An e-patient is a health consumer who participates fully in their own medical care, primarily by gathering information about medical conditions that impact them and their families, using the Internet and other digital tools.[1] The term encompasses those who seek guidance for their own ailments, and the friends and family members who research on their behalf. E-patients report two effects of their health research: "better health information and services, and different, but not always better, relationships with their doctors."[2]
E-patients are active in their care and demonstrate the power of the participatory medicine or Health 2.0 / Medicine 2.0.[3] model of care. The "e" can stand for "electronic" but has also been used to refer to other terms, such as "equipped", "enabled", "empowered" and "expert".[4][5]
The current state of knowledge on the impact of e-patients on the healthcare system and the quality of care received indicates:
A growing number of people say the internet played a crucial or important role as they helped another person cope with a major illness.[6][7]
Many clinicians underestimated the benefits and overestimated the risks of online health resources for patients.[8][9][10]
"The net friendliness of clinicians and provider organizations—as rated by the e-patients they serve—is becoming an important new aspect of health care quality."[12]
According to one study, the advent of patients as partners is one of the most important cultural medical revolutions of the past century.[12]
In order to understand the impact of the e-patient, clinicians will likely need to move beyond "pre-internet medical constructs".[12]
Medical education must adapt to take the e-patient into account, and to prepare students for medical practice that includes the e-patient.[1]
A 2011 study of European e-patients found that they tended to be "inquisitive and autonomous" and that they noted that the number of e-patients in Europe appeared to be rising.[13] A 2012 study found that e-patients uploading videos about their health experienced a loss of privacy, but also positive benefits from social support.[14] A later 2017 study utilizing social network analysis found that when e-patients are included in health care conferences, they increase information flow, expand propagation, and deepen engagement in the conversation of tweets when compared to both physicians and researchers while only making up 1.4% of the stakeholder mix.[15]
Non-English translations and adaptations of "e-patient"edit
Japanedit
According to Maho Isono, PhD, at the International University of Health and Welfare in Ōtawara, Japan, the term closest to e-patient in Japanese is tojisha-kenkyu, where "kenkyu means study, investigation and research" and "tojisha refers to interested persons, disabled persons themselves or patients themselves."[16]
Swedenedit
Inspired by the seminal work on e-patients by Tom Ferguson and the e-Patients Scholars Working Group,[17] Swedish patient and engineer Sara Riggare [sv] coined a new Swedish word, "spetspatient", meaning "lead user patient" or "lead patient", in February 2016.
^ abMasters, K.; Ng'Ambi, D.; Todd, G. (2010). "'I Found it on the Internet': Preparing for the e-patient in Oman". Sultan Qaboos University Medical Journal. 10 (2): 169–179. PMC3074705. PMID 21509226.
^(PDF). Archived from the original (PDF) on 2023-03-25. Retrieved 2011-07-05.
^Eysenbach G Medicine 2.0: Social Networking, Collaboration, Participation, Apomediation, and Openness. J Med Internet Res 2008;10(3):e22
^Kevin Kruse. "What do you mean, 'e-patient'?". Blog.kruresearch.com. Archived from the original on 2013-08-25. Retrieved 2013-09-13.
^Hewitt-Taylor, Jaqui; Bond, Carol S (8 November 2012). "What E-patients Want From the Doctor-Patient Relationship: Content Analysis of Posts on Discussion Boards" (PDF). Journal of Medical Internet Research. 14 (6): e155. doi:10.2196/jmir.2068. PMC3510709. PMID 23137788.
^Finding Answers Online in Sickness and in Health, 5/2/2006, Pew Internet 2008-03-06 at the Wayback Machine.
^Eysenbach G (2003). "The impact of the Internet on cancer outcomes". CA: A Cancer Journal for Clinicians. 53 (6): 356–71. CiteSeerX10.1.1.526.4309. doi:10.3322/canjclin.53.6.356. PMID 15224975. S2CID 10192148.
^Jacobson P (2007). "Empowering the physician-patient relationship: The effect of the Internet". Partnership: The Canadian Journal of Library and Information Practice and Research. 2 (1). doi:10.21083/partnership.v2i1.244. ISSN 1911-9593.
^Ahmad F, Hudak PL, Bercovitz K, Hollenberg E, Levinson W (2006). "Are Physicians Ready for Patients With Internet-Based Health Information?". Journal of Medical Internet Research. 8 (3): e22. doi:10.2196/jmir.8.3.e22. PMC2018833. PMID 17032638.
