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Creutzfeldt-Jakob Disease Surveillance System

November 12, 2023

The Creutzfeldt-Jakob Disease Surveillance System (CJDSS) is a unit of the Public Health Agency of Canada. It studies the various variants of Creutzfeldt-Jakob Disease, and at least as of 2017, assisted "with DNA sequencing, autopsy and case confirmation".[1] As of 2014, the CJDSS conducted "prospective national surveillance for all types of human prion disease in Canada. The main purposes of the CJDSS [were then] to better understand the epidemiology of human prion diseases, to improve the options available for their rapid and accurate diagnosis, and ultimately to protect the health of Canadians by reducing risks of prion disease transmission."[2]

History edit

CJD deaths in Canada[3]
Year Deaths Population Mortality
1998 24 30,244,982 0.79
1999 32 30,492,106 1.05
2000 35 30,783,969 1.14
2001 30 31,130,030 0.96
2002 36 31,450,443 1.14
2003 29 31,734,851 0.91
2004 44 32,037,434 1.37
2005 44 32,352,233 1.36
2006 44 32,678,986 1.35
2007 39 33,001,076 1.18
2008 49 33,371,810 1.47
2009 53 33,756,714 1.57
2010 38 34,131,451 1.11
2011 51 34,472,304 1.48
2012 63 34,880,248 1.81
2013 51 35,289,003 1.45
2014 56 35,675,834 1.57
2015 52 35,702,707 1.46
2016 64 36,286,400 1.76
2017 86 36,712,658 2.34
2018 80 37,589,262 2.13
2019 78 37,802,043 2.06

The CJDSS was created in 1998 (along with a slew of other OECD national reporting systems[4][5][6]) "in response to the widespread outbreak of vCJD in the United Kingdom",[7] and "is a research project that relies on direct CJD reporting by all neurologists, neurosurgeons, neuropathologists, geriatricians, and infectious disease physicians to the" PHAC.[8]

The CJDSS issued its first annual report in 1998.[7]

In 2002, the CJDSS issued a report entitled "Infection Control Guidelines: Classic CJD in Canada".[9]

In July 2003 with the help of Agriculture and Agri-Food Minister Lyle Vanclief who is also an accredited Bachelor of Agriculture and active farmer,[10][11] the SRM feed ban was imposed by the Canadian Food Inspection Agency (CFIA).[12] This was the first regulatory change to bovine farm practice in Canada after and as a result of the British BSE disaster.[11][13] Feeding cattle to cattle had been practiced in Canada at least since 1992[14] when the British culled at least 100,000 cattle in an attempt to control BSE.[15] Then in January 2004, the CFIA "announced that it would enhance its BSE surveillance testing to at least 8,000 cattle during the first year and to 30,000 per year in subsequent years to calculate the prevalence of BSE in Canadian adult cattle. The level and design of this enhanced program continues to be in full accordance with the guidelines recommended by the OIE."[14] As late as 2010, an audit report produced by external management consultant advisors from Ottawa told the Canadian government that the feed bans "will not show results for another five years."[12]

In 2004, the CJDSS, which had up until then been part of Health Canada's Population and Public Health Branch, was incorporated into the newly formed PHAC.[citation needed]

In 2007, the CJDSS issued a report entitled "Classic Creutzfeldt-Jakob Disease in Canada Quick Reference Guide 2007".[16]

In 2010, the CJDSS was evaluated, as part of the evaluation of the Prion Diseases Program of which it forms part.[12]

In 2011, a novel case of CJD that was detected in an immigrant patient from Saudi Arabia and noticed by the CJDSS in the Canada Communicable Disease Report,[17] prompted the Canadian Blood Services and Hema-Quebec to issue deferral orders for blood donors from the middle eastern country.[18]

In 2013, Coulthart et al. described at an academic conference Creutzfeldt-Jakob disease reporting in Canada.[19]

By 2014, "all human prion diseases [were] provincially reportable [at least in Newfoundland and Labrador] and nationally notifiable in Canada."[2]

In 2017, Fan, Deilgat and Speechley wrote that "the role of the CJDSS is to assist in the investigation and diagnosis of suspected cases of CJD in Canada, provide support to patients and health care providers, and ultimately protect the health of Canadians by reducing the risk of CJD transmission."[7]

In budget year 2019–20, the CJDSS advertised that it sought autopsy services in the National Capital Region.[20][21]

