fulfill their need for positive attention by hurting their own child thereby assuming the sick role onto their child by proxy These proxies then gain personal attention and support by taking on this fictitious hero role and receive positive attention from others by appearing to care for and save their so called sick child 6 They are named after Baron Munchausen a literary character based on Hieronymus Karl Friedrich Freiherr von Munchhausen 1720 1797 a German nobleman and well known storyteller In 1785 writer and con artist Rudolf Erich Raspe anonymously published a book in which a fictional version of Baron Munchausen tells fantastic and impossible stories about himself establishing a popular literary archetype of a bombastic exaggerator 37 38 Initial description Edit Munchausen syndrome was first described by British endocrinologist and haematologist Richard Asher in 1951 39 as when someone invents or exaggerates medical symptoms sometimes engaging in self harm to gain attention or sympathy The term Munchausen syndrome by proxy was first coined by John Money and June Faith Werlwas in a 1976 paper titled Folie a deux in the parents of psychosocial dwarfs Two cases 40 41 to describe the abuse induced and neglect induced symptoms of the syndrome of abuse dwarfism That same year Sneed and Bell wrote an article titled The Dauphin of Munchausen factitious passage of renal stones in a child 42 According to other sources the term was created by the British pediatrician Roy Meadow in 1977 34 43 44 In 1977 Meadow then professor of pediatrics at the University of Leeds England described the extraordinary behavior of two mothers According to Meadow one had poisoned her toddler with excessive quantities of salt The other had introduced her own blood into her baby s urine sample This second case occurred during a series of Outpatient visits to the Paediatric Clinic of Dr Bill Arrowsmith at Doncaster Royal Infirmary He referred to this behavior as Munchausen syndrome by proxy MSbP 45 The medical community was initially skeptical of FDIA s existence but it gradually gained acceptance as a recognized condition Controversy Edit See also List of wrongful convictions in the United States During the 1990s and early 2000s Roy Meadow was an expert witness in several murder cases involving MSbP FII Meadow was knighted for his work for child protection though later his reputation and consequently the credibility of MSbP became damaged when several convictions of child killing in which he acted as an expert witness were overturned The mothers in those cases were wrongly convicted of murdering two or more of their children and had already been imprisoned for up to six years 46 44 One case was that of Sally Clark Clark was a lawyer wrongly convicted in 1999 of the murder of her two baby sons largely on the basis of Meadow s evidence As an expert witness for the prosecution Meadow asserted that the odds of there being two unexplained infant deaths in one family were one in 73 million That figure was crucial in sending Clark to jail but was hotly disputed by the Royal Statistical Society who wrote to the Lord Chancellor to complain 47 It was subsequently shown that the true odds were much greater once other factors e g genetic or environmental were taken into consideration meaning that there was a significantly higher likelihood of two deaths happening as a chance occurrence than Meadow had claimed during the trial Those odds in fact range from a low of 1 8500 to as high as 1 200 48 It emerged later that there was clear evidence of a Staphylococcus aureus infection that had spread as far as the child s cerebrospinal fluid 49 Clark was released in January 2003 after three judges quashed her convictions in the Court of Appeal in London 49 50 but suffering from catastrophic trauma of the experience she later died from alcohol poisoning Meadow was involved as a prosecution witness in three other high profile cases resulting in mothers being imprisoned and subsequently cleared of wrongdoing Trupti Patel 51 Angela Cannings 52 and Donna Anthony 53 In 2003 Lord Howe the Opposition spokesman on health accused Meadow of inventing a theory without science and refusing to produce any real evidence to prove that Munchausen syndrome by proxy actually exists It is important to distinguish between the act of harming a child which can be easily verified and motive which is much harder to verify and which FDIA tries to explain