Children’s Hospices Across Scotland (CHAS), formally known as Children's Hospice Association Scotland, is a registered charity that provides the country's only hospice services for children and young people with life-shortening conditions. The first hospice was built thanks to the late editor-in chief of the Daily Record and Sunday Mail, Endell Laird, who launched a reader appeal which raised £4million.[1] CHAS offers children’s hospice services, free of charge, to every child, young person and their families who needs and wants them.[2] CHAS was formed in February 1992 by a group of professionals and parents of children with life-shortening conditions who had travelled to England for hospice care. In 2018/19, CHAS supported 465 children with a life-shortening condition, and their siblings, parents and wider families.[3] The care provided is multi-disciplinary, including from doctors, nurses, social workers, pharmacists, play specialists and others. CHAS also employs medical and nursing staff who work in hospitals alongside NHS doctors and nurses.
Rachel House supports children and young people at end of life, and with short breaks. Work to build Rachel House, Scotland’s first children's hospice, started in December 1994. The land to build Rachel House in Kinross was donated by the Montgomery family who owned Kinross House which stands next to the hospice. Rachel House was named after Rachel, Lady MacRobert, in recognition of a £2 million donation by The MacRobert Trust. A 17-month fundraising appeal by the Daily Record newspaper raised £4 million towards the £10 million building cost and the full target was raised 13 months later. On 16 December 1994 celebrity supporter Philip Schofield cut the first turf for Rachel House, assisted by children from Kinross Primary School. The hospice was opened in March 1996[4] by The Princess Royal.
Robin House, Balloch
A fundraising appeal to build Scotland’s second hospice Robin House in Balloch near Loch Lomond began in 2001 with readers of the Sunday Post helping raise the £10million needed to complete the project. Robin House was named after the European robin bird. In May 2003, the work began on the building with celebrity supporters Ewan McGregor and Sharleen Spiteri cutting the first turf with six-year-old Robyn Watterson who at the time used Rachel House.[5] Robin House opened in August 2005 and supports children at end of life and with short breaks.
CHAS at Home
In 2003 Rachel House at Home launched, offering a home care service to families in their own homes. The service originally operated out of The Highland Hospice in Inverness and moved to Ardross Terrace, Inverness in June 2009.[6] In December 2008 Rachel House at Home became known as CHAS at Home. In December 2011 CHAS at Home launched an Aberdeen base at Rosemount Place, Aberdeen.[7] Now CHAS at Home supports families across every local authority in Scotland, operating out of four hubs across Scotland. In 2018/19, CHAS at Home supported approximately 1200 visits across every local authority area in Scotland, providing both planned care and emergency end-of-life care. In 2018/19, a volunteer-led home support service was established to support families of children with life-shortening conditions and operates in east central Scotland.[3]
CHAS in hospitals
Most children who die from a life-shortening condition die in hospital. CHAS employs 4 Diana Children's Nurses. These are senior nursing roles who work across NHS areas and are based in Inverness, Aberdeen, Edinburgh and Glasgow.[8] In 2019, a new hospital-based CHAS team was established in the Royal Hospital for Children in Glasgow. This is the first children's palliative care team in Scotland.[9] CHAS also jointly employs consultant-level posts with NHS Lothian, NHS Greater Glasgow and Clyde, and NHS Ayrshire and Arran. A report on work in neonatal palliative care in Edinburgh was published in 2019.[10]
Research
CHAS published two pieces of research in 2007 undertaken with the Cancer Care Research Centre, University of Stirling. The first evaluated future research priorities for CHAS[11] and the second identified the existing home care service.[12]
In 2008, the Scottish Government published the report Living and dying well: a national action plan for palliative and end of life care in Scotland.[13] CHAS staff members were integral to the consultation on children’s and teenage palliative care.[14][15]
In June 2011 a new research project undertaken by the Cancer Care Research Centre at the University of Stirling was published investigating the experiences and symptoms of children and young people with life-shortening conditions.[16][17]
In 2015, research was commissioned from the University of York to calculate the prevalence of children with life-shortening conditions in Scotland. This was the first single-nation study of such prevalence in the world and was published in a report called ChiSP (Children in Scotland Requiring Palliative Care).[18] In 2019, and update of the report was commissioned by CHAS from NHS Scotland's Information Services Division. The CHISP2 study identified that the number of children with life-shortening conditions is growing and that the majority of children who die from life-shortening conditions are under 5. The total number of children and young people with life-shortening condition aged 0–21 is now at 16,000; many of these children are stable but about one third have had recent contact with a hospital team.[19]
Funding and governance
CHAS has been registered as a charity since 5 February 1992, currently registered as a charitable company with the Office of the Scottish Charity Regulator (OSCR), Scottish charity number SC 019724.[20] The Chief Executive is Rami Okasha[21] and the Chairperson is George Reid.[22]
For the financial year 2018-19, CHAS spent £14.4mon delivering charitable services.[23] CHAS employs 380 staff and had 864 volunteers supporting CHAS in care services, fundraising, retail and administration.[23]
CHAS received £6m of its funding from NHS health boards and £700k from local authorities. The majority of its funding is provided by the general public through voluntary donations.