^Crocco AG, Villasis-Keever M, Jadad AR (June 2002). "Analysis of cases of harm associated with use of health information on the internet". JAMA. 287 (21): 2869–71. doi:10.1001/jama.287.21.2869. PMID 12038937.
^Feder, Judith; Sands, Daniel Z. (2008-02-25). "A Reader and Author Respond to 'ePatients: Engaging Patients in Their Own Care'". Medscape Journal of Medicine. 10 (2): 46. ISSN 1934-1997. PMC2270894. PMID 18382715.
^ abcFerguson, Tom; Frydman, Gilles (2004-05-15). "The First Generation of E-Patients: These New Medical Colleagues Could Provide Sustainable Healthcare Solutions". British Medical Journal. 328 (7449): 1148–1149. doi:10.1136/bmj.328.7449.1148. ISSN 0959-8138. PMC411079. PMID 15142894.
^Santana, Silvina; Lausen, Berthold; Bujnowska-Fedak, Maria; Chronaki, Catherine E.; Prokosch, Hans-Ulrich; Wynn, Rolf (2011-04-16). "Informed citizen and empowered citizen in health: results from an European survey". BMC Family Practice. 12: 20. doi:10.1186/1471-2296-12-20. ISSN 1471-2296. PMC3101118. PMID 21496309.
^Gómez-Zúñiga, Beni; Fernandez-Luque, Luis; Pousada, Modesta; Hernández-Encuentra, Eulàlia; Armayones, Manuel (2012-04-25). "ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective". Medicine 2.0. 1 (1): e1. doi:10.2196/med2.2039. ISSN 1923-2195. PMC4084771. PMID 25075229.
^Utengen, Audun; Rouholiman, Dara; Gamble, Jamison G; III, Francisco Jose Grajales; Pradhan, Nisha; Staley, Alicia C; Bernstein, Liza; Young, Sean D; Clauson, Kevin A (2017). "Patient Participation at Health Care Conferences: Engaged Patients Increase Information Flow, Expand Propagation, and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers". Journal of Medical Internet Research. 19 (8): e280. doi:10.2196/jmir.8049. PMC5579322. PMID 28818821.
^Salmi, Liz; Brudnicki, Selina; Isono, Maho; Riggare, Sara; Rodriquez, Cecilia; Schaper, Louise K.; Walker, Jan; Delbanco, Tom (2020-09-01). "Six countries, six individuals: resourceful patients navigating medical records in Australia, Canada, Chile, Japan, Sweden and the USA". BMJ Open. 10 (9): e037016. doi:10.1136/bmjopen-2020-037016. ISSN 2044-6055. PMC7493106. PMID 32933961.
^Ferguson, Tom. "e-patients: How they can help us heal health care" (PDF).
External linksedit
van Woerkum CM (1 April 2003). "The Internet and primary care physicians: coping with different expectations". The American Journal of Clinical Nutrition. 77 (4 Suppl): 1016S–1018S. doi:10.1093/ajcn/77.4.1016S. PMID 12663310.
Susannah Fox; Pew Internet; American Life Project (2004-09-27). . Archived from the original on 2007-05-13. Retrieved 2007-04-23.
Ferguson, Tom (2007). (PDF). Archived from the original (PDF) on 2008-07-23. Retrieved 2013-10-07.
Rimer BK, Lyons EJ, Ribisl KM, et al. (July 2005). "How New Subscribers Use Cancer-Related Online Mailing Lists". Journal of Medical Internet Research. 7 (3): e32. doi:10.2196/jmir.7.3.e32. PMC1550655. PMID 15998623.
Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK (2007). "How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists". Journal of Medical Internet Research. 9 (2): e12. doi:10.2196/jmir.9.2.e12. PMC1874721. PMID 17513283.
The rise of the e-patient 2009-11-30 at the Wayback Machine, Lee Rainie from the Pew Internet and American Life Project presentation at the Medical Library Association, October 7, 2009
, from the Pew Internet and American Life Project
Association of Cancer Online Resources (ACOR) 2008-05-01 at the Wayback Machine, an aggregate of e-patient online communities for knowledge-sharing about cancer.