For example a caregiver may wish to harm a child out of malice and then attempt to conceal it as illness to avoid detection of abuse rather than to draw attention and sympathy The distinction is often crucial in criminal proceedings in which the prosecutor must prove both the act and the mental element constituting a crime to establish guilt In most legal jurisdictions a doctor can give expert witness testimony as to whether a child was being harmed but cannot speculate regarding the motive of the caregiver FII merely refers to the fact that illness is induced or fabricated and does not specifically limit the motives of such acts to a caregiver s need for attention and or sympathy In all around 250 cases resulting in conviction in which Meadow was an expert witness were reviewed with few citation needed changes but all where the only evidence was Meadow s expert testimony were overturned Meadow was investigated by the British General Medical Council GMC over evidence he gave in the Sally Clark trial In July 2005 the GMC declared Meadow guilty of serious professional misconduct and he was struck off the medical register for giving erroneous and misleading evidence 54 At appeal High Court judge Mr Justice Collins said that the severity of his punishment approaches the irrational and set it aside 55 56 Collins s judgment raises important points concerning the liability of expert witnesses his view is that referral to the GMC by the losing side is an unacceptable threat and that only the Court should decide whether its witnesses are seriously deficient and refer them to their professional bodies 57 In addition to the controversy surrounding expert witnesses an article appeared in the forensic literature that detailed legal cases involving controversy surrounding the murder suspect 58 The article provides a brief review of the research and criminal cases involving Munchausen syndrome by proxy in which psychopathic mothers and caregivers were the murderers It also briefly describes the importance of gathering behavioral data including observations of the parents who commit the criminal acts The article references the 1997 work of Southall Plunkett Banks Falkov and Samuels in which covert video recorders were used to monitor the hospital rooms of suspected FDIA victims In 30 out of 39 cases a parent was observed intentionally suffocating their child in two they were seen attempting to poison a child in another the mother deliberately broke her three month old daughter s arm Upon further investigation those 39 patients ages 1 month to 3 years old had 41 siblings 12 of those had died suddenly and unexpectedly 59 The use of covert video while apparently extremely effective raises controversy in some jurisdictions over privacy rights Legal status Edit In most legal jurisdictions doctors are allowed to give evidence only in regard to whether the child is being harmed They are not allowed to give evidence in regard to the motive Australia and the UK have established the legal precedent that FDIA does not exist as a medico legal entity In a June 2004 appeal hearing the Supreme Court of Queensland Australia stated As the term factitious disorder Munchausen s Syndrome by proxy is merely descriptive of a behavior not a psychiatrically identifiable illness or condition it does not relate to an organized or recognized reliable body of knowledge or experience Dr Reddan s evidence was inadmissible 60 The Queensland Supreme Court further ruled that the determination of whether or not a defendant had caused intentional harm to a child was a matter for the jury to decide and not for the determination by expert witnesses The diagnosis of Doctors Pincus Withers and O Loughlin that the appellant intentionally caused her children to receive unnecessary treatment through her own acts and the false reporting of symptoms of the factitious disorder Munchausen Syndrome by proxy is not a diagnosis of a recognized medical condition disorder or syndrome It is simply placing her within the medical term used in the category of people exhibiting such behavior In that sense their opinions were not expert evidence because they related to matters that could be decided on the evidence by ordinary jurors The essential issue as to whether the appellant reported or fabricated false symptoms or did acts to intentionally cause unnecessary medical procedures to injure her children was a matter for the jury s determination The evidence