Sites
In addition to Rachel House and Robin House, CHAS operates out of offices in Aberdeen, Edinburgh, Kinross and Stepps. CHAS Trading has a small retail team based in Kinross who manage four charity shops. The head office is in Edinburgh, which is where the Chief Executive, Finance and Administration (IT, Finance and Facilities), Fundraising and Communications (Fundraising, Public Relations and Marketing) and Organisational Development (HR, Learning and Development and Volunteering) are based.
References
^. Children's Hospices UK. Archived from the original on 16 March 2011. Retrieved 27 April 2011.
^"Mission and Key Facts". Children's Hospice Association Scotland (CHAS). Archived from the original on 4 August 2012.
^ abAnnual Report and Accounts 2018/19(PDF). CHAS. 2019. p. 2.
^Adams, Lisa (3 April 2006). "The girl none of us will ever forget". Daily Record. Retrieved 3 April 2006.
^"Stars start work at £10m hospice". BBC News. 14 May 2003. Retrieved 14 July 2014.
^"Hospice opens new office in north". BBC News. 24 June 2009.
^"CHAS at home service launches in Aberdeen". Ellon Times. 24 November 2011. Retrieved 14 July 2014.
^Malcolm, M; Forbat, E; Knighting, K; Kearney, N (2008). "Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care". Palliative Medicine. 22 (8): 921–928. doi:10.1177/0269216308098214. hdl:1893/1022. PMID 18838487. S2CID 25761132.
^Knighting, K; McCann, L; Forbat, L; Kearney, N (December 2007). (PDF). University of Stirling. Archived from the original (PDF) on 8 December 2015. Retrieved 23 August 2015. {{cite journal}}: Cite journal requires |journal= (help)
^Living and dying well : a national action plan for palliative and end of life care in Scotland(PDF). Scottish Government. Edinburgh. 2008. ISBN978-0-7559-5889-4. Retrieved 1 January 2019.
^"Cross-party groups in the Scottish Parliament Annual Return Form" (PDF). Scottish Government. Retrieved 17 June 2009.
^"Living and Dying Well: Building on Progress". Scottish Government. January 2011.
^Malcolm, C; Forbat, L; Anderson, G; Gibson, F; Hain, R (April 2011). "Challenging symptom profiles of life-limiting conditions in children: A survey of care professionals and families". Palliative Medicine. 25 (4): 357–364. doi:10.1177/0269216310391346. PMID 21228088. S2CID 206487574.
^Malcolm, Adams; Anderson, Gibson. (PDF). Hain, Morley and Forbat. Cancer Care Research Centre, University of Stirling. Archived from the original (PDF) on 11 September 2011. Retrieved 20 June 2011.
^ ab"Annual Report and Accounts 2018-19" (PDF). Children's Hospices Across Scotland (CHAS).
