JDRF is a nonprofit 501(c)(3) organization that funds type 1 diabetes (T1D) research, provides a broad array of community and activist services to the T1D population and actively advocates for regulation favorable to medical research and approval of new and improved treatment modalities. It was initially founded as the JDF, the Juvenile Diabetes Foundation. It later changed its name to the Juvenile Diabetes Research Foundation and is now known as JDRF.
JDRF was founded to find a cure for juvenile diabetes; in the 2000s, it broadened its research efforts to include ways to better manage the disease and ways to prevent it.[4]
In 2005 the board of JDRF committed to supporting work on medical devices to manage blood glucose, known as artificial pancreas technology. The Board was urged to do so by Jeffrey Brewer, who founded and sold Citysearch, and had become interested in juvenile diabetes and medical devices after his son was diagnosed with the condition.[5] The focus was on integrating continuous glucose monitors (CGM's) and insulin pumps via a computerized program that would use blood glucose levels obtained through the CGM to calculate an insulin dosage to be dispensed through the insulin pump.[6][7] The first such device was approved in 2016.[8]
JDRF has advocated for stem cell research; in a 2004 article in The Wall Street Journal, the authors observed that the JDRF "... has become adept at unleashing an army of hard-to-resist lobbyists – made up of determined parents and their afflicted children – on researchers, politicians and potential donors."[9]
In 2011, the FDA had made it a priority to clarify the requirements for approval for such a closed-loop monitoring and drug delivery device for T1D, and announced it was preparing draft guidelines. JDRF launched a campaign to influence those guidelines to be lenient.[6] After the first closed loop device was approved in 2016, JDRF lobbied insurance companies to cover it.[citation needed] The campaign also put resources into educating people with diabetes on how to navigate health insurance in the United States, and into lobbying Congress to continue funding diabetes research through the NIH.[citation needed]
The FDA lobbying campaign was part of a gradual realignment of the organization to focus on issues other than helping find a cure for JD, but to help treat and manage the disease. This broadened scope meant that the organization increasingly directed its funds to education and advocacy, along with research funding.[4] This included lobbying insurance companies to pay for CGM devices, educating patients on how to advocate for themselves, and lobbying Congress for more NIH funding.[citation needed]
Representativs from JDRF with Terri Sewell on Capitol Hill in 2018
In 1974, four years after JDRF was founded in the United States, a group of parents determined to find a cure for their children living with type 1 diabetes (T1D) came together and began JDRF Canada, launching the largest funder and advocate for T1D research in Canada. The UK arm of the Juvenile Diabetes Foundation (JDRF) was founded by Richard Lawson in 1986. In 1988 he became Director. The Foundation is now known as the Juvenile Diabetes Research Foundation (JDRF) and is "the leading global organisation funding Type 1 Diabetes research".[10][better source needed]
In 2019, JDRF International appointed its first-ever CEO and President with Type 1 Diabetes, Dr. Aaron Kowalski. Prior to taking this role, Kowalski served as JDRF's Chief Mission Officer for five years.[11]
Researchedit
In 2018, JDRF provided $85 million (37% of their total income) to T1D scientific research grants; they provided $156.4 million (67% of their total income) in 2008.[12]
The images above provide an overview of JDRF research spending from 2001 to 2018. [13][14]
Noted philanthropistsedit
Woody Johnson, heir to the Johnson & Johnson fortune
^Hurley, Dan. "Robotic Pancreas: One Man's Quest to Put Millions of Diabetics on Autopilot". Wired Magazine, April 19, 2010. Vol. 18, no. 5. Retrieved 10 May 2013.
^ abDolgin, E (17 May 2012). "Medical devices: Managed by machine" (PDF). Nature. 485 (7398): S6-8. Bibcode:2012Natur.485S...6D. doi:10.1038/485s6a. PMID 22616096.
^"Artificial Pancreas Gives Girl a Vacation from Diabetes". CNN, March 4, 2012. 5 March 2012. Retrieved 10 May 2013.
^Robbins, Rebecca (3 October 2016). "The risky bet behind the first 'artificial pancreas' for diabetes". STAT.
^Regalado, A; Waldholz, M (31 March 2004). "Ballot drive puts stem-cell funding in voters' hands. In California, diabetes groups show growing influence as they push for research; big backing from Hollywood". Wall Street Journal (Eastern Ed.): A1, A12. PMID 15250089.
^"Aaron Kowalski Named JDRF President and CEO". Juvenile Diabetes Cure Alliance.
^"2019 JDRF Research Grant Allocation". Juvenile Diabetes Cure Alliance.
^ProPublica, Mike Tigas, Sisi Wei, Ken Schwencke, Brandon Roberts, Alec Glassford (9 May 2013). "Jdrf International - Nonprofit Explorer". ProPublica.{{cite web}}: CS1 maint: multiple names: authors list (link)
^"2017 JDRF Grant Spending". Juvenile Diabetes Cure Alliance.
External linksedit
Official website
November 12, 2023
jdrf, nonprofit, organization, that, funds, type, diabetes, research, provides, broad, array, community, activist, services, population, actively, advocates, regulation, favorable, medical, research, approval, improved, treatment, modalities, initially, founde. JDRF is a nonprofit 501 c 3 organization that funds type 1 diabetes T1D research provides a broad array of community and activist services to the T1D population and actively advocates for regulation favorable to medical research and approval of new and improved treatment modalities It was initially founded as the JDF the Juvenile Diabetes Foundation It later changed its name to the Juvenile Diabetes Research Foundation and is now known as JDRF JDRFFoundedMay 28 1970 53 years ago 1970 05 28 1 FounderLee Ducat Carol LurieTax ID no 23 1907729 2 Legal status501 c 3 nonprofit organization 3 LocationNew York New York USMethodResearch funding Political advocacy EducationSubsidiariesJDRF Therapeutics Fund LLC 2 Revenue 2016 204 355 782 2 Expenses 2016 189 479 405 2 Endowment 7 176 427 2 Employees 2015 890 2 Volunteers 2015 300 000 2 Websitejdrf wbr orgFormerly calledJuvenile Diabetes Research Foundation Contents 1 History 2 Research 3 Noted philanthropists 4 See also 5 References 6 External linksHistory editJDRF was founded to find a cure for juvenile diabetes in the 2000s it broadened its research efforts to include ways to better manage the disease and ways to prevent it 4 In 2005 the board of JDRF committed to supporting work on medical devices to manage blood glucose known as artificial pancreas technology The Board was urged to do so by Jeffrey Brewer who founded and sold Citysearch and had become interested in juvenile diabetes and medical devices after his son was diagnosed with the condition 5 The focus was on integrating continuous glucose monitors CGM s and insulin pumps via a computerized program that would use blood glucose levels obtained through the CGM to calculate an insulin dosage to be dispensed through the insulin pump 6 7 The first such device was approved in 2016 8 JDRF has advocated for stem cell research in a 2004 article in The Wall Street Journal the authors observed that the JDRF has become adept at unleashing an army of hard to resist lobbyists made up of determined parents and their afflicted children on researchers politicians and potential donors 9 In 2011 the FDA had made it a priority to clarify the requirements for approval for such a closed loop monitoring and drug delivery device for T1D and announced it was preparing draft guidelines JDRF launched a campaign to influence those guidelines to be lenient 6 After the first closed loop device was approved in 2016 JDRF lobbied insurance companies to cover it citation needed The campaign also put resources into educating people with diabetes on how to navigate health insurance in the United States and into lobbying Congress to continue funding diabetes research through the NIH citation needed The FDA lobbying campaign was part of a gradual realignment of the organization to focus on issues other than helping find a cure for JD but to help treat and manage the disease This broadened scope meant that the organization increasingly directed its funds to education and advocacy along with research funding 4 This included lobbying insurance companies to pay for CGM devices educating patients on how to advocate for themselves and lobbying Congress for more NIH funding citation needed nbsp Representativs from JDRF with Terri Sewell on Capitol Hill in 2018In 1974 four years after JDRF was founded in the United States a group of parents determined to find a cure for their children living with type 1 diabetes T1D came together and began JDRF Canada launching the largest funder and advocate for T1D research in Canada The UK arm of the Juvenile Diabetes Foundation JDRF was founded by Richard Lawson in 1986 In 1988 he became Director The Foundation is now known as the Juvenile Diabetes Research Foundation JDRF and is the leading global organisation funding Type 1 Diabetes research 10 better source needed In 2019 JDRF International appointed its first ever CEO and President with Type 1 Diabetes Dr Aaron Kowalski Prior to taking this role Kowalski served as JDRF s Chief Mission Officer for five years 11 Research editIn 2018 JDRF provided 85 million 37 of their total income to T1D scientific research grants they provided 156 4 million 67 of their total income in 2008 12 nbsp nbsp The images above provide an overview of JDRF research spending from 2001 to 2018 13 14 Noted philanthropists editWoody Johnson heir to the Johnson amp Johnson fortune Jack Benaroya Barbara Davis Delta Tau Delta fraternity official national philanthropy See also editJuvenationReferences edit JDRF International Pennsylvania Department of State Retrieved September 27 2017 a b c d e f g Form 990 Return of Organization Exempt from Income Tax JDRF International Guidestar June 30 2016 JDRF Exempt Organizations Select Check Internal Revenue Service Retrieved September 27 2017 a b Insel RA Deecher DC Brewer J January 2012 Juvenile Diabetes Research Foundation mission strategy and priorities Diabetes 61 1 30 5 doi 10 2337 db11 1398 PMC 3237656 PMID 22187372 Hurley Dan Robotic Pancreas One Man s Quest to Put Millions of Diabetics on Autopilot Wired Magazine April 19 2010 Vol 18 no 5 Retrieved 10 May 2013 a b Dolgin E 17 May 2012 Medical devices Managed by machine PDF Nature 485 7398 S6 8 Bibcode 2012Natur 485S 6D doi 10 1038 485s6a PMID 22616096 Artificial Pancreas Gives Girl a Vacation from Diabetes CNN March 4 2012 5 March 2012 Retrieved 10 May 2013 Robbins Rebecca 3 October 2016 The risky bet behind the first artificial pancreas for diabetes STAT Regalado A Waldholz M 31 March 2004 Ballot drive puts stem cell funding in voters hands In California diabetes groups show growing influence as they push for research big backing from Hollywood Wall Street Journal Eastern Ed A1 A12 PMID 15250089 JDRF www delts org Retrieved 2020 01 14 Aaron Kowalski Named JDRF President and CEO Juvenile Diabetes Cure Alliance 2019 JDRF Research Grant Allocation Juvenile Diabetes Cure Alliance ProPublica Mike Tigas Sisi Wei Ken Schwencke Brandon Roberts Alec Glassford 9 May 2013 Jdrf International Nonprofit Explorer ProPublica a href Template Cite web html title Template Cite web cite web a CS1 maint multiple names authors list link 2017 JDRF Grant Spending Juvenile Diabetes Cure Alliance External links editOfficial website Retrieved from https en wikipedia org w index php title JDRF amp oldid 1179648629, wikipedia, wiki, book, books, library,