of Doctors Pincus Withers and O Loughlin that the appellant was exhibiting the behavior of factitious disorder Munchausen syndrome by proxy should have been excluded 61 Principles of law and implications for legal processes that may be deduced from these findings are that Any matters brought before a Court of Law should be determined by the facts not by suppositions attached to a label describing a behavior i e MSBP FII FDBP MSBP FII FDBP is not a mental disorder i e not defined as such in DSM IV and the evidence of a psychiatrist should not therefore be admissible MSBP FII FDBP has been stated to be a behavior describing a form of child abuse and not a medical diagnosis of either a parent or a child A medical practitioner cannot therefore state that a person suffers from MSBP FII FDBP and such evidence should also therefore be inadmissible The evidence of a medical practitioner should be confined to what they observed and heard and what forensic information was found by recognized medical investigative procedures A label used to describe a behavior is not helpful in determining guilt and is prejudicial By applying an ambiguous label of MSBP FII to a woman is implying guilt without factual supportive and corroborative evidence The assertion that other people may behave in this way i e fabricate and or induce illness in children to gain attention for themselves FII MSBP FDBY contained within the label is not factual evidence that this individual has behaved in this way Again therefore the application of the label is prejudicial to fairness and a finding based on fact The Queensland Judgment was adopted into English law in the High Court of Justice by Mr Justice Ryder In his final conclusions regarding Factitious Disorder Ryder states that I have considered and respectfully adopt the dicta of the Supreme Court of Queensland in R v LM 2004 QCA 192 at paragraph 62 and 66 I take full account of the criminal law and foreign jurisdictional contexts of that decision but I am persuaded by the following argument upon its face that it is valid to the English law of evidence as applied to children proceedings The terms Munchausen syndrome by proxy and factitious and induced illness by proxy are child protection labels that are merely descriptions of a range of behaviors not a pediatric psychiatric or psychological disease that is identifiable The terms do not relate to an organized or universally recognized body of knowledge or experience that has identified a medical disease i e an illness or condition and there are no internationally accepted medical criteria for the use of either label In reality the use of the label is intended to connote that in the individual case there are materials susceptible of analysis by pediatricians and of findings of fact by a court concerning fabrication exaggeration minimization or omission in the reporting of symptoms and evidence of harm by act omission or suggestion induction Where such facts exist the context and assessments can provide an insight into the degree of risk that a child may face and the court is likely to be assisted as to that aspect by psychiatric and or psychological expert evidence All of the above ought to be self evident and has in any event been the established teaching of leading pediatricians psychiatrists and psychologists for some while That is not to minimize the nature and extent of professional debate about this issue which remains significant nor to minimize the extreme nature of the risk that is identified in a small number of cases In these circumstances evidence as to the existence of MSBP or FII in any individual case is as likely to be evidence of mere propensity which would be inadmissible at the fact finding stage see Re CB and JB supra For my part I would consign the label MSBP to the history books and however useful FII may apparently be to the child protection practitioner I would caution against its use other than as a factual description of a series of incidents or behaviors that should then be accurately set out and even then only in the hands of the pediatrician or psychiatrist psychologist I cannot emphasis too strongly that my conclusion cannot be used as a reason to re open the many cases where facts have been found against a carer and the label MSBP or FII has been attached to that carer s behavior What I seek to caution against is the use of the label as a substitute for factual analysis and risk assessment 62 