External links
Official website
January 20, 2023
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Children s Hospices Across Scotland CHAS formally known as Children s Hospice Association Scotland is a registered charity that provides the country s only hospice services for children and young people with life shortening conditions The first hospice was built thanks to the late editor in chief of the Daily Record and Sunday Mail Endell Laird who launched a reader appeal which raised 4million 1 CHAS offers children s hospice services free of charge to every child young person and their families who needs and wants them 2 CHAS was formed in February 1992 by a group of professionals and parents of children with life shortening conditions who had travelled to England for hospice care In 2018 19 CHAS supported 465 children with a life shortening condition and their siblings parents and wider families 3 The care provided is multi disciplinary including from doctors nurses social workers pharmacists play specialists and others CHAS also employs medical and nursing staff who work in hospitals alongside NHS doctors and nurses Children s Hospices Across Scotland CHAS Formation1992TypeRegistered charityPurposeTo provide palliative care to children and young people with life shortening conditionsRegion servedScotlandWebsitewww wbr chas wbr org wbr uk Contents 1 Rachel House Kinross 2 Robin House Balloch 3 CHAS at Home 4 CHAS in hospitals 5 Research 6 Funding and governance 7 Sites 8 References 9 External linksRachel House Kinross EditRachel House supports children and young people at end of life and with short breaks Work to build Rachel House Scotland s first children s hospice started in December 1994 The land to build Rachel House in Kinross was donated by the Montgomery family who owned Kinross House which stands next to the hospice Rachel House was named after Rachel Lady MacRobert in recognition of a 2 million donation by The MacRobert Trust A 17 month fundraising appeal by the Daily Record newspaper raised 4 million towards the 10 million building cost and the full target was raised 13 months later On 16 December 1994 celebrity supporter Philip Schofield cut the first turf for Rachel House assisted by children from Kinross Primary School The hospice was opened in March 1996 4 by The Princess Royal Robin House Balloch EditA fundraising appeal to build Scotland s second hospice Robin House in Balloch near Loch Lomond began in 2001 with readers of the Sunday Post helping raise the 10 million needed to complete the project Robin House was named after the European robin bird In May 2003 the work began on the building with celebrity supporters Ewan McGregor and Sharleen Spiteri cutting the first turf with six year old Robyn Watterson who at the time used Rachel House 5 Robin House opened in August 2005 and supports children at end of life and with short breaks CHAS at Home EditIn 2003 Rachel House at Home launched offering a home care service to families in their own homes The service originally operated out of The Highland Hospice in Inverness and moved to Ardross Terrace Inverness in June 2009 6 In December 2008 Rachel House at Home became known as CHAS at Home In December 2011 CHAS at Home launched an Aberdeen base at Rosemount Place Aberdeen 7 Now CHAS at Home supports families across every local authority in Scotland operating out of four hubs across Scotland In 2018 19 CHAS at Home supported approximately 1200 visits across every local authority area in Scotland providing both planned care and emergency end of life care In 2018 19 a volunteer led home support service was established to support families of children with life shortening conditions and operates in east central Scotland 3 CHAS in hospitals EditMost children who die from a life shortening condition die in hospital CHAS employs 4 Diana Children s Nurses These are senior nursing roles who work across NHS areas and are based in Inverness Aberdeen Edinburgh and Glasgow 8 In 2019 a new hospital based CHAS team was established in the Royal Hospital for Children in Glasgow This is the first children s palliative care team in Scotland 9 CHAS also jointly employs consultant level posts with NHS Lothian NHS Greater Glasgow and Clyde and NHS Ayrshire and Arran A report on work in neonatal palliative care in Edinburgh was published in 2019 10 Research EditCHAS published two pieces of research in 2007 undertaken with the Cancer Care Research Centre University of Stirling The first evaluated future research priorities for CHAS 11 and the second identified the existing home care service 12 In 2008 the Scottish Government published the report Living and dying well a national action plan for palliative and end of life care in Scotland 13 CHAS staff members were integral to the consultation on children s and teenage palliative care 14 15 In June 2011 a new research project undertaken by the