Leadership edit

References edit

  1. ^ "Creutzfeldt‐Jakob Disease: A Resource for Health Professionals" (PDF). British Columbia Provincial Health Services Authority. British Columbia Centre for Disease Control. 23 September 2017.
  2. ^ a b "Diseases Transmitted by Direct Contact and through the Provision of Health Care" (PDF). Newfoundland and Labrador Disease Control Manual. Disease Control Manual - Section 7. August 2014.
  3. ^ "Creutzfeldt-Jakob disease surveillance system (CJDSS) report". Public Health Agency of Canada. 2021-04-14.
  4. ^ Litzroth, Amber; Cras, Patrick; De Vil, Bart; Quoilin, Sophie (2015). "Overview and evaluation of 15 years of Creutzfeldt-Jakob disease surveillance in Belgium, 1998-2012". BMC Neurology. 15: 250. doi:10.1186/s12883-015-0507-x. PMC 4668685. PMID 26630984.
  5. ^ Sun, Yu; Liu, Chih-Ching; Fan, Ling-Yun; Huang, Chung-Te; Chen, Ta-Fu; Lu, Chien-Jung; Guo, Wan-Yuo; Chang, Yang-Chyuan; Chiu, Ming-Jang (2020). ". Incidence of and Mortality Due to Human Prion Diseases in Taiwan: A Prospective 20-Year Nationwide Surveillance Study from 1998 to 2017". Clinical Epidemiology. 12: 1073–1081. doi:10.2147/CLEP.S274093. PMC 7569055. PMID 33116901.
  6. ^ "CREUTZFELDT-JAKOB DISEASE SURVEILLANCE IN THE UK" (PDF). The National CJD Research & Surveillance Unit Western General Hospital, Edinburgh, EH4 2XU. 2017.
  7. ^ a b c Fan, E., Deilgat, M., Speechley, M. (2017). Investigating Suspected Outbreaks of Rare Infectious Disease Using Surveillance Data: The CJDSS Perspective. in: John-Baptiste, A. & McKinley, G. [eds] Western Public Health Casebook 2017. London, ON: Public Health Casebook Publishing.
  8. ^ "Creutzfeldt-Jakob Disease - Classic and Variant" (PDF). Alberta Health. Public Health Disease Management Guidelines. May 2018.
  9. ^ . Public Health Agency of Canada. Creutzfeldt-Jakob Disease Surveillance System. 2002. Archived from the original on 12 June 2017. Retrieved 30 April 2021.{{cite news}}: CS1 maint: bot: original URL status unknown (link)
  10. ^ "Grad News". No. 28. University of Guelph Alumnus Magazine. Fall 1997.
  11. ^ a b Roos, Robert (24 July 2003). "Canada moves to shield food supply from BSE-infected material". CIDRAP.
  12. ^ a b c "Evaluation of The Prion Diseases Program: 3.0 Relevance". Public Health Agency of Canada. 2010-06-15.
  13. ^ . Canadian Food Inspection Agency. 25 March 2011. Archived from the original on 9 May 2011.
  14. ^ a b . Canadian Food Inspection Agency. 2011-04-14. Archived from the original on 7 May 2011.
  15. ^ "'Mad cow disease': What is BSE?". BBC. 18 October 2018. Retrieved 12 July 2019.
  16. ^ "Classic Creutzfeldt-Jakob Disease in Canada Quick Reference Guide 2007". Public Health Agency of Canada. Creutzfeldt-Jakob Disease Surveillance System. 2007.
  17. ^ Coulthart, Michael B.; Geschwind, Michael D.; Qureshi, Shireen; Phielipp, Nicolas; Demarsh, Alex; Abrams, Joseph Y.; Belay, Ermias; Gambetti, Pierluigi; Jansen, Gerard H.; Lang, Anthony E.; Schonberger, Lawrence B. (2016). "A case cluster of variant Creutzfeldt-Jakob disease linked to the Kingdom of Saudi Arabia". Brain. 139 (10): 2609–2616. doi:10.1093/brain/aww206. PMC 5082737. PMID 27671029.
  18. ^ (PDF). America's Blood Centers. ABC Newsletter. March 18, 2011. Archived from the original (PDF) on April 30, 2021. Retrieved April 30, 2021.
  19. ^ "Prion and Prion-like Diseases in Humans: Poster Abstracts". Prion. 7 (sup1): 54–80. 2013. doi:10.4161/pri.24865. PMC 4031668. PMID 29095080.
  20. ^ "Autopsy services for Creutzfeldt-Jakob Disease (1000210808)". No. 2019–05–27. Public Works and Government Services Canada. 2020-05-29. Retrieved 3 April 2021.
  21. ^ "AVIS DE PROJET DE MARCHÉ (APM) No de la demande : 1000210808 Services d'autopsie pour la maladie de Creutzfeldt-Jakob" (PDF) (in French). Public Works and Government Services Canada. 31 July 2019.