In his book Playing Sick 2004 Marc Feldman notes that such findings have been in the minority among U S and even Australian courts Pediatricians and other physicians have banded together to oppose limitations on child abuse professionals whose work includes FII detection 63 The April 2007 issue of the journal Pediatrics specifically mentions Meadow as an individual who has been inappropriately maligned In the context of child protection a child being removed from the custody of a parent the Australian state of New South Wales uses a on the balance of probabilities test rather than a beyond reasonable doubt test Therefore in the case The Secretary Department of Family and Community Services and the Harper Children 2016 NSWChC 3 the expert testimony of Professor David Isaacs that a certain blood test result was highly unlikely to occur naturally or accidentally without any speculation about motive was sufficient to refuse the return of the affected child and his younger siblings to the mother The children had initially been removed from the mother s custody after the blood test results became known The fact that the affected child quickly improved both medically and behaviourly after being removed was also a factor 64 Notable cases Edit Beverley Allitt a British nurse who murdered four children and injured a further nine in 1991 at Grantham and Kesteven Hospital Lincolnshire was diagnosed with Munchausen syndrome by proxy 65 Wendi Michelle Scott is a Frederick Maryland mother who was charged with sickening her four year old daughter 66 The book Sickened by Julie Gregory details her life growing up with a mother who had Munchausen by proxy who took her to various doctors coached her to act sicker than she was and to exaggerate her symptoms and who demanded increasingly invasive procedures to diagnose Gregory s enforced imaginary illnesses 67 Lisa Hayden Johnson of Devon was jailed for three years and three months after subjecting her son to a total of 325 medical actions including being forced to use a wheelchair and being fed through a tube in his stomach She claimed her son had a long list of illnesses including diabetes food allergies cerebral palsy and cystic fibrosis describing him as the most ill child in Britain and receiving numerous cash donations and charity gifts including two cruises 68 In the mid 1990s Kathy Bush gained public sympathy for the plight of her daughter Jennifer who by the age of 8 had undergone 40 surgeries and spent over 640 days in hospitals 69 for gastrointestinal disorders The acclaim led to a visit with first lady Hillary Clinton who championed the Bushs plight as evidence of need for medical reform However in 1996 Kathy Bush was arrested and charged with child abuse and Medicaid fraud accused of sabotaging Jennifer s medical equipment and drugs to agitate and prolong her illness 69 Jennifer was moved to foster care where she quickly regained her health The prosecutors claimed Kathy was driven by Munchausen Syndrome by Proxy and she was convicted to a five year sentence in 1999 70 Kathy was released after serving three years in 2005 always maintaining her innocence and having gotten back in contact with Jennifer via correspondence 71 In 2014 26 year old Lacey Spears was charged in Westchester County New York with second degree depraved murder and first degree manslaughter She fed her son dangerous amounts of salt after she conducted research on the Internet about its effects Her actions were allegedly motivated by the social media attention she gained on Facebook Twitter and blogs She was convicted of second degree murder on March 2 2015 72 and sentenced to 20 years to life in prison 73 Dee Dee Blanchard was a Missouri mother who was murdered by her daughter and a boyfriend in 2015 after having claimed for years that her daughter Gypsy Rose was sick and disabled to the point of shaving her head making her use a wheelchair in public and subjecting her to unnecessary medication and surgery Gypsy possessed no outstanding illnesses Feldman said it is the first case he is aware of in a quarter century of research where the victim killed the abuser 74 Their story was shown on HBO s documentary film Mommy Dead and Dearest 75 and is featured in the Hulu limited series The Act 76 Gypsy Rose pleaded guilty to second degree murder and is serving a ten year sentence her boyfriend was convicted of first degree murder and is sentenced to life in prison without parole