Cancer Care Research Centre at the University of Stirling was published investigating the experiences and symptoms of children and young people with life shortening conditions 16 17 In 2015 research was commissioned from the University of York to calculate the prevalence of children with life shortening conditions in Scotland This was the first single nation study of such prevalence in the world and was published in a report called ChiSP Children in Scotland Requiring Palliative Care 18 In 2019 and update of the report was commissioned by CHAS from NHS Scotland s Information Services Division The CHISP2 study identified that the number of children with life shortening conditions is growing and that the majority of children who die from life shortening conditions are under 5 The total number of children and young people with life shortening condition aged 0 21 is now at 16 000 many of these children are stable but about one third have had recent contact with a hospital team 19 Funding and governance EditCHAS has been registered as a charity since 5 February 1992 currently registered as a charitable company with the Office of the Scottish Charity Regulator OSCR Scottish charity number SC 019724 20 The Chief Executive is Rami Okasha 21 and the Chairperson is George Reid 22 For the financial year 2018 19 CHAS spent 14 4m on delivering charitable services 23 CHAS employs 380 staff and had 864 volunteers supporting CHAS in care services fundraising retail and administration 23 CHAS received 6m of its funding from NHS health boards and 700k from local authorities The majority of its funding is provided by the general public through voluntary donations Sites EditIn addition to Rachel House and Robin House CHAS operates out of offices in Aberdeen Edinburgh Kinross and Stepps CHAS Trading has a small retail team based in Kinross who manage four charity shops The head office is in Edinburgh which is where the Chief Executive Finance and Administration IT Finance and Facilities Fundraising and Communications Fundraising Public Relations and Marketing and Organisational Development HR Learning and Development and Volunteering are based References Edit List of UK children s hospices Children s Hospices UK Archived from the original on 16 March 2011 Retrieved 27 April 2011 Mission and Key Facts Children s Hospice Association Scotland CHAS Archived from the original on 4 August 2012 a b Annual Report and Accounts 2018 19 PDF CHAS 2019 p 2 Adams Lisa 3 April 2006 The girl none of us will ever forget Daily Record Retrieved 3 April 2006 Stars start work at 10m hospice BBC News 14 May 2003 Retrieved 14 July 2014 Hospice opens new office in north BBC News 24 June 2009 CHAS at home service launches in Aberdeen Ellon Times 24 November 2011 Retrieved 14 July 2014 Diana Children s Nurses NES New team at Glasgow children s hospital CHAS Neonatal care CHAS Malcolm M Forbat E Knighting K Kearney N 2008 Exploring the experiences and perspectives of families using a children s hospice and professionals providing hospice care to identify future research priorities for children s hospice care Palliative Medicine 22 8 921 928 doi 10 1177 0269216308098214 hdl 1893 1022 PMID 18838487 S2CID 25761132 Knighting K McCann L Forbat L Kearney N December 2007 An Evaluation of the Rachel House at Home Service for the Children s Hospice Association Scotland PDF University of Stirling Archived from the original PDF on 8 December 2015 Retrieved 23 August 2015 a href Template Cite journal html title Template Cite journal cite journal a Cite journal requires journal help Living and dying well a national action plan for palliative and end of life care in Scotland PDF Scottish Government Edinburgh 2008 ISBN 978 0 7559 5889 4 Retrieved 1 January 2019 Cross party groups in the Scottish Parliament Annual Return Form PDF Scottish Government Retrieved 17 June 2009 Living and Dying Well Building on Progress Scottish Government January 2011 Malcolm C Forbat L Anderson G Gibson F Hain R April 2011 Challenging symptom profiles of life limiting conditions in children A survey of care professionals and families Palliative Medicine 25 4 357 364 doi 10 1177 0269216310391346 PMID 21228088 S2CID 206487574 Malcolm Adams Anderson Gibson The symptom profile and experience PDF Hain Morley and Forbat Cancer Care Research Centre University of Stirling Archived from the original PDF on 11 September 2011 Retrieved 20 June 2011 CHISP Study CHISP2 PDF CHAS 2019 Search OSCR Charity Details Children s Hospice Association Scotland SC019724 Scottish Charity Regulator OSCR Retrieved 11 December 2015 CHAS Appoints New Chief Executive About CHAS a b Annual Report and Accounts 2018 19 PDF Children s Hospices Across Scotland CHAS External links EditOfficial website Retrieved from https en wikipedia org w index php title Children 27s Hospice Association Scotland amp oldid 1103869559, wikipedia, wiki, book, books, library,