November 12, 2023
creutzfeldt, jakob, disease, surveillance, system, cjdss, unit, public, health, agency, canada, studies, various, variants, creutzfeldt, jakob, disease, least, 2017, assisted, with, sequencing, autopsy, case, confirmation, 2014, cjdss, conducted, prospective, . The Creutzfeldt Jakob Disease Surveillance System CJDSS is a unit of the Public Health Agency of Canada It studies the various variants of Creutzfeldt Jakob Disease and at least as of 2017 assisted with DNA sequencing autopsy and case confirmation 1 As of 2014 the CJDSS conducted prospective national surveillance for all types of human prion disease in Canada The main purposes of the CJDSS were then to better understand the epidemiology of human prion diseases to improve the options available for their rapid and accurate diagnosis and ultimately to protect the health of Canadians by reducing risks of prion disease transmission 2 Contents 1 History 1 1 Leadership 2 ReferencesHistory editCJD deaths in Canada 3 Year Deaths Population Mortality1998 24 30 244 982 0 791999 32 30 492 106 1 052000 35 30 783 969 1 142001 30 31 130 030 0 962002 36 31 450 443 1 142003 29 31 734 851 0 912004 44 32 037 434 1 372005 44 32 352 233 1 362006 44 32 678 986 1 352007 39 33 001 076 1 182008 49 33 371 810 1 472009 53 33 756 714 1 572010 38 34 131 451 1 112011 51 34 472 304 1 482012 63 34 880 248 1 812013 51 35 289 003 1 452014 56 35 675 834 1 572015 52 35 702 707 1 462016 64 36 286 400 1 762017 86 36 712 658 2 342018 80 37 589 262 2 132019 78 37 802 043 2 06The CJDSS was created in 1998 along with a slew of other OECD national reporting systems 4 5 6 in response to the widespread outbreak of vCJD in the United Kingdom 7 and is a research project that relies on direct CJD reporting by all neurologists neurosurgeons neuropathologists geriatricians and infectious disease physicians to the PHAC 8 The CJDSS issued its first annual report in 1998 7 In 2002 the CJDSS issued a report entitled Infection Control Guidelines Classic CJD in Canada 9 In July 2003 with the help of Agriculture and Agri Food Minister Lyle Vanclief who is also an accredited Bachelor of Agriculture and active farmer 10 11 the SRM feed ban was imposed by the Canadian Food Inspection Agency CFIA 12 This was the first regulatory change to bovine farm practice in Canada after and as a result of the British BSE disaster 11 13 Feeding cattle to cattle had been practiced in Canada at least since 1992 14 when the British culled at least 100 000 cattle in an attempt to control BSE 15 Then in January 2004 the CFIA announced that it would enhance its BSE surveillance testing to at least 8 000 cattle during the first year and to 30 000 per year in subsequent years to calculate the prevalence of BSE in Canadian adult cattle The level and design of this enhanced program continues to be in full accordance with the guidelines recommended by the OIE 14 As late as 2010 an audit report produced by external management consultant advisors from Ottawa told the Canadian government that the feed bans will not show results for another five years 12 In 2004 the CJDSS which had up until then been part of Health Canada s Population and Public Health Branch was incorporated into the newly formed PHAC citation needed In 2007 the CJDSS issued a report entitled Classic Creutzfeldt Jakob Disease in Canada Quick Reference Guide 2007 16 In 2010 the CJDSS was evaluated as part of the evaluation of the Prion Diseases Program of which it forms part 12 In 2011 a novel case of CJD that was detected in an immigrant patient from Saudi Arabia and noticed by the CJDSS in the Canada Communicable Disease Report 17 prompted the Canadian Blood Services and Hema Quebec to issue deferral orders for blood donors from the middle eastern country 18 In 2013 Coulthart et al described at an academic conference Creutzfeldt Jakob disease reporting in Canada 19 By 2014 all human prion diseases were provincially reportable at least in Newfoundland and Labrador and nationally notifiable in Canada 2 In 2017 Fan Deilgat and Speechley wrote that the role of the CJDSS is to assist in the investigation and diagnosis of suspected cases of CJD in Canada provide support