Rapper Eminem has spoken about how his mother would frequently take him to hospitals to receive treatment for illnesses that he did not have His song Cleanin Out My Closet includes a lyric regarding the illness going through public housing systems victim of Munchausen syndrome My whole life I was made to believe I was sick when I wasn t til I grew up and blew up His mother s illness resulted in Eminem receiving custody of his younger brother Nathan 77 In 2013 when Justina Pelletier was 14 her parents took her to the emergency room at Boston Children s Hospital where doctors diagnosed her problems as psychiatric but when her parents rejected the diagnosis and attempted to have her released the hospital filed a report with Massachusetts Department of Children and Families alleging medical child abuse 78 79 This resulted in her being housed for 18 months in the psychiatric hospital with her parents having limited access until a judge ordered her returned to her parents 78 In 2016 her parents sued Boston Children s for medical malpractice alleging that their civil rights were violated 79 At the trial Pelletier s treating neurologist stated that several of her doctors suspected factitious disorder by proxy and wanted her parents to stop encouraging her to be sick 80 Her parents lost the lawsuit with one juror stating that Pelletier s parents thought of psychiatry as psychological baloney 81 Megan Bhari 1996 7 2018 and her mother had formed a charity Believe in Magic to help ill children based on the claim that Megan had a brain tumor It is unclear to what extent FDIA Factitious Disorder Imposed on Self and malingering may have been present but an inquest after her death found no morphological abnormalities in her brain 82 Directed towards animals EditMedical literature describes a subset of FDIA caregivers where the proxy is a pet rather than another person 83 These cases are labeled Munchausen syndrome by proxy pet MSbP P In these cases pet owners correspond to caregivers in traditional FDIA presentations involving human proxies 84 85 No extensive survey has yet been made of the extant literature and there has been no speculation as to how closely FDIA P tracks with human FDIA citation needed See also EditList of Munchausen by proxy cases Folie a deux Hypochondria Munchausen by Internet Psychosomatic illness Run 2020 American film Everything Everything novel References Edit a b c d Stirling J American Academy of Pediatrics Committee on Child Abuse Neglect May 2007 Beyond Munchausen syndrome by proxy identification and treatment of child abuse in a medical setting Pediatrics Berlin Germany Karger Publishers 119 5 1026 1030 doi 10 1542 peds 2007 0563 PMID 17473106 a b c d Jacoby David B Youngson R M 2004 Encyclopedia of Family Health Marshall Cavendish p 1286 ISBN 978 0761474869 a b c d Yates G Bass C October 2017 The perpetrators of medical child abuse Munchausen Syndrome by Proxy A systematic review of 796 cases Child Abuse amp Neglect 72 45 53 doi 10 1016 j chiabu 2017 07 008 PMID 28750264 a b c d e f g h i j Myers John E B 2005 Myers on Evidence in Child Domestic and Elder Abuse Cases Aspen Publishers Online pp 280 282 ISBN 978 0735556683 a b c d e f g American Psychiatric Association 2013 Diagnostic and Statistical Manual of Mental Disorders 5th ed Arlington American Psychiatric Publishing pp 324 326 ISBN 978 0890425558 a b c d e f g h i j Criddle L 2010 Monsters in the Closet Munchausen Syndrome by Proxy PDF Critical Care Nurse American Association of Critical Care Nurses 30 6 46 55 doi 10 4037 ccn2010737 PMID 21123232 Archived from the original PDF on 2014 02 01 Retrieved 2 February 2012 a b c Factitious Disorder Imposed on Self Psychiatric Disorders Merck Manuals Professional Edition Retrieved 28 April 2019 Overview Fabricated or induced illness nhs uk 2021 02 16 Retrieved 2022 11 09 Kelley David M Curran Kelly A 2019 Medical Child Abuse An Unusual Source of Vaginal Bleeding Journal of Pediatric and Adolescent Gynecology 32 3 334 336 doi 10 1016 j jpag 2019 03 003 PMID 30923026 S2CID 85564487 a b Christie Smith D Gartner C 1 January 2005 Understanding Munchausen syndrome by proxy Special Report Highlights of the 2004 Institute on Psychiatric Services PsychiatryOnline org 56 1 16 21 doi 10 1176 appi ps 56 1 16 PMID 15637185 Retrieved 30 January 2012 a b c d e Sheridan Mary S April 2003 The deceit continues an updated literature review of Munchausen Syndrome by proxy Child Abuse Negl 