patient, patient, health, consumer, participates, fully, their, medical, care, primarily, gathering, information, about, medical, conditions, that, impact, them, their, families, using, internet, other, digital, tools, term, encompasses, those, seek, guidance,. An e patient is a health consumer who participates fully in their own medical care primarily by gathering information about medical conditions that impact them and their families using the Internet and other digital tools 1 The term encompasses those who seek guidance for their own ailments and the friends and family members who research on their behalf E patients report two effects of their health research better health information and services and different but not always better relationships with their doctors 2 E patients are active in their care and demonstrate the power of the participatory medicine or Health 2 0 Medicine 2 0 3 model of care The e can stand for electronic but has also been used to refer to other terms such as equipped enabled empowered and expert 4 5 The current state of knowledge on the impact of e patients on the healthcare system and the quality of care received indicates A growing number of people say the internet played a crucial or important role as they helped another person cope with a major illness 6 7 Many clinicians underestimated the benefits and overestimated the risks of online health resources for patients 8 9 10 Medical online support groups are an important healthcare resource 11 The net friendliness of clinicians and provider organizations as rated by the e patients they serve is becoming an important new aspect of health care quality 12 According to one study the advent of patients as partners is one of the most important cultural medical revolutions of the past century 12 In order to understand the impact of the e patient clinicians will likely need to move beyond pre internet medical constructs 12 Medical education must adapt to take the e patient into account and to prepare students for medical practice that includes the e patient 1 A 2011 study of European e patients found that they tended to be inquisitive and autonomous and that they noted that the number of e patients in Europe appeared to be rising 13 A 2012 study found that e patients uploading videos about their health experienced a loss of privacy but also positive benefits from social support 14 A later 2017 study utilizing social network analysis found that when e patients are included in health care conferences they increase information flow expand propagation and deepen engagement in the conversation of tweets when compared to both physicians and researchers while only making up 1 4 of the stakeholder mix 15 Contents 1 Non English translations and adaptations of e patient 1 1 Japan 1 2 Sweden 2 See also 3 References 4 External linksNon English translations and adaptations of e patient editJapan edit According to Maho Isono PhD at the International University of Health and Welfare in Ōtawara Japan the term closest to e patient in Japanese is tojisha kenkyu where kenkyu means study investigation and research and tojisha refers to interested persons disabled persons themselves or patients themselves 16 Sweden edit Inspired by the seminal work on e patients by Tom Ferguson and the e Patients Scholars Working Group 17 Swedish patient and engineer Sara Riggare sv coined a new Swedish word spetspatient meaning lead user patient or lead patient in February 2016 See also editDoctor patient relationship eHealth mHealth Patient opinion leader Treatment decision support Virtual patientReferences edit a b Masters K Ng Ambi D Todd G 2010 I Found it on the Internet Preparing for the e patient in Oman Sultan Qaboos University Medical Journal 10 2 169 179 PMC 3074705 PMID 21509226 Fox Susannah Fallows Deborah 2003 Health searches and email have become more commonplace but there is room for improvement in searches and overall Internet access PDF Archived from the original PDF on 2023 03 25 Retrieved 2011 07 05 Eysenbach G Medicine 2 0 Social Networking Collaboration Participation Apomediation and Openness J Med Internet Res 2008 10 3 e22 Kevin Kruse What do you mean e patient Blog kruresearch com Archived from the original on 2013 08 25 Retrieved 2013 09 13 Hewitt Taylor Jaqui Bond Carol S 8 November 2012 What E patients Want From the Doctor Patient Relationship Content Analysis of Posts on Discussion Boards PDF Journal of Medical Internet Research 14 6 e155 doi 10 2196 jmir 2068 PMC 3510709 PMID 23137788 Finding Answers Online in Sickness and in Health 5 2 2006 Pew Internet Archived 2008 03 06 at the Wayback Machine Eysenbach G 2003 The impact of the Internet on cancer outcomes CA A Cancer Journal for Clinicians 53 6 356 71 CiteSeerX 10 1 1 526 4309 doi 10 3322 canjclin 53 6 356 PMID 15224975 S2CID 10192148 Jacobson P 2007 Empowering the physician patient relationship The effect of the Internet Partnership The Canadian Journal of Library and Information Practice and Research 2 1 doi 10 21083 partnership v2i1 244 ISSN 1911 9593 Ahmad F Hudak PL Bercovitz K Hollenberg E Levinson W 2006 Are Physicians Ready for Patients With Internet Based Health Information Journal of Medical Internet Research 8 3 e22 doi 10 2196 jmir 8 3 e22 PMC 2018833 PMID 17032638 Crocco AG Villasis Keever M Jadad AR June 2002 Analysis of cases of harm associated with use of health information on the internet JAMA 287 21 2869 71 doi 10 1001 jama 287 21 2869 PMID 12038937 Feder Judith Sands Daniel Z 2008 02 25 A Reader and Author Respond to ePatients Engaging Patients in Their Own Care Medscape Journal of Medicine 10 2 46 ISSN 1934 1997 PMC 2270894 PMID 18382715 a b c Ferguson Tom Frydman Gilles 2004 05 15 The First Generation of E Patients These New Medical Colleagues Could Provide Sustainable Healthcare Solutions British Medical Journal 328 7449 1148 1149 doi 10 1136 bmj 328 7449 1148 ISSN 0959 8138 PMC 411079 PMID 15142894 Santana Silvina Lausen Berthold Bujnowska Fedak Maria Chronaki Catherine E Prokosch Hans Ulrich Wynn Rolf 2011 04 16 Informed citizen and empowered citizen in health results from an European survey BMC Family Practice 12 20 doi 10 1186 1471 2296 12 20 ISSN 1471 2296 PMC 3101118 PMID 21496309 Gomez Zuniga Beni Fernandez Luque Luis Pousada Modesta Hernandez Encuentra Eulalia Armayones Manuel 2012 04 25 ePatients on YouTube Analysis of Four Experiences From the Patients Perspective Medicine 2 0 1 1 e1 doi 10 2196 med2 2039 ISSN 1923 2195 PMC 4084771 PMID 25075229 Utengen Audun Rouholiman Dara Gamble Jamison G III Francisco Jose Grajales Pradhan Nisha Staley Alicia C Bernstein Liza Young Sean D Clauson Kevin A 2017 Patient Participation at Health Care Conferences Engaged Patients Increase Information Flow Expand Propagation and Deepen Engagement in the Conversation of Tweets Compared to Physicians or Researchers Journal of Medical Internet Research 19 8 e280 doi 10 2196 jmir 8049 PMC 5579322 PMID 28818821 Salmi Liz Brudnicki Selina Isono Maho Riggare Sara Rodriquez Cecilia Schaper Louise K Walker Jan Delbanco Tom 2020 09 01 Six countries six individuals resourceful patients navigating medical records in Australia Canada Chile Japan Sweden and the USA BMJ Open 10 9 e037016 doi 10 1136 bmjopen 2020 037016 ISSN 2044 6055 PMC 7493106 PMID 32933961 Ferguson Tom e patients How they can help us heal health care PDF External links editvan Woerkum CM 1 April 2003 The Internet and primary care physicians coping with different expectations The American Journal of Clinical Nutrition 77 4 Suppl 1016S 1018S doi 10 1093 ajcn 77 4 1016S PMID 12663310 Susannah Fox Pew Internet American Life Project 2004 09 27 Today s E Patients Hunters and Gatherers of Health Information Online Archived from the original on 2007 05 13 Retrieved 2007 04 23 Ferguson Tom 2007 e Patients How They Can Help Us Heal Health Care PDF Archived from the original PDF on 2008 07 23 Retrieved 2013 10 07 Rimer BK Lyons EJ Ribisl KM et al July 2005 How New Subscribers Use Cancer Related Online Mailing Lists Journal of Medical Internet Research 7 3 e32 doi 10 2196 jmir 7 3 e32 PMC 1550655 PMID 15998623 Meier A Lyons EJ Frydman G Forlenza M Rimer BK 2007 How Cancer Survivors Provide Support on Cancer Related Internet Mailing Lists Journal of Medical Internet Research 9 2 e12 doi 10 2196 jmir 9 2 e12 PMC 1874721 PMID 17513283 The rise of the e patient Archived 2009 11 30 at the Wayback Machine Lee Rainie from the Pew Internet and American Life Project presentation at the Medical Library Association October 7 2009 E patients With a Disability or Chronic Disease from the Pew Internet and American Life Project Association of Cancer Online Resources ACOR Archived 2008 05 01 at the Wayback Machine an aggregate of e patient online communities for knowledge sharing about cancer Haig Scott November 8 2007 When the patient is a Googler Time Who Cares Booklet by the Federal Trade Commission a guide to health information Dave deBronkart Meet e Patient Dave video at TED Greenwald Ted A Social Network for Crohn s Disease MIT Technology Review Technologyreview com Retrieved 2013 09 13 Bhargava Rohit Johnmar Fard 2013 ePatient 2015 15 Surprising Trends Changing Healthcare Retrieved from https en wikipedia org w index php title E patient amp oldid 1208764624, wikipedia, wiki, book, books, library,