to patients and health care providers and ultimately protect the health of Canadians by reducing the risk of CJD transmission 7 In budget year 2019 20 the CJDSS advertised that it sought autopsy services in the National Capital Region 20 21 Leadership edit Michael Coulthart 2010 present References edit Creutzfeldt Jakob Disease A Resource for Health Professionals PDF British Columbia Provincial Health Services Authority British Columbia Centre for Disease Control 23 September 2017 a b Diseases Transmitted by Direct Contact and through the Provision of Health Care PDF Newfoundland and Labrador Disease Control Manual Disease Control Manual Section 7 August 2014 Creutzfeldt Jakob disease surveillance system CJDSS report Public Health Agency of Canada 2021 04 14 Litzroth Amber Cras Patrick De Vil Bart Quoilin Sophie 2015 Overview and evaluation of 15 years of Creutzfeldt Jakob disease surveillance in Belgium 1998 2012 BMC Neurology 15 250 doi 10 1186 s12883 015 0507 x PMC 4668685 PMID 26630984 Sun Yu Liu Chih Ching Fan Ling Yun Huang Chung Te Chen Ta Fu Lu Chien Jung Guo Wan Yuo Chang Yang Chyuan Chiu Ming Jang 2020 Incidence of and Mortality Due to Human Prion Diseases in Taiwan A Prospective 20 Year Nationwide Surveillance Study from 1998 to 2017 Clinical Epidemiology 12 1073 1081 doi 10 2147 CLEP S274093 PMC 7569055 PMID 33116901 CREUTZFELDT JAKOB DISEASE SURVEILLANCE IN THE UK PDF The National CJD Research amp Surveillance Unit Western General Hospital Edinburgh EH4 2XU 2017 a b c Fan E Deilgat M Speechley M 2017 Investigating Suspected Outbreaks of Rare Infectious Disease Using Surveillance Data The CJDSS Perspective in John Baptiste A amp McKinley G eds Western Public Health Casebook 2017 London ON Public Health Casebook Publishing Creutzfeldt Jakob Disease Classic and Variant PDF Alberta Health Public Health Disease Management Guidelines May 2018 Infection Control Guidelines Classic CJD in Canada Public Health Agency of Canada Creutzfeldt Jakob Disease Surveillance System 2002 Archived from the original on 12 June 2017 Retrieved 30 April 2021 a href Template Cite news html title Template Cite news cite news a CS1 maint bot original URL status unknown link Grad News No 28 University of Guelph Alumnus Magazine Fall 1997 a b Roos Robert 24 July 2003 Canada moves to shield food supply from BSE infected material CIDRAP a b c Evaluation of The Prion Diseases Program 3 0 Relevance Public Health Agency of Canada 2010 06 15 Bovine Spongiform Encephalopathy BSE in North America Canadian Food Inspection Agency 25 March 2011 Archived from the original on 9 May 2011 a b BSE Enhanced Surveillance Program Canadian Food Inspection Agency 2011 04 14 Archived from the original on 7 May 2011 Mad cow disease What is BSE BBC 18 October 2018 Retrieved 12 July 2019 Classic Creutzfeldt Jakob Disease in Canada Quick Reference Guide 2007 Public Health Agency of Canada Creutzfeldt Jakob Disease Surveillance System 2007 Coulthart Michael B Geschwind Michael D Qureshi Shireen Phielipp Nicolas Demarsh Alex Abrams Joseph Y Belay Ermias Gambetti Pierluigi Jansen Gerard H Lang Anthony E Schonberger Lawrence B 2016 A case cluster of variant Creutzfeldt Jakob disease linked to the Kingdom of Saudi Arabia Brain 139 10 2609 2616 doi 10 1093 brain aww206 PMC 5082737 PMID 27671029 New vCJD Case in Canada Prompts CBS to Plan Saudi Arabia Residency Deferral PDF America s Blood Centers ABC Newsletter March 18 2011 Archived from the original PDF on April 30 2021 Retrieved April 30 2021 Prion and Prion like Diseases in Humans Poster Abstracts Prion 7 sup1 54 80 2013 doi 10 4161 pri 24865 PMC 4031668 PMID 29095080 Autopsy services for Creutzfeldt Jakob Disease 1000210808 No 2019 05 27 Public Works and Government Services Canada 2020 05 29 Retrieved 3 April 2021 AVIS DE PROJET DE MARCHE APM No de la demande 1000210808 Services d autopsie pour la maladie de Creutzfeldt Jakob PDF in French Public Works and Government Services Canada 31 July 2019 Retrieved from https en wikipedia org w index php title Creutzfeldt Jakob Disease Surveillance System amp oldid 1172854434, wikipedia, wiki, book, books, library,

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