27 4 431 451 doi 10 1016 S0145 2134 03 00030 9 ISSN 0145 2134 PMID 12686328 Unknown ID 668TR Sheslow D V Gavin Devitt L A 2008 Munchausen by proxy syndrome KidsHealth from Nemours Archived from the original on 15 January 2016 Retrieved 27 August 2010 a b c Schreier HA 2004 Munchausen by Proxy Curr Probl Pediatr Adolesc Health Care 34 3 126 143 doi 10 1016 j cppeds 2003 09 003 PMID 15039661 Libow JA 2002 Beyond collusion active illness falsification Child Abuse Negl 26 5 525 536 doi 10 1016 S0145 2134 02 00328 9 PMID 12079088 Libow JA 1995 Munchausen by proxy victims in adulthood a first look Child Abuse Negl 19 9 1131 1142 doi 10 1016 0145 2134 95 00073 H PMID 8528818 a b Schreier Herbert A Judith A Libow 1993 Hurting for Love Munchausen by Proxy Syndrome The Guilford Press ISBN 0898621216 Elder W Coletsos IC Bursztajn HJ Factitious Disorder Munchhausen Syndrome The 5 Minute Clinical Consult 18th Edition 2010 Editor Domino F J Wolters Kluwer Lippincott Philadelphia page needed ISBN missing a b c American Psychiatric Association 2013 Diagnostic and Statistical Manual of Mental Disorders 5th ed Arlington American Psychiatric Publishing pp 324 326 ISBN 978 0890425558 Burns Kenneth January 2004 Fabrication or Induction of Illness in a Child a Critical Review of Labels and Literature Using Electronic Libraries PDF Irish Journal of Applied Social Studies 5 1 74 92 Retrieved 3 February 2012 Ferrara P Vitelli O Bottaro G Gatto A Liberatore P Binetti P Stabile A December 2013 Factitious disorders and Munchausen syndrome the tip of the iceberg Journal of Child Health Care 17 4 366 374 doi 10 1177 1367493512462262 PMID 23411659 S2CID 21162745 Abdurrachid Nuzhat Gama Marques Joao 2022 Munchausen syndrome by proxy MSBP a review regarding perpetrators of factitious disorder imposed on another FDIA CNS Spectrums 27 1 16 26 doi 10 1017 S1092852920001741 ISSN 1092 8529 PMID 32772954 S2CID 221098460 Berar Antoine Bouzille Guillaume Jego Patrick Allain Jean Sebastien 2021 A descriptive retrospective case series of patients with factitious disorder imposed on self BMC Psychiatry 21 1 588 doi 10 1186 s12888 021 03582 8 ISSN 1471 244X PMC 8609835 PMID 34814866 See Anna Motz s The Psychology of Female Violence Crimes Against the Body Routledge 2001 ISBN 978 0415126755 2nd ed 2008 ISBN 978 0415403870 Lasher Louisa 2011 MBP Definitions Maltreatment Behaviors and Comments Archived from the original on 2011 08 12 Retrieved 30 January 2012 a b c Burns Kenneth January 2004 Fabrication or Induction of Illness in a Child a Critical Review of Labels and Literature Using Electronic Libraries PDF Irish Journal of Applied Social Studies 5 1 74 92 Retrieved 3 February 2012 Diagnostic and statistical manual of mental disorders DSM IV TR American Psychiatric Association Task Force on DSM IV 2000 ISBN 978 0890420256 LCCN 00024852 Fabricated or Induced Illness by Carers FII Professional Reference patient info Retrieved 2 February 2012 de Silva Prof D G Harendra Hobbs Dr Christopher J 2004 Managing Child Abuse A Handbook for Medical Officers PDF World Health Organization pp 36 38 Archived from the original PDF on 2011 05 22 Retrieved 30 January 2012 Schreier H 2002 Munchausen by Proxy Defined Pediatrics 110 5 985 988 doi 10 1542 peds 110 5 985 PMID 12415040 Meadow and Munchausen The Lancet 321 8322 456 1983 doi 10 1016 S0140 6736 83 91450 2 S2CID 34872993 Lazoritz S September 1987 Munchausen by proxy or Meadow s syndrome The Lancet 330 8559 631 doi 10 1016 S0140 6736 87 93025 X PMID 2887921 S2CID 851898 Burman D Stevens D 27 August 1977 Munchausen family The Lancet London 310 8035 456 doi 10 1016 S0140 6736 77 90639 0 PMID 70666 S2CID 42872268 Verity CM Winckworth C Burman D Stevens D White RJ 18 August 1979 Polle syndrome children of Munchausen British Medical Journal 2 6187 422 423 doi 10 1136 bmj 2 6187 422 PMC 1595620 PMID 486971 a b Meadow R Lennert T October 1984 Munchausen syndrome by proxy or Polle syndrome which term is correct Pediatrics 74 4 554 555 doi 10 1542 peds 74 4 554 PMID 6384913 Haddy R 1993 The Munchhausen of Munchausen Syndrome A Historical Perspective PDF Archives of Family Medicine 2 2 141 142 doi 10 1001 archfami 2 2 141 PMID 8275182 permanent dead link Factitious Disorder Imposed on Self at eMedicine McCoy Monica L Keen Stefanie M 2013 Child Abuse and Neglect Second Edition Psychology Press p 210 ISBN 978 1136322877 Retrieved July 10 2015 Olry R June 2002 Baron Munchhausen and the Syndrome Which Bears His Name History of an Endearing Personage and of a Strange Mental Disorder PDF Vesalius VIII 1 53 57 retrieved July 10 2015 Asher R 10 February 1951 Munchausen s syndrome The Lancet 1 6650 339 341 doi 10 1016 S0140 6736 51 92313 6 PMID 14805062 Money John Werlwas June 1976 Folie a deux in the parents of psychosocial dwarfs Two cases Bulletin of the American Academy of Psychiatry and the Law 4 4 351 362 PMID 1028417 Money J 1986 Munchausen s Syndrome by Proxy Update Journal of Pediatric Psychology 11 4 583 584 doi 10 1093 jpepsy 11 4 583 PMID 3559846 Sneed R C Bell R F 1 July 1976 The Dauphin of Munchausen Factitious Passage of Renal Stones in a Child Pediatrics 58 1 127 130 doi 10 1542 peds 58 1 127 PMID 934770 S2CID 33672306 Retrieved 30 January 2012 a href Template Cite journal html title Template Cite journal cite journal a CS1 maint multiple names authors list link Definition of Munchausen syndrome by proxy MedicineNet com a b BBC 10 December 2003 Profile Sir Roy Meadow BBC News Retrieved 1 February 2007 Meadow Roy 1977 Munchausen Syndrome by Proxy the Hinterlands of Child Abuse The Lancet 310 8033 343 345 doi 10 1016 S0140 6736 77 91497 0 PMID 69945 S2CID 205993879 BBC 17 February 2006 Disappointed and disheartened BBC News Retrieved 2 February 2012 Green Peter 23 January 2002 Letter from the President to the Lord Chancellor regarding the use of statistical evidence in court cases PDF Royal Statistical Society Archived from the original PDF on 2012 01 05 Retrieved 3 February 2012 BBC 10 December 2003 The science behind cot deaths BBC News Retrieved 2 February 2012 a b Shaikh Thair 17 March 2007 Sally Clark mother wrongly convicted of killing her sons found dead at home The Guardian R v Clark 2003 EWCA Crim 1020 11 April 2003 Payne Stewart 12 June 2003 Joy for mother cleared of baby deaths The Telegraph London Archived from the original on 22 October 2007 Retrieved 1 February 2007 BBC 10 December 2003 Mother cleared of killing sons BBC News Retrieved 1 February 2007 BBC 11 April 2005 Anthony latest mother to be freed BBC News Retrieved 2 February 2012 BBC 15 July 2005 Sir Roy Meadow struck off by GMC BBC News Retrieved 2 February 2012 Meadow v General Medical Council 2006 EWHC 146 Admin at para 57 17 February 2006 BBC 17 February 2006 Sally Clark doctor wins GMC case BBC News Retrieved 2 February 2012 Meadow v General Medical Council 2006 EWHC 146 Admin at para 21 26 17 February 2006 Perri Frank Lichtenwald Terrance 2010 The Last Frontier Myths amp The Female Psychopathic Killer PDF Forensic Examiner 19 2 50 67 Southall D P Plunkett M C Blanks M W Falkov A F amp Samuels M P 1997 Covert video recordings of life threatening child abuse lessons for child protection Pediatrics 100 5 735 760 doi 10 1542 peds 100 5 735 PMID 9346973 a href Template Cite journal html title Template Cite journal cite journal a CS1 maint multiple names authors list link R v LM 2004 QCA 192 at para 67 4 June 2004 R v LM 2004 QCA 192 at para 71 4 June 2004 A County Council v A Mother and A Father and X Y Z children 2005 EWHC 31 Fam 18 January 2005 Feldman Marc 2004 Playing sick untangling the web of Munchausen syndrome Munchausen by proxy malingering amp factitious disorder Philadelphia Brunner Routledge ISBN 0415949343 The Secretary Department of Family and Community Services and the Harper Children NSW Caselaw www caselaw nsw gov au Retrieved 2021 04 14 Serial killer nurse Allitt must serve 30 years The Guardian 6 December 2007 Leckie Kate 2007 11 20 Military wife faces assault charges for making daughter sick Frederick News Post Archived from the original on 2011 05 22 Retrieved 2007 11 24 Growing pains People com Archived from the original on 4 October 2013 Retrieved 1 October 2013 Devon woman jailed for sick son con BBC News 22 January 2010 a b Candiotti Susan July 20 1999 Florida woman accused of sickening child for 8 years CNN Candiotti Susan October 7 1999 Mother found guilty of child abuse fraud for making daughter sick CNN Renaud Jean Paul July 26 2005 Mom Daughter To Reunite Sun Sentinel Archived from the original on 2016 01 15 Retrieved 2016 01 07 ABC News Mom Convicted Archived from the original on 5 March 2015 Associated Press April 8 2016 Mommy blogger gets 20 years to life for salt poisoning son NY Post Keegan Harrison July 6 2016 Munchausen expert says Gypsy Blanchard case is unprecedented Springfield News Leader Retrieved June 2 2017 Jung Helin May 16 2017 Mommy Dead and Dearest Recap amp Review Dee Dee Blanchard HBO True Crime Documentary Cosmopolitan com Truong Peggy 2019 03 04 The New Trailer for Joey King s Hulu Series The Act Will Straight Up Give You the Chills Cosmopolitan Retrieved 2019 03 14 Munchausen past and present Star Telegram com a b Jury Clears Boston Children s Hospital In Justina Pelletier Case CBS Boston 2020 02 20 The high profile case started back in 2013 when a then 14 year old Justina was brought to the emergency room at Boston Children s and doctors diagnosed her symptoms as psychiatric Her parents disagreed with the diagnosis and tried to have her discharged That s when the hospital reported them to the Department of Children and Families accusing them of medical child abuse Justina was separated from her parents for about 18 months before a judge ordered her returned a href Template Cite news html title Template Cite news cite news a CS1 maint url status link a b Boston Children s Hospital Wasn t Negligent in Pelletier Case Jury Finds Associated Press 2020 02 20 The verdict in the medical malpractice lawsuit brought by the family of Justina Pelletier capped a high profile dispute that drew national media attention and sparked a broader debate over parental rights Boston Children s Hospital wasn t medically negligent in its treatment of a Connecticut teen who spent nearly a year in state custody after doctors suspected her parents of medical child abuse a jury in Boston concluded Thursday Doctors and Pelletier s parents disagreed on whether the cause of her numerous health problems which included an inability to walk talk or swallow were true medical ailments as her parents maintained or were largely psychological But doctors at Boston Children s Hospital suspected it was a case of Munchausen syndrome by proxy and that Pelletier s psychological needs were being ignored by her parents in favor of unnecessary medical tests and procedures a href Template Cite news html title Template Cite news cite news a CS1 maint url status link Chen Angus 2020 02 07 Neurologist Takes Stand To Defend Care Given To Justina Pelletier At Boston Children s WBUR FM Retrieved 2020 02 09 In his medical notes at the time Peters wrote that some of the doctors who d treated Pelletier suspected factitious disorder by proxy a form of medical abuse involving excessive medical care or symptoms caused by the parent or guardian She had multiple diagnoses a very patchy network of providers Those are all classic red flags Peters said And that there were Child Protective Services involved suggested there was some form of over medicalization going on Peters said other doctors told him that Pelletier s parents tended to obsess over potential medical problems They took her to many different doctors which increased the likelihood of multiple diagnoses and medications Alanez Tonya 2020 02 20 Justina Pelletier s family loses their civil suit against Boston Children s Hospital The Boston Globe In an interview one of the 13 jurors in the case provided insight into the deliberations This case plays to the heart of a lot of people the juror said At first blush it looked and felt like these people took their daughter away he said But the evidence bore out a more complicated story he said Throughout the trial doctors past and present described Pelletier s parents as difficult demanding and demeaning The parents dismissed psychiatric treatment as psychological baloney and were quick to dispute what experts told them according to testimony Bartlett Jamie Mayer Ruth 2023 05 08 Her illness fooled celebs The truth may be even darker BBC News Archived from the original on 16 May 2023 Retrieved 2023 05 09 Henderson Metzger Lynett Meyer Laura Nadkarni Lavita 2022 Understanding Animal Maltreatment Animal Maltreatment Evaluation Basics for Mental Health Practitioners Students and Educators Cham Springer International Publishing pp 17 32 doi 10 1007 978 3 031 04984 2 3 ISBN 978 3031049835 retrieved 2022 10 22 HM Munro and MV Thrusfield 2001 Battered pets Munchausen syndrome by proxy factitious illness by proxy PMID 11518417 Tucker HS Finlay F Guiton S 2002 Munchausen syndrome involving pets by proxies Arch Dis Child 87 3 263 doi 10 1136 adc 87 3 263 PMC 1719226 PMID 12193455 Portal Psychiatry Retrieved from https en wikipedia org w index php title Factitious disorder imposed on another amp oldid 1170572904, wikipedia, wiki, book